I personally preferred to be left alone, people buzzing around me brought me down. Please let the person going through the disease deal with it the way they feel best.
Hey radnyc- if you don't mind, can you share which oncologist you saw at MSK? No pressure, just wondering. Hi Rachel, I’ll send you a pm with my onc’s name. But, I’ll just say that he was always direct, not really beating around the bush. But, honest and was upbeat when things went well. I have no ...
Please remember that although dr. Kemeny is the go to expert on the HAI protocol, the decision is not automatically hers alone. The whole team over there works on the selection and treatment of all the patients. As a matter of fact when I originally went there I had no idea what HAI was or who Kemen...
Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern. https://watermark.silverchair.com/hyl110.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAlkwggJVBgk...
Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern. https://watermark.silverchair.com/hyl110.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAlkwggJVBgkq...
Let’s keep an eye on this trial, Crispr is in my opinion the best possibility for a cure at the moment. Only three patients have been recruited, very advanced cancers, seem to be stable. There’s still much to do. https://www.nytimes.com/2019/11/06/health/crispr-cancer-leukemia.html?smid=nytcore-ios-...
This discussion is worthy of its own topic, as it’s of interest to so many group members, mods? I found a very interesting article on pubmed: https://www.ncbi.nlm.nih.gov/m/pubmed/29579327/ The premise is that CEA by itself may not be such a useful metric for recurrence surveillance. The take away: ...
The search is on for a superior testing method based on individual tumor DNA, which is the way to go. I found this quote from Dr. Axel Grothey, a well known oncologist at the Mayo Clinic: “ Dr. Grothey says he considers CEA to be a valuable surveillance test, but that research into better tests is o...
Wow! Just reading your story stresses me out. My CEA has lived between 5 and 10, for 10 years, and no cancer has been found after numerous radiographic studies, CT, PET. Yes, if it’d jump to 60 it’d freak me out! It’s hard not to think about and I wish there were another simple blood test for those ...
Sorry to hear this, but, if it is, then it’d be better if it’s at the original site, a colon resection is much more effective and less complex than a hepatectomy and it’d mean that it hasn’t spread. Recurrences at the original site mostly occur within the first three years. Stay strong.
It’s a horrible side effect of the oxaliplatin. What help was actually eating well seasoned foods. Once you’re done with the chemo things go back to normal. Hang in there.