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by weisssoccermom
Tue Apr 02, 2019 12:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216109

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, Here are the answers (I can't see your post so hope that I remember all of your questions) 1. My doctor didn't recommend oxi for me as a stage II patient. The studies don't necessarily show that oxi for the stage II patient (with no negative prognostic factors) shows a significant increas...
by weisssoccermom
Mon Apr 01, 2019 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216109

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My oncologist was of the totally opposite opinion than yours. Now, I had a full thickness excision which is by far better than a regular biopsy but falls short of the LAR. My pathology report from that came back as totally NEGATIVE. Again, my situation was different but let me fill you in on the sto...
by weisssoccermom
Fri Mar 29, 2019 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216109

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

BTW....4.5 cm is NOT considered super low.

Patients with 2-3 cm ARE considered low.
by weisssoccermom
Thu Mar 28, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216109

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I had a local excision in 2007 after a complete clinical response to chemoradiation. I'm not sure what 'side effects' your doctor is talking about. Yes, I had a slight amount of pain (mine was due to the fact that the instruments were pushed against my tailbone for the duration of the surgery and I ...
by weisssoccermom
Tue Mar 26, 2019 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 7091

Re: Vaginal stenosis - an issue for women with rectal cancer

I"m not surprised about the HRT but I am surprised that your GYN won't Rx some vaginal estrogen cream. Yes, it does contain hormones, however, the levels your body absorbs via the vaginal route are SO small that most doctors don't consider it to be 'dangerous' to a female unless you have a STRO...
by weisssoccermom
Tue Mar 26, 2019 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pathological downstaging
Replies: 11
Views: 1599

Re: Pathological downstaging

Of course it is a good sign that chemo and the radiation (no matter how short the course....that particular treatment works well on nodes) helped clean up nodes/shrink her tumor. What you don't know is exactly the extent of shrinkage. Your signature shows a T3 prior to treatment and a T2 after. So y...
by weisssoccermom
Mon Mar 25, 2019 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pathological downstaging
Replies: 11
Views: 1599

Re: Pathological downstaging

Please, understand that your mother is NOT 'downstaged'. True 'downstaging' happens very rarely and only happens when a mistake or some other such error was made in the initial staging. When a patient's tumor responds to ANY type of treatment....be that chemo, radiation, a combination of both, immun...
by weisssoccermom
Thu Mar 14, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy coming up....gastroenterologist or surgeon?
Replies: 10
Views: 1105

Re: Colonoscopy coming up....gastroenterologist or surgeon?

I'm 12+ years out from my diagnosis and still have mine done (trying to schedule now) by my surgeon. IF something should be there, I want my surgeon to be the one that found it, knows precisely where it is, what it looks like, etc. Sometimes it is a little more difficult to schedule but heck, for me...
by weisssoccermom
Mon Mar 11, 2019 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 3755

Re: Just can't let it go

Please don't take this as being offensive but one thing that seems to be coming through loud and clear in your posts is that you seem to not believe that a polyp can't just be benign....no cancer in situ, NO level of dysplasia, no cancer. Please understand that there are people everyday who have pol...
by weisssoccermom
Sun Mar 10, 2019 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 3755

Re: Just can't let it go

If it would make you feel better, go back and see the GI or consult with another doc. If you have a GP whom you trust, then talk to him/her. However, I do think that you need to be prepared that maybe you just have a benign polyp. Back in 2008, I was told that I had a polyp removed during my first s...
by weisssoccermom
Sat Mar 09, 2019 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 7091

Re: Vaginal stenosis - an issue for women with rectal cancer

At least here in the US, it is by prescription only. Can you just call the GYN's office and see if he/she will send a script in before your appt.?
by weisssoccermom
Fri Mar 08, 2019 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 7091

Re: Vaginal stenosis - an issue for women with rectal cancer

Please...do NOT wait on the Premarin cream. Using the dilators without that 'help' isn't going to be effective. You NEED to get either Premarin or another similar type of cream. I seriously cannot stress that enough.
Please don't wait!
by weisssoccermom
Fri Mar 08, 2019 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 3755

Re: Just can't let it go

dysplasia means that there are abnormal cells there. Your pathology report didn't mention anything because there was NOTHING there to mention. Polyps start as benign growths. Some turn cancerous, some never will. In your case, the polyp that they found had NOT started the process (if it ever was goi...
by weisssoccermom
Sun Mar 03, 2019 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216109

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

PRS, SKB, Weisssoccermom, and other W&W-ers: Food/nutrition: Did you change your nutrition when you decided to do W&W? Add supplements? No to the first question. I don't drink.....never really did except LONG LONG ago in college. I don't smoke....never did that either. Yes, I still love my r...
by weisssoccermom
Sun Mar 03, 2019 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 216109

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I can't speak to the W & W approach but you might want to look at: Loyola University and University of Chicago. Both facilities utilize the TEM approach and you might find a surgeon there who is more amenable to that particular avenue....a TEM, chemo with meticulous follow up. I would suggest go...

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