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by Maia
Fri Oct 13, 2017 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)
Replies: 14
Views: 3878

Re: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)

As it says in the main post, Mayo will be the first place, probably. The idea was they were starting this year, at least with a trial.
by Maia
Fri Oct 13, 2017 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 19833

Re: Keytruda? What else is new?

Pembrolizumab (Keytruda) and nivolumab (Opdivo) are a type of immunotherapy, both approved some months ago, as monotherapy, for those with CRC whose MS status is MSI-high (about a 10% of the CRC are MSI high). For the majority of the CRC patients, who are MSS, those agents and similar are being test...
by Maia
Fri Oct 13, 2017 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 5775

Re: Peri mets, Stage IV --- Need advice

AJQ, so sorry to hear these news. Do you know anything about the mutations/ genetic characteristics of the tumour? Are you in California? You have there many main cancer centers, they surely can help you to get genetic profile and maybe looking for an immunotherapy trial.
by Maia
Fri Oct 13, 2017 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)
Replies: 14
Views: 3878

Re: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)

IMPORTANT UPDATE. October 2017 Many locations, not USA: Argentina, Australia, Belgium, Denmark, France, Germany, India, Italy, Poland, Russian Federation, Singapore, Spain, Switzerland International Registry of Patients Treated With Pressurized IntraPeritoneal Aerosol Chemotherapy (PIPAC) (PIPACRegi...
by Maia
Thu Oct 12, 2017 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Sort Of...Things Come In 5's - Appendiceal + Prostate Cancer - Update
Replies: 23
Views: 4725

Re: O/T...Sort Of...Things Come In 4's - Appendiceal (Appendix) Cancer - Not Me

BS, so sorry to hear about your dear friend. Where --area/state-- is she treated? Is she able/ willing to travel for treatment?
by Maia
Tue Oct 10, 2017 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 4998

Re: Looking for HIPEC Experiences

SisterinLaw, I do understand the good intentions of his oncologist --some patients pursue HIPEC hoping it will be a cure, for certain cancers... and for most stage IV cancers, when they are not resectable, there is no current cure (only recently, with immunotherapies, doctors start to talk about 'lo...
by Maia
Tue Oct 10, 2017 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 4998

Re: Looking for HIPEC Experiences

I'm sorry to hear about your brother in law. Can he travel for treatment, is he looking to have treatment in Chicago, only?
Do you know more about the genetic / mutations of the cancer? Immunotherapy, probably a trial, might offer other possibilities of treatment.
by Maia
Thu Oct 05, 2017 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BeansMama, you are not far from my thoughts and prayers.
Replies: 31
Views: 5457

Re: BeansMama, you are not far from my thoughts and prayers.

Wishing you that bastard is already out of your life!! (And I mean the liver lesion, BTW :mrgreen: )
Seriously: sending healing thoughts your way, Annie xoxoxo
by Maia
Tue Oct 03, 2017 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T3N0M0 Rectal Cancer- refuse surgery?
Replies: 53
Views: 14217

Re: T3N0M0 Rectal Cancer- refuse surgery?

Now my concern is for the possibility of permanent Neuropathy from the Oxaliplatin component of Folfox. You can ask to receive Folfiri instead of Folfox --it is your right, both are interchangeable regimens in terms of efficacy, different side effects profile. With Folfiri, you might have diarrhea,...
by Maia
Mon Oct 02, 2017 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A friend who passed formCRC
Replies: 8
Views: 1965

Re: A friend who passed formCRC

Betsy, so sorry. Wishing comfort to her family --and to you. Hugs...
by Maia
Mon Oct 02, 2017 8:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stella (vilca11) went home (more than a month ago)
Replies: 21
Views: 4591

Re: Stella (vilca11) went home (more than a month ago)

Godspeed, dear Stella. She was a friend, we emailed very often a couple of years ago, we emailed less lately, I lost contact with her some months ago --she knew time was near. I like to think that she is traveling somewhere now, free of pain and suffering, in a place that is even more beautiful than...
by Maia
Sat Sep 30, 2017 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020
Replies: 276
Views: 124681

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Sept/2017

chest and abdominal xrays ( multiple views ) and abdominal / liver ultrasound, all this fall continued general blood tests including CEA ( not a marker for me ) CA19-9, LDH, liver enzymes probably on a 6 month basis with HgbA1c every three months ( I'm on a statin which keeps me borderline in the h...
by Maia
Mon Sep 25, 2017 12:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED!!!!
Replies: 32
Views: 5485

Re: Still NED!!!!

Ohh, how happy for you!!!
Celebrate and may the cause of your stomach discomfort be found and addressed, easily.
by Maia
Fri Sep 15, 2017 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update Pete
Replies: 13
Views: 2654

Re: Update Pete

Julie --and Pete: tears of joy here. So immensely happy to read this, old pals...
Thank YOU for sharing this
much love

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