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by LeeT
Mon Feb 14, 2011 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How has perspective changed the way you act?
Replies: 19
Views: 2126

Re: How has perspective changed the way you act?

I used to count calories and weigh myself daily to lose weight...now I eat as many calories as I can and weigh myself daily hoping to gain weight. I never thought about pain and weakness now I celebrate the days that I have no pain and have energy. I used to hate good byes and how people always said...
by LeeT
Sun Feb 13, 2011 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Officially joined the FOLFOX bandwagon
Replies: 11
Views: 1485

Re: Officially joined the FOLFOX bandwagon

So it has warmed up here and was a balmy 2 C today...get your shorts out! So I have finished my chemo week with a few bumps in the road. As mentioned before the infusion was nothing too bad and felt really good Tuesday and most of Wednesday- left work early and went for a long nap. Thursday was pump...
by LeeT
Tue Feb 08, 2011 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Simple life changes could stop common cancers
Replies: 14
Views: 1731

Re: Simple life changes could stop common cancers

I too agree with all of the above and am starting to get annoyed with all the research that they are doing to "prove" that exercise and a better diet etc. can prevent certain cancers. Eating well and exercising should be common knowledge by now so instead of spending all this money on this...
by LeeT
Tue Feb 08, 2011 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Officially joined the FOLFOX bandwagon
Replies: 11
Views: 1485

Re: Officially joined the FOLFOX bandwagon

Lee F- Yip a whopping -25 (with the windchill) today and for the next few days but luckily they are calling for a "balmy" spell this weekend of 2 or 3 'C. My hubby suggested buying an automatic started for my car to avoid the cold sensitivity....me likey this idea...starting my car from th...
by LeeT
Tue Feb 08, 2011 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety Week 1
Replies: 17
Views: 2538

Re: Scanxiety Week 1

Thanks for the advice Skip...the pain is unbearable and live on painkillers for about a week. My pain only happens though when I missed the tx- it certainly felt like all my mets were trying to break free at once. Onc thinks though that the FOLFIRI wasn't working anymore and that the cancer was beco...
by LeeT
Tue Feb 08, 2011 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 cancer survivors: HOW DID YOU DO IT?????????????????
Replies: 15
Views: 6959

Re: Stage 4 cancer survivors: HOW DID YOU DO IT?????????????????

Oh Lisa, I can understand your fears- it sounds exactly how I felt when I was dx at 30 with stage iv. You have not received confirmation and there have definitely been cases of misdiagnoses or things not showing up in scans etc. My best advice is take it day by day - deal with the tests and don't th...
by LeeT
Tue Feb 08, 2011 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair is growing back - but it's the wrong colour.
Replies: 31
Views: 4417

Re: Hair is growing back - but it's the wrong colour.

After 2 tx of FOLFIRI my hair started to break off- never went bald but just pixie short. I was hoping that my hair would grow back to the baby blond I had when I was a kid and maybe with some curl or life to it this time...no luck there. It is growing back light brown (mousy) - not sure what my adu...
by LeeT
Tue Feb 08, 2011 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Officially joined the FOLFOX bandwagon
Replies: 11
Views: 1485

Officially joined the FOLFOX bandwagon

So today was my first FOLFOX tx. Dr. said that spike in CEA and extreme abdominal pain was most likely caused by the cancer. My last FOLFIRI tx did reduce ANC (?)/ liver function test quite a bit- so reduced the swelling but because of my last CT scan which was a bit iffy they thought it time to swi...
by LeeT
Thu Feb 03, 2011 11:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: counts plummetted..wt???
Replies: 10
Views: 889

Re: counts plummetted..wt???

Oh Kelley, I know how you feel...just when you think we can catch a break! My WBC plummeted after the first FOLFIRI and have been on Neupogen ever since...even then my neutraphils have been low. Your body has been through so much and maybe needs a little more time to recoup...it is so frustrating bu...
by LeeT
Wed Feb 02, 2011 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Joining the FOLFOX Gang
Replies: 9
Views: 1081

Joining the FOLFOX Gang

So after my sucky CEA results I phoned my onc today to discuss the option of doing a redraw after another round of FOLFIRI to see if it was my liver inflammation that caused the spike or if it was a wrong reading etc. i did not speak to him but the nurse told me that there was a notation in my file ...
by LeeT
Wed Feb 02, 2011 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo for Life???
Replies: 5
Views: 1395

Re: Chemo for Life???

I am a "chemo-oer for life" too. I just think that this is what I need to keep going then I will do it. Hopefully the "for life" part will be a long time....
by LeeT
Wed Feb 02, 2011 9:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sucky CEA
Replies: 7
Views: 953

Re: Sucky CEA

Thanks everyone for your thoughts. I hope this is just a once off. Bev my liver enzymes were higher recently and have had a lot of "liver pain" lately- I will call my onc today and see what he says. Praying that this is the reason.
by LeeT
Tue Feb 01, 2011 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sucky CEA
Replies: 7
Views: 953

Sucky CEA

Sucky, sucky, suckidy, suck (should replace the s with a f)...after a great start with FOLFIRI my CEA came flying down but my result from last week came at 1773- up from 674. I am hoping that this might have to do with pain that I was experiencing in my liver the weeks before and having to miss a ch...
by LeeT
Tue Jan 25, 2011 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox round #45 underway......I'm so happy....
Replies: 13
Views: 1707

Re: Folfox round #45 underway......I'm so happy....

That's awesome!!! I asked my onc today what the longest he has seen working on FOLFIR..he has seen 34 tx still working. I am scared to go onto FOLFOX from FOLFIRI- which we decide in the next weeks....I hope I can last as long...set a record for us!
by LeeT
Thu Jan 20, 2011 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A port vs an IV. What would you choose?
Replies: 40
Views: 3182

Re: A port vs an IV. What would you choose?

I'm a huge fan of my port..insertion not the worst thing to undergo a bit uncomfortable for a few weeks but definitely beats my picc....very unsexy, shouts "I'm sick",and a pain to shower with..little tubes dangling out of your arms- no thank you. I would not want to go the vein route as I...

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