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by elise
Sun Feb 14, 2016 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our beloved Skypuppy
Replies: 55
Views: 9787

Re: Our beloved Skypuppy

Theresa was my closest cancer friend and as soon as I heard she had entered hospice care knowing her time was very short, I just hoped like hell it would be fast. Every passing hour felt like days. I'm crushed. Theresa and I talked about cancer and it's effects but mostly we talked about dogs (our m...
by elise
Thu Jan 28, 2016 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Raynauds vs Neuropathy - Burning toes
Replies: 3
Views: 809

Re: Raynauds vs Neuropathy - Burning toes

Prior to Chemo, I had Raynauds in my hands and some very mild neuropathy in my feet. After my rounds of Xeloda it struck with a vengeance. I am taking 1500 mg of Gabapentin per day which takes the edge off. I wear nice merino wool socks year round and gloves if it is below 50 F. Something that has ...
by elise
Thu Jan 28, 2016 7:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to Board
Replies: 23
Views: 4606

Re: New to Board

Chin up BeansMama (BM) .... is it too early to make a joke about the short form of your user name?? :shock:

Sending love from another mCRCer :)

Elise
by elise
Thu Jan 28, 2016 7:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Raynauds vs Neuropathy - Burning toes
Replies: 3
Views: 809

Raynauds vs Neuropathy - Burning toes

Hi All I have nasty peripheral neuropahy in my hands and feet. Burning when feet and hands get cold is pretty normal for me now and I try to dress appropriately (live in Ontario where it's winter from Nov-Mar). I use pregabalin/lyrica to control the nerve pain. It does a good job. Last week my toes ...
by elise
Wed Jan 27, 2016 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Survival stories
Replies: 31
Views: 8102

Re: Stage 4 Survival stories

I'm a year out of chemo for mCRC and still clear :) It does happen :)

Chin up,
Elise
by elise
Wed Jan 27, 2016 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver lesions
Replies: 14
Views: 1841

Re: Liver lesions

my surgeon came out of my liver wedge resection and said "I didn't see a hemangioma" when in theory my tumour had grown next to a hemangioma that had been there since day 1. Who knows if it was a tumour all along or if the tumour "ate" the hemangioma. Get a second opinion to be c...
by elise
Sat Jan 23, 2016 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right Hemicolectomy Pending (we think)
Replies: 6
Views: 1066

Re: Right Hemicolectomy Pending (we think)

EMR sounds interesting for sure! I've not had it but I had a laprascopic right hemicolectomy and honestly it wasn't that bad a surgery.

Hopefully someone can chime in on EMR :)

Elise
by elise
Fri Jan 22, 2016 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC - one year out of chemo :) NED
Replies: 21
Views: 2715

mCRC - one year out of chemo :) NED

I'm reflecting on what it means, what it feels like, to go a year without chemo. Today is my second 1st survivorship anniversary (the second time I've hit one year after chemo) but this one is more special. Being a year out of stage 2 colon cancer is very cool but being a year out of chemo for metas...
by elise
Thu Jan 21, 2016 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BAD NEUROPATHY IN FEET
Replies: 9
Views: 1751

Re: BAD NEUROPATHY IN FEET

Hey Julie first off HUGS to you both! We haven't chatted in forever :( neuropathy.... story of my life..... lyrica, sandals in the house, keep feet warm when it's cold out, stay off surfaces that are uneven or roughly textured (like those plastic carpets that have prongs so you can take your boots o...
by elise
Thu Jan 21, 2016 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wanna stop chemo after first one
Replies: 22
Views: 4767

Re: Wanna stop chemo after first one

You have a choice. That is what kept me going thru chemo. No one will force you, you choose to show up and do it. Yup it sucks ASS! I've done 6 months x 2 and felt every possible side effect. Yet there are many more here who have had much more than me. Chin up and try to look at it just 1 infusion a...
by elise
Sat Jan 16, 2016 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Round Three! Liver Lesions found
Replies: 13
Views: 3293

Re: Round Three! Liver Lesions found

Crud :( Butt at least you have a new team and hopefully a new plan coming up shortly.

Chin up and good luck

XOX

Elise
by elise
Mon Jan 11, 2016 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 cycles of Xeloda- your experience
Replies: 15
Views: 2316

Re: 8 cycles of Xeloda- your experience

I finished xeloda with some neuropathy that never left. Otherwise my skin did go back to normal. My biggest skin saviour was drinking TONS of water every day (3-4L/day). Good luck, xeloda was nasty for hands and feet but overall I had good QOL on it. Elise Elise, thank you for your reply. Interesti...
by elise
Sun Jan 10, 2016 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda vs IV 5FU& pump, which is easier in your experience?
Replies: 9
Views: 1678

Re: Xeloda vs IV 5FU& pump, which is easier in your experience?

I'd pick xeloda. Once I figured out how to do xeloda right, I had an ok time on it. I hate the pump with everything I had.

For me, tons of water, keeping my feet dry and in shoes/sandals and taking day 8 of 14 off made a huge difference.

Elise
by elise
Sun Jan 10, 2016 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 cycles of Xeloda- your experience
Replies: 15
Views: 2316

Re: 8 cycles of Xeloda- your experience

I finished xeloda with some neuropathy that never left. Otherwise my skin did go back to normal.

My biggest skin saviour was drinking TONS of water every day (3-4L/day).

Good luck, xeloda was nasty for hands and feet but overall I had good QOL on it.

Elise
by elise
Sun Jan 10, 2016 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blindsided- new here stage 4
Replies: 60
Views: 9356

Re: Blindsided- new here stage 4

Feeling hopeless now. I just got back from my oncology appointment and was told that I had several tumors on my liver, not just one. No resection,ablation or HAI pump. Second opinion on the 22nd. I can hardly believe this is happening to me. I was fine. I feel fine even now. But my doctor said he c...

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