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by weisssoccermom
Mon Feb 25, 2019 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216108

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I basically had the same as W & W (except my 'biopsy' was a full thickness excision) and I only had a CT chest/abdomen/pelvis every 6 months. I may be cynical here, but I highly doubt that you would get your insurance company to pay for an MRI every 3 months. Like the newer W&W, my protocol ...
by weisssoccermom
Mon Feb 18, 2019 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216108

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I've had my fill of flex sigs. My guess is that they are doing a modified one.....basically it just checks in the rectum. Here's my answers to your questions: 1. Prep: Day of procedure....2 enemas in the morning....that was it. You can see from my signature that I only had an excision...so I was on ...
by weisssoccermom
Sat Feb 16, 2019 12:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 7091

Re: Vaginal stenosis - an issue for women with rectal cancer

You really need to get something like Premarin....an estrogen based vaginal cream.....to use WITH the dilators. Using the dilators alone isn't going to be comfortable or, in the long run, do the trick by themselves. When you went into menopause, your estrogen levels decreased significantly. Estrogen...
by weisssoccermom
Tue Feb 12, 2019 8:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about surgery..
Replies: 3
Views: 1146

Re: Questions about surgery..

Welcome to the board. A colostomy is different than an ileostomy which is what the second surgeon is likely referring to. Make sure that although the first surgeon doesn't think he will need a colostomy (generally a permanent ostomy), that your dad might not need an ileostomy. After some colon and m...
by weisssoccermom
Tue Feb 12, 2019 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 7091

Re: Vaginal stenosis - an issue for women with rectal cancer

I thought....no I hoped it had changed from when I was in my treatment (2006). I can see from some of the concerns here and listening to my SIL's issues that too many doctors (particularly rad oncs), IMO are not putting the interests of their patients FIRST. For example, I used to hear around the ti...
by weisssoccermom
Tue Feb 12, 2019 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 7091

Re: Vaginal stenosis - an issue for women with rectal cancer

Lakeswim...with respect to the hip achiness.....I was told by my rad onc (mind you, ONLY after I brought up the issue and showed him literature that I had found from Australia) that yes, it is a known fact (then tell us please) that pelvic radiation can damage the hip area resulting in a higher inci...
by weisssoccermom
Tue Feb 12, 2019 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 7091

Re: Vaginal stenosis - an issue for women with rectal cancer

Jolene, First of all let me explain that when that first rad onc told me to have sex/use a dilator, the thought wasn't at all appealing.....even with his suggestive winks to my hubs. He explained that the sex didn't have to be drawn out or anything....just the act to help keep the vagina open was th...
by weisssoccermom
Mon Feb 11, 2019 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 7091

Re: Vaginal stenosis - an issue for women with rectal cancer

Good morning, 12+ years ago when I started my radiation for rectal cancer, the first rad onc I met with (he was a jerk) casually informed both of us about it. He didn't talk about it in a caring manner but rather winked at my husband and told us to have sex during treatment (or use a dilator) so tha...
by weisssoccermom
Sat Feb 09, 2019 2:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SNOW DAY - in the SEATTLE area - UPDATED 2/9/2019
Replies: 11
Views: 1543

Re: SNOW DAY - in the SEATTLE area - UPDATED 2/9/2019

UPDATE: Another winter snowstorm...this one much bigger started dumping on us yesterday afternoon and is still going (although it is almost over now....just before noon on Saturday). We got another 9 inches on top of the 2 or 3 that we had left over from Monday's snowfall. It's all very pretty but t...
by weisssoccermom
Wed Feb 06, 2019 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SNOW DAY - in the SEATTLE area - UPDATED 2/9/2019
Replies: 11
Views: 1543

Re: SNOW DAY - in the SEATTLE area!

-27...OMG! We have cold but it only gets down to the teens at night. For me, that's cold enough!! I can't even imagine the below zero temps. Our problem was somewhat like yours.....not freezing rain but the pavement was wet on Sunday night from warmer temps and light snow (in other words, it didn't ...
by weisssoccermom
Mon Feb 04, 2019 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SNOW DAY - in the SEATTLE area - UPDATED 2/9/2019
Replies: 11
Views: 1543

Re: SNOW DAY - in the SEATTLE area!

Still snowing. Pretty but...... Guessing tomorrow is another snow day. Temp today hasn't even hit 30 degrees and is supposed to go to the teens tonight. There's not going to be any melting..just more snow. Nice day to stay inside, put on a movie, make some hot cocoa and just relax! Snow was supposed...
by weisssoccermom
Mon Feb 04, 2019 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SNOW DAY - in the SEATTLE area - UPDATED 2/9/2019
Replies: 11
Views: 1543

SNOW DAY - in the SEATTLE area - UPDATED 2/9/2019

We've got a storm....and I'm happy. No school today so I don't have to go in. Hubs work is also cancelled.....now we BOTH have the day off! Started snowing yesterday around game time but temp was a little too warm to stick. Last night, temps in the high 20's so all that moisture on the roads turned ...
by weisssoccermom
Mon Feb 04, 2019 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216108

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

It is not uncommon by any means to have the hip/upper thigh achiness. You may find that getting up from a sitting position hurts the most. Hurt isn't exactly the right word....it's more like a stiffness. I still experience it and I'm 12.5 years out from radiation. I was told that patients who receiv...
by weisssoccermom
Sun Feb 03, 2019 4:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you first discover or got diagnosed with colorectal cancer ?
Replies: 16
Views: 3245

Re: How did you first discover or got diagnosed with colorectal cancer ?

I had vague symptoms when I was diagnosed. No blood ....FOBT was negative. My main issues were : extreme fatigue which my then GP kept chalking up to a low thyroid. I was already on thyroid meds and those levels were fine. I now know that I was anemic a good 1+ years before my colonoscopy but that G...
by weisssoccermom
Sat Feb 02, 2019 12:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Book Group
Replies: 10
Views: 2240

Re: Book Group

I happened to be reading the latest issue of Good Housekeeping and came across a little blurp about Julie's book (which is due to be released in 3 days..February 5th) "As a baby, Yip-Williams was sentenced to death by her Chinese grandmother due to her blindness. Saved by chance, she grew up to...

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