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by Jack&KatiesMommy
Sun Jan 27, 2019 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain Mets
Replies: 10
Views: 1987

Re: Brain Mets

A possible path: Have Foundation One testing done on your tumor....and if you have a moderate tumor burden you could respond to Keytruda despite the fact that you are MSS. It may be worth a try....
by Jack&KatiesMommy
Tue Jan 22, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 39471

Re: Switching back to Pembro

Henry: I have no specific data but antidotally, my oncologist (the one prescribing the Keytruda) stated that if after 2 years on Keytruda I had any potential cancer evident in my body (via CT scan or via CEA) he suggested, based on past experience that we maintain the course and continue treatment ...
by Jack&KatiesMommy
Mon Jan 21, 2019 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another anniversary
Replies: 16
Views: 1857

Re: Another anniversary

Thank you for the encouragement Ron! To 21 more years!
by Jack&KatiesMommy
Thu Jan 17, 2019 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to do after immunotherapy works
Replies: 11
Views: 1806

Re: What to do after immunotherapy works

Since the use of immunotherapy (in any significant way) has only been ongoing for a few years....and since it has been used since @2011 in melanoma, lymphoma, lung cancer.....you may get more valid information from people with those cancers since many of them (unlike colon cancer patients) may have ...
by Jack&KatiesMommy
Tue Jan 15, 2019 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 60458

Re: any peeps with BRAF mutation on here?

Ruth234: First, I am soooo happy for you! This is wonderful news! You should post a new thread with your encouraging results!!!! There are a number of people who have just been diagnosed and whom have the BRAF mutation that would really benefit from this information but they will have a hard time fi...
by Jack&KatiesMommy
Tue Jan 15, 2019 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any comment on Hyperthermia treatment?
Replies: 9
Views: 1621

Re: Any comment on Hyperthermia treatment?

You may want to do a search of "Herzog" on this forum. I think others have talked about this clinic or went there. I do not know what the outcomes were.
Cynthia
by Jack&KatiesMommy
Tue Jan 15, 2019 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please positivity about peri met
Replies: 7
Views: 1797

Re: Please positivity about peri met

Trying:
Do you know what your MSI/MSS status is? Is immunotherapy an option?

Cynthia
by Jack&KatiesMommy
Mon Jan 14, 2019 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation on mets
Replies: 8
Views: 1765

Re: Radiation on mets

One of my liver mets was very very near a major artery. My sugeon at MSKCC would not even consider a liver resection until that met was taken care of (as it was on an artery and he could not resect it.) My wonderful Interventional Radiologist at MSKCC did a procedure called irreversible electroporat...
by Jack&KatiesMommy
Mon Jan 14, 2019 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 39471

Re: Switching back to Pembro

Henry: I have no specific data but antidotally, my oncologist (the one prescribing the Keytruda) stated that if after 2 years on Keytruda I had any potential cancer evident in my body (via CT scan or via CEA) he suggested, based on past experience that we maintain the course and continue treatment i...
by Jack&KatiesMommy
Fri Jan 11, 2019 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 38985

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Brian: I did not change my diet at all. (Though I am not the healthiest eater.) My Mutations are: KRAS G12A AURKA amplification APC E1379 ARFRP1 amplification BCL2L1 amplification-equivocal FANCG E105 GABRA6 K173T GNAS amplification SRC amplification-equivocal TOP1 amplification TP53 R175H ZNF217 am...
by Jack&KatiesMommy
Tue Jan 08, 2019 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 38985

Re: Keytruda....Working for MSS....Mutation Burden is the Key

No radiation here. That would have always been a very last resort for me....particularly in the lung area. I had multiple radio frequency ablations though.
by Jack&KatiesMommy
Fri Jan 04, 2019 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 38985

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Strong Mama...since Keytruda and Optivo have not been approved for use in colon cancer with MSS characteristics, you probably won't find many people with MSS that have been fortunate enough to have had the opportunity to be treated with it. Their doctors would need to request use of the drug "o...

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