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by Phuong
Mon Nov 12, 2018 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Yoga to Poop
Replies: 3
Views: 916

Yoga to Poop

Hello my fabulous family! The following guide was recently shared with us and you all know we are ALWAYS on the lookout for things that may help with constipation. Some of this looks like fun, and some of it looks like it might require a bit more coordination. So find your level and I hope it helps!...
by Phuong
Wed Nov 07, 2018 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 3802

Re: Almost 6 years

Congratulations Kiwi! It was meant to be.
by Phuong
Wed Nov 07, 2018 3:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Extra stoma supplies
Replies: 4
Views: 962

Re: Extra stoma supplies

I like to donate to Ostomy 2-1-1. It's a nonprofit run by Deb Fox. Donations can be mailed to her at the address below. She can provide you a receipt for your tax deductible donation (I think it's $50/pound).
Ostomy 2-1-1
c/o Olivet Baptist Church
1201 NW 10th St
Oklahoma City, OK 73106
by Phuong
Sat Nov 03, 2018 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 16
Views: 3084

Re: Foods to avoid during chemotherapy

I did Isagenix shakes with a big fat scoop of ice cream blended in for extra calories. Also, hydration is super important. I used H2ORS and still do. It was developed with chemo patients in mind. You should be able to contact them for samples.
by Phuong
Fri Nov 02, 2018 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 16
Views: 3084

Re: Foods to avoid during chemotherapy

Grapefruit is another one to avoid. I suggest not eating his absolute favorite foods during chemo only because eating it with nausea may turn him off to it in the future. A bland diet was easiest for me to tolerate, supplemented by protein shakes.
by Phuong
Thu Nov 01, 2018 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Study - Sensitive Topics
Replies: 8
Views: 1745

Study - Sensitive Topics

I'm working as a patient advocate with a doctor who has received a grant to study survivorship in early onset CRC. Drs are so focused on saving our lives that sometimes (as we often discuss) other things are not (like finances) which may have a big impact on your life. My question is how do you feel...
by Phuong
Thu Nov 01, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HOPE officially three years clean
Replies: 11
Views: 1601

Re: HOPE officially three years clean

We love good news! Congratulations to you and your mom!!!
by Phuong
Thu Nov 01, 2018 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and nervous
Replies: 16
Views: 3021

Re: New and nervous

I'm sorry that you have to be here, but this is a great place to be. Amazing folks here who just get what you're going through because we've all been there to one degree or another. I'm so sorry that you've lost your dad and and are going through so much, but I'm so glad that you are getting a colon...
by Phuong
Thu Nov 01, 2018 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 years old with stage 4 colon cancer
Replies: 12
Views: 3566

Re: 23 years old with stage 4 colon cancer

I was dx'd at 29 as stage 3 and have had mets to stage 4. At one point, I was told that I had an 8% chance of survival. I have now been at this for 11 years, walking this journey more like a chronic disease and not like the disease that's going to kill me. There is hope! That being said, I highly re...
by Phuong
Thu Nov 01, 2018 12:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncologist—do they have to be local?
Replies: 7
Views: 1374

Re: Oncologist—do they have to be local?

Mayo (and the other big oncologists) has plenty of experience with being your primary onc, and working with your local onc to execute the plan. Personally I think you have bigger benefits with making Mayo primary because they have more experience, depth of bench (specialists), and resources. Using t...
by Phuong
Wed Oct 31, 2018 11:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Camp 2020
Replies: 2
Views: 3424

Colon Camp 2020

I am so excited - applications are now being accepted for Colon Camp 2020!!! This is one of those life-changing experiences that simply cannot be explained. If you have any questions, ask away. Otherwise, what are you waiting for? Send in your application!!! https://colondar.wufoo.com/forms/s1db1tzt...
by Phuong
Sun Oct 07, 2018 1:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy World Ostomy Day!
Replies: 10
Views: 1635

Re: Happy World Ostomy Day!

Pumpkin!!! Especially if it's made with ice cream. Yum!
by Phuong
Sat Oct 06, 2018 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy World Ostomy Day!
Replies: 10
Views: 1635

Re: Happy World Ostomy Day!

CRguy, slow and steady should be your motto this weekend. So much to be thankful for.

P.s. Just claim one of the restrooms and tell everyone it's off limits! And then, have an extra helping of dessert for me. :)
by Phuong
Sat Oct 06, 2018 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy World Ostomy Day!
Replies: 10
Views: 1635

Happy World Ostomy Day!

For over a decade, I went through treatments and surgeries for stage IV rectal cancer but never needed an ostomy. About a year ago, I had a recurrence that ended in me becoming an ostomate. Getting a colostomy wasn't a big deal to me because I have been in the CRC world for so long and I've been aro...

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