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by Maia
Wed Aug 23, 2017 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 36
Views: 6644

Re: More chemo?

Basil, just in case: an immunotherapy trial for those NED at high risk of recurrence. 4 inmunizations. A fellow, Maellous, had this done. http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=56485 If the locations do not suit you: http://www.corpangelnetwork.org/home Just putting this out...
by Maia
Tue Aug 22, 2017 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BeansMama - I'm still kicking (butt that is)
Replies: 20
Views: 4655

Re: BeansMama - I'm still kicking (butt that is)

A., glad to hear it is somehow fixed now, and happy to know that your onc is so willing to fight for you, also in this aspect : )
And big congrats on moving on with your life. It's hard but you'll be better and will be stronger because of all this. xoxo
by Maia
Mon Aug 21, 2017 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ANY Pros/Cons Vitamin D3 ?
Replies: 19
Views: 3778

Re: ANY Pros/Cons Vitamin D3 ?

My wife has taken vitamin D at 10,000 - ca 60,000 iu per day over the last 7 years, mostly 25,000-40,000 iu. No problems when balanced on magnesium, vitamin K2 and less calcium. The potential problems mentioned for preventive management were mainly calcium toxicity, and deficiencies of magnesium or...
by Maia
Mon Aug 21, 2017 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ANY Pros/Cons Vitamin D3 ?
Replies: 19
Views: 3778

Re: ANY Pros/Cons Vitamin D3 ?

One of the important news at ASCO 2017, this past June , were the final results of the trial SUNSHINE. In short: results from a phase 2 clinical trial known as SUNSHINE indicate that a high dose of vitamin D supplementation significantly improved progression-free survival (PFS) by about 2 months com...
by Maia
Mon Aug 21, 2017 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BeansMama - I'm still kicking (butt that is)
Replies: 20
Views: 4655

Re: BeansMama - I'm still kicking (butt that is)

Insurance is being a pain about paying for my Keytruda so the battle is on with them. My oncologist is quite peeved as we have proof it was approved then all of a sudden they went back and changed their mind and denied every treatment I have had (at 31,000.00 a pop) just had my 11th treatment this ...
by Maia
Sat Aug 12, 2017 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 45
Views: 22510

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Roscoe, I of course wish you wouldn't be going through all this but... what a great 'team' you have formed with Dr Yang. I love that you found this out of the box strategy. Keep going!! I'd dare to suggest you might want to explore immunotherapy, in trials or off label, if you can --might be the 'so...
by Maia
Wed Aug 09, 2017 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a little hope
Replies: 44
Views: 12232

Re: I need a little hope

Sorry to hear the MD Anderson visit went like that. I would consult any of the clinical trials centers in TX that are not the MD Anderson, for them to check if some immunotherapy-based trial is available for your case. Texas Oncology, P.A. - Austin Recruiting Austin, Texas, United States, 78705 Prin...
by Maia
Mon Aug 07, 2017 5:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Path report back
Replies: 2
Views: 1169

Re: Path report back

Good, the best news :) You might benefit by looking into chemopreventive benefit of nonsteroidal anti-inflammatory drugs. In plain English: aspirin, low dose, might help you to prevent recurrence of those polips. You might want to ask your doctor about it. https://www.ncbi.nlm.nih.gov/pubmed/28325827
by Maia
Sat Aug 05, 2017 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Omentum mets? Youth seeking input please
Replies: 2
Views: 1014

Re: Omentum mets? Youth seeking input please

Is an omentum metastasis a peritoneal metastasis? Yes, the omentum is part of the peritoneum. It is a fatty tissue between the stomach and the colon --that's probably why the doctor talked to you first about 'stomach cancer cells', as you said in your other thread; but the tumor is inside the perit...
by Maia
Sat Aug 05, 2017 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Rectal Cancer being treated with Keytruda
Replies: 15
Views: 4151

Re: Stage IV Rectal Cancer being treated with Keytruda

The best news, veckon. I felt the emotion myself when I read this so I only can imagine yours.
I so love reading this, thank you for sharing. Immunotherapy really is changing... life already, for those MSI-high, something that was not 'here' at all two, maybe one, years ago.
by Maia
Wed Aug 02, 2017 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 6398

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

the difference between this drug and keytruda? Looks like both are pd-1 inhibitors. I wonder if you stop responding to one, another might work depending on what exactly differentiates this drug. Keytruda (pembrolizumab) and Opdivo (nivolumab) are both anti PD-1. They are too similar. Even drugs tha...
by Maia
Tue Aug 01, 2017 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Journal -- just had the surgery this morning.
Replies: 98
Views: 16144

Re: Reversal Journal -- just had the surgery this morning.

Congrats, Maellous!!
Keep chewing gum; chewing gum is to get your guts moving faster again. Just try to not chew with your mouth open, so you don't get extra air in the system.
Not kidding, just search this forum.
Smooth recovery wishes to you!
by Maia
Tue Aug 01, 2017 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib) for Stage IV, starting 11/7/2017
Replies: 31
Views: 8471

Re: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib) for Stage IV, starting 11/7/2017

LMighty, I'm glad to hear that the ascites are slowing down again and that she's taking a break for a week. Immunotherapy works slowly, often, and acts long after administered --months, sometimes. So if this is going to work, she's probably covered. BUT she needs to recover and just regain some stre...
by Maia
Tue Aug 01, 2017 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 6398

BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

FDA Approves Nivolumab for MSI-H or dMMR Colorectal Cancer Tuesday, Aug 01, 2017 The FDA has granted an accelerated approval to nivolumab (Opdivo) for the treatment of adult and pediatric patients with microsatellite instability-high (MSI-H) or mismatch repair deficient (dMMR) metastatic colorectal...
by Maia
Mon Jul 31, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robotic Surgery
Replies: 52
Views: 7551

Re: Robotic Surgery

Go get it, Basil!! I wish you that everything goes well and you have a smooth recovery.

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