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by Phuong
Sun Nov 18, 2018 1:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed 7 years ago !
Replies: 14
Views: 2021

Re: Newly diagnosed 7 years ago !

Congratulations!!!!!
by Phuong
Sun Nov 18, 2018 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 31
Views: 12289

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

It's been 11 years for me. I've run the gamut as far as treatments go. While I have active disease, I have years in between of NED. I continue to be active and live a full life and continue to celebrate milestones with my family. Yes there are crappy days, but it is doable. So go after this disease ...
by Phuong
Thu Nov 15, 2018 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Study - Sensitive Topics
Replies: 8
Views: 1795

Re: Study - Sensitive Topics

Thanks for these thoughtful answers. If there is anyone else that would like to chime in but would rather not post, please PM me. The more answers I have, the better position I will be to share and the better the questions on the survey will be. Much appreciated!
by Phuong
Thu Nov 15, 2018 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Yoga to Poop
Replies: 3
Views: 930

Re: Yoga to Poop

NHMike wrote:I do a few Yoga poses regularly (Warrior I, II, Tree Pose, Child's Pose, Plank, Side Plank) and a few additional ones when I have the time. Sometimes pain from the reversal, though, limit what I can do.


Good to know. I'll share the feedback so that they can consider adding adjustments.
by Phuong
Mon Nov 12, 2018 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Yoga to Poop
Replies: 3
Views: 930

Yoga to Poop

Hello my fabulous family! The following guide was recently shared with us and you all know we are ALWAYS on the lookout for things that may help with constipation. Some of this looks like fun, and some of it looks like it might require a bit more coordination. So find your level and I hope it helps!...
by Phuong
Wed Nov 07, 2018 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 3866

Re: Almost 6 years

Congratulations Kiwi! It was meant to be.
by Phuong
Wed Nov 07, 2018 3:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Extra stoma supplies
Replies: 4
Views: 1007

Re: Extra stoma supplies

I like to donate to Ostomy 2-1-1. It's a nonprofit run by Deb Fox. Donations can be mailed to her at the address below. She can provide you a receipt for your tax deductible donation (I think it's $50/pound).
Ostomy 2-1-1
c/o Olivet Baptist Church
1201 NW 10th St
Oklahoma City, OK 73106
by Phuong
Sat Nov 03, 2018 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 16
Views: 3204

Re: Foods to avoid during chemotherapy

I did Isagenix shakes with a big fat scoop of ice cream blended in for extra calories. Also, hydration is super important. I used H2ORS and still do. It was developed with chemo patients in mind. You should be able to contact them for samples.
by Phuong
Fri Nov 02, 2018 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 16
Views: 3204

Re: Foods to avoid during chemotherapy

Grapefruit is another one to avoid. I suggest not eating his absolute favorite foods during chemo only because eating it with nausea may turn him off to it in the future. A bland diet was easiest for me to tolerate, supplemented by protein shakes.
by Phuong
Thu Nov 01, 2018 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Study - Sensitive Topics
Replies: 8
Views: 1795

Study - Sensitive Topics

I'm working as a patient advocate with a doctor who has received a grant to study survivorship in early onset CRC. Drs are so focused on saving our lives that sometimes (as we often discuss) other things are not (like finances) which may have a big impact on your life. My question is how do you feel...
by Phuong
Thu Nov 01, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HOPE officially three years clean
Replies: 11
Views: 1611

Re: HOPE officially three years clean

We love good news! Congratulations to you and your mom!!!
by Phuong
Thu Nov 01, 2018 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and nervous
Replies: 16
Views: 3079

Re: New and nervous

I'm sorry that you have to be here, but this is a great place to be. Amazing folks here who just get what you're going through because we've all been there to one degree or another. I'm so sorry that you've lost your dad and and are going through so much, but I'm so glad that you are getting a colon...
by Phuong
Thu Nov 01, 2018 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 years old with stage 4 colon cancer
Replies: 12
Views: 3645

Re: 23 years old with stage 4 colon cancer

I was dx'd at 29 as stage 3 and have had mets to stage 4. At one point, I was told that I had an 8% chance of survival. I have now been at this for 11 years, walking this journey more like a chronic disease and not like the disease that's going to kill me. There is hope! That being said, I highly re...
by Phuong
Thu Nov 01, 2018 12:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncologist—do they have to be local?
Replies: 7
Views: 1412

Re: Oncologist—do they have to be local?

Mayo (and the other big oncologists) has plenty of experience with being your primary onc, and working with your local onc to execute the plan. Personally I think you have bigger benefits with making Mayo primary because they have more experience, depth of bench (specialists), and resources. Using t...

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