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by kiwiinoz
Wed Dec 06, 2017 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years ago
Replies: 13
Views: 2160

5 years ago

Hi All I have officially reached my 5 year mark from diagnosis on 05 December and am pleased to say, that despite a negative diagnosis I am still here and doing well. Life has changed from thinking about cancer to being at work and struggling to keep work going and having to deal with day to day pre...
by kiwiinoz
Thu Nov 16, 2017 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesion surgery for blockages
Replies: 10
Views: 1709

Re: Adhesion surgery for blockages

Hi Julie Let's say that the compacted fecal matter has been working its way out of me and I was amazed that I had that much in there. I feel so much better and lighter now so yes, there is always a positive in each cloud if you chose to look at it. Mrs Kiwi really is the one that needs the glute act...
by kiwiinoz
Thu Nov 16, 2017 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Just found out I have stage 3
Replies: 20
Views: 3531

Re: New here. Just found out I have stage 3

Been in the same place with a worse diagnosis and felt like the world was falling around my ears. I am still here, doing well and almost at the 5 year mark. There is hope and you just need to deal with each issue, one at a time. I found if I looked at the bigger picture it got too overwhelming so I ...
by kiwiinoz
Thu Nov 16, 2017 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 7211

Re: Tom marsilje

Wow, that was actually very unexpected and is a sad loss.
Hope you have relief from the pain now Tom
by kiwiinoz
Mon Nov 13, 2017 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesion surgery for blockages
Replies: 10
Views: 1709

Re: Adhesion surgery for blockages

Hi Karen To run to catch the sunrise is something I always enjoy. Sunrise is about 5:45AM so it starts to get light just after 5:00-5:15AM at the moment so I have to do 4:30AM runs. I did 2 marathons, one in Sydney in September, and one in Melbourne in October, and the one in October left me with an...
by kiwiinoz
Mon Nov 13, 2017 1:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesion surgery for blockages
Replies: 10
Views: 1709

Adhesion surgery for blockages

Hi Guys Don't you love CRC, the gift that keeps on giving. After 4 years, 11 months and 1 day from diagnosis, and after having blockages about every 6 months, causing many more CT scans that I needed, I had the worst blockage I have had yet. I have always been fortunate, if that is the correct word,...
by kiwiinoz
Sun Oct 29, 2017 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Solitary Lung Met - Looking for Positive Experiences
Replies: 19
Views: 2852

Re: Solitary Lung Met - Looking for Positive Experiences

I'll join the group again, and raise my hand too. Diagnosed with 1 met in my right lung, had it removed by VATS, did 6 months of full on FOLFOX. There are doubts to the effectiveness of chemo for this situation but I figured I had nothing to lose and a lot to gain, and I am still around and currentl...
by kiwiinoz
Wed Oct 25, 2017 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 178
Views: 50716

Re: New on the forum

Hi Claudia

I was diagnosed at Stage IV T3N0M1 with a metastasis in my right lung.
I am coming up to 5 years from diagnosis and am currently NED (No Evidence of Disease) so I am suggesting that there is hope.

Kiwi
by kiwiinoz
Sun Oct 22, 2017 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 38
Views: 8218

Re: Any Stage IV long term survivors here?

Hi James I had to google NH to work out it was New Hampshire. Gee, it must get really cold there. In Sydney, where I live, it gets to 5 degrees C (41 degrees F) in the mornings when I run in the middle of winter on a really cold morning. How cold does it get when you run? I understand the keeping yo...
by kiwiinoz
Thu Oct 19, 2017 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 38
Views: 8218

Re: Any Stage IV long term survivors here?

Hi Susie I always ran but the distances gradually got shorter as my age got older. The cancer diagnosis, and a stage IV one at that, did change my perspective and I ran to run away from the cancer and my fears. Then I found I really liked running a lot more than I thought. I was a lot more active in...
by kiwiinoz
Thu Oct 19, 2017 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 38
Views: 8218

Re: Any Stage IV long term survivors here?

Coming up to 5 years from stage IV diagnosis and 4.50 years since last (lung) surgery to remove my met.
Finished my first marathon in the weekend with my wife, and it would appear that I am still well, and that the VATS didn't diminish my lung capacity by much.
by kiwiinoz
Mon Oct 09, 2017 12:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED 5 years today - Stage 2C Rectal
Replies: 17
Views: 1809

Re: NED 5 years today - Stage 2C Rectal

Hi OSM That makes me really happy to hear that. Your posts have always been a source of enjoyment, support, positivity, and much research and organization. I always enjoyed your posts personally and am genuinely pleased that you kicked the 5 year milestone. Thanks for coming back on and giving us th...
by kiwiinoz
Mon Sep 11, 2017 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and husband just diagnosed
Replies: 36
Views: 9296

Re: New and husband just diagnosed

After things calm down you will realize that despite you and your husband wanting to get things "out" as soon as possible, the choices you make now will impact your outcome in a big way. He has cancer, so you can't change that. Rushing will lead to making ill informed decisions so get 2nd ...
by kiwiinoz
Wed Aug 30, 2017 10:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA for lung metastasis
Replies: 10
Views: 2671

Re: CEA for lung metastasis

Hi Hany Sorry you have to be in this situation worrying about your Mum. For some people CEA is an extremely sensitive marker, and for others it is meaningless. I was diagnosed with 2 rectal tumors and 1 metastasis in my lung, and my CEA was 1.6, which is at the very bottom end of range for a normal ...

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