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by Jack&KatiesMommy
Tue Sep 03, 2019 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T : I wish Brownbagger were here
Replies: 12
Views: 1459

Re: O/T : I wish Brownbagger were here

I miss him too. Thanks for the reflection, CR Guy.
by Jack&KatiesMommy
Wed Aug 28, 2019 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad News About Arizona Mom
Replies: 3
Views: 1545

Sad News About Arizona Mom

With a heavy heart, I wanted to share some sad news with everyone. I just heard from Lara's husband, Byon, this morning. Lara (arizona mom) passed away on July 23 in her sleep at their home. Lara was a strong kind woman who loved her family dearly and who did everything possible to stay with them. M...
by Jack&KatiesMommy
Tue Aug 27, 2019 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just DX. looking for info.
Replies: 8
Views: 1178

Re: Just DX. looking for info.

I went on a Disney Cruise 4 months into my chemotherapy...I didn't have any issues...and my oncologist never suggested that I couldn't or shouldn't go or otherwise live my life. (I had little kids (4 & 8 years old and if they aren't a cesspool of germs...not sure what is.) :)

Cynthia
by Jack&KatiesMommy
Wed Aug 21, 2019 1:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 19
Views: 8670

Re: Phuong is the new ColonClub President !

Congratulations, Phuong!!!!!! Welcome to your new role...and thank you!!!
Cynthia
by Jack&KatiesMommy
Tue Jul 30, 2019 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 39553

Re: Switching back to Pembro

Still on Keytruda...month 15 for me.

Cynthia
by Jack&KatiesMommy
Tue Jul 30, 2019 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 3431

Re: Stage 4, over 4 years since diagnosis, still NED

I am so happy for you, Mariane! I remember when your twins were just tots! So glad that you are here with them!
Love,
Cynthia
by Jack&KatiesMommy
Sat Jul 06, 2019 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver met near artery and bile duct
Replies: 7
Views: 1285

Re: Liver met near artery and bile duct

In February 2013 I had Irreversible electroporation (I think it is now called Nanaoknife) at Memorial Sloan Kettering Cancer Center on a tumor in my liver that was too close to my arterial artery to remove it or even to do RFA since the blood in the artery would cool the RFA too much for it to be ef...
by Jack&KatiesMommy
Thu Jun 27, 2019 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 25
Views: 3857

Re: Keytruda Side Effects: bad joint pain

I (thankfully) have not experienced any sort of joint pain or really any pain at all on Keytruda in the year I have been on it. I have had a few weeks where I ached all over (as if I were getting a cold/flu) but that only lasted 5-6 days here and there. I am sorry that you are experiencing this. Cyn...
by Jack&KatiesMommy
Fri Jun 21, 2019 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low platelets before chemo
Replies: 9
Views: 1052

Re: Low platelets before chemo

My platelets haven't been above 90 for 4 years. I have done Irinotecan and Xeloda with platelet counts in the 80's. Liver treatment and damage can cause an enlarged spleen and chronic low platelet counts I have been told. no one seems to worry about mine.
Cynthia
by Jack&KatiesMommy
Thu Jun 20, 2019 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 5090

Re: Currently in the ER...woo.

So glad to hear you are feeling okay this morning. Have been praying for you, Amy.
Cynthia
by Jack&KatiesMommy
Mon Jun 17, 2019 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 16284

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

This is great, Pyro! Please keep us updated on any new developments! This is exactly the kind of thing that could turn into a game changer for so many of us!
Cynthia
by Jack&KatiesMommy
Tue Jun 11, 2019 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 2623

Re: Mop up chemo - Port vs non-port for Oxi?

I did six rounds without a port. I did not have any issue at all. I did it in my arm at inside the elbow joint.

Cynthia
by Jack&KatiesMommy
Fri May 24, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 39062

Re: Keytruda....Working for MSS....Mutation Burden is the Key

I'm so sorry Boswind & Pyro. I always kept going thinking that the longer I stuck around the more new treatments would be available....I have been fighting this disease for 8 years in August and I have seen 3 new breakthroughs and I think there are more just on the horizon.
Cynthia
by Jack&KatiesMommy
Thu May 02, 2019 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri after Folfox fails
Replies: 8
Views: 1349

Re: Folfiri after Folfox fails

I was on Irinotecan first (for over a year) (with Xeloda) and then was switched to Oxi w/ Xeloda to try to knock out some lung mets that were stable but not shrinking. The Oxi never worked...I went back on Fofiri and we used rfa procedures to knock down the lung mets. Irinotecan was much more effect...

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