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by Jack&KatiesMommy
Tue Jan 15, 2019 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 57847

Re: any peeps with BRAF mutation on here?

Ruth234: First, I am soooo happy for you! This is wonderful news! You should post a new thread with your encouraging results!!!! There are a number of people who have just been diagnosed and whom have the BRAF mutation that would really benefit from this information but they will have a hard time fi...
by Jack&KatiesMommy
Tue Jan 15, 2019 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any comment on Hyperthermia treatment?
Replies: 9
Views: 1482

Re: Any comment on Hyperthermia treatment?

You may want to do a search of "Herzog" on this forum. I think others have talked about this clinic or went there. I do not know what the outcomes were.
Cynthia
by Jack&KatiesMommy
Tue Jan 15, 2019 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please positivity about peri met
Replies: 7
Views: 1663

Re: Please positivity about peri met

Trying:
Do you know what your MSI/MSS status is? Is immunotherapy an option?

Cynthia
by Jack&KatiesMommy
Mon Jan 14, 2019 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation on mets
Replies: 8
Views: 1629

Re: Radiation on mets

One of my liver mets was very very near a major artery. My sugeon at MSKCC would not even consider a liver resection until that met was taken care of (as it was on an artery and he could not resect it.) My wonderful Interventional Radiologist at MSKCC did a procedure called irreversible electroporat...
by Jack&KatiesMommy
Mon Jan 14, 2019 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 77
Views: 34255

Re: Switching back to Pembro

Henry: I have no specific data but antidotally, my oncologist (the one prescribing the Keytruda) stated that if after 2 years on Keytruda I had any potential cancer evident in my body (via CT scan or via CEA) he suggested, based on past experience that we maintain the course and continue treatment i...
by Jack&KatiesMommy
Fri Jan 11, 2019 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 36944

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Brian: I did not change my diet at all. (Though I am not the healthiest eater.) My Mutations are: KRAS G12A AURKA amplification APC E1379 ARFRP1 amplification BCL2L1 amplification-equivocal FANCG E105 GABRA6 K173T GNAS amplification SRC amplification-equivocal TOP1 amplification TP53 R175H ZNF217 am...
by Jack&KatiesMommy
Tue Jan 08, 2019 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 36944

Re: Keytruda....Working for MSS....Mutation Burden is the Key

No radiation here. That would have always been a very last resort for me....particularly in the lung area. I had multiple radio frequency ablations though.
by Jack&KatiesMommy
Fri Jan 04, 2019 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 36944

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Strong Mama...since Keytruda and Optivo have not been approved for use in colon cancer with MSS characteristics, you probably won't find many people with MSS that have been fortunate enough to have had the opportunity to be treated with it. Their doctors would need to request use of the drug "o...
by Jack&KatiesMommy
Fri Dec 28, 2018 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: the tumors in low left lobe of my lung are growing
Replies: 3
Views: 853

Re: the tumors in low left lobe of my lung are growing

I had 3 done at one time as long as they are in the same lung. The more they do the greater the risk that the lung will collapse. I had my lung collapse twice after an rfa. No big deal. I was in the hospital for 3 days...had a drainage tube...and flew home 4 days after the rfa. Dr. Steven Solomon at...
by Jack&KatiesMommy
Fri Dec 28, 2018 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: the tumors in low left lobe of my lung are growing
Replies: 3
Views: 853

Re: the tumors in low left lobe of my lung are growing

I had great results with rya (radio frequency ablation) also done by an interventional radiologist also. It is same day treatment that doesn't require a hospital stay unless you have a collapsed lung. It is easy to tolerate...and in tumors under 2cm's it is supposedly as effective as lobectomy. Immu...
by Jack&KatiesMommy
Fri Dec 21, 2018 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED!!!!
Replies: 25
Views: 5512

Re: Still NED!!!!

Happy Happy! Merry Christmas! May you stay NED forever!!!
by Jack&KatiesMommy
Thu Dec 20, 2018 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Article On CRC MSS and Tumor Mutation Burden and response to Immunotherapy
Replies: 5
Views: 1517

Article On CRC MSS and Tumor Mutation Burden and response to Immunotherapy

Here is a link to a Foundation One Article that is, in part, based upon the results of my case and relates specifically to MSS TMB and Colorectal Cancer's response to immunotherapy:

https://www.foundationmedicine.com/blog ... tal-cancer

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