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by jmarie
Thu Oct 27, 2011 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Don't tell me...
Replies: 16
Views: 1999

Don't tell me...

After a few weeks of random unexplained pains, symptoms and now having tests done to rule out spinal and brain mets I can't handle hearing these phrases anymore. They come from very close family members that's are my usual source of support in these times but I feel like they have suddenly buried th...
by jmarie
Thu Oct 27, 2011 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: tests, tests and more tests...Triple the scanxiety
Replies: 26
Views: 1679

Re: tests, tests and more tests...Triple the scanxiety

Thank you all, something I forgot to mention... When the PT doc was checking my reflexes he said they were very sensitive and jumpy, which "can be a sign of spinal cord involvement " :shock: . I wasn't sure if that meant a tumor was pressing on my spinal cord or if that meant a brain tumor...
by jmarie
Thu Oct 27, 2011 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: tests, tests and more tests...Triple the scanxiety
Replies: 26
Views: 1679

tests, tests and more tests...Triple the scanxiety

I went in yesterday to sign all the paperwork to get started on a clinical trial. Had my bloodwork done and it passed the trial guidelines. So we are moving on to the rest of the screening process, and if all goes well I will start the chemo on Monday. Which is awesome, I have been off chemo for WAY...
by jmarie
Tue Oct 25, 2011 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair loss (pubic) post Chemo rad for CRC?
Replies: 18
Views: 3299

Re: Hair loss (pubic) post Chemo rad for CRC?

I starred losing in the last week of tx, but I lost most of it in the 2-3 wks afterwards. A perfectly round bald spot, and grew back thicker than before :roll: yay
by jmarie
Tue Oct 25, 2011 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Introducing: "the Shit Box" :-)
Replies: 19
Views: 1444

Re: Introducing: "the Shit Box" :-)

LOL, I need one for my house, we only have one bathroom :shock: . Seriously that would be great for camping though, better than squating.
by jmarie
Mon Oct 24, 2011 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Refuses Chemo, What next?
Replies: 18
Views: 2821

Re: Refuses Chemo, What next?

I am sorry you have to stand by and watch a loved one go through this. With his age and stage of disease, Quality of life needs to be considered. Although some may say chemo is not that bad "like the movies", but to be honest I have had some really rough chemo txs that made me second guess...
by jmarie
Mon Oct 24, 2011 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Humour: Wish I had one of these!
Replies: 7
Views: 691

Re: Humour: Wish I had one of these!

NWgirl wrote:O - M - G - !!!!!!! The ultimate in bathroom comfort! I don't think I'd ever want to leave - just hook me up to the internet and a big screen T.V. and call it good!

My thoughts exactly!
by jmarie
Mon Oct 24, 2011 6:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad, angry, tired...
Replies: 17
Views: 1611

Re: Sad, angry, tired...

Why on earth would they tell you that much info and them make you wait for the full report? That is ridiculous! If it were me I would insist on seeing the doc or at least talking over the phone. Or at least get a copy of that report. If I have a scan while my Onc is on vacation one of his associates...
by jmarie
Sun Oct 23, 2011 4:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trip to the ER for Constipation??? How Embarrassing!
Replies: 16
Views: 3118

Re: Trip to the ER for Constipation??? How Embarrassing!

I am also a huge fan of Miralax, even though I don't have on ostomy. One of the reasons I love it is that since it is in a powder form you can adjust the dosage. When I was first dxd I had uncontrolable diahrea, but when I started tx I would get constipated. If I took a full dose I would overcorrect...
by jmarie
Sat Oct 22, 2011 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Advice: 1 cm lesion found in liver
Replies: 16
Views: 4138

Re: Need Advice: 1 cm lesion found in liver

I second Rix suggestion. Is the lesion in a spot the can biopsy?
by jmarie
Sat Oct 22, 2011 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OT: Wedding Day
Replies: 19
Views: 1113

Re: OT: Wedding Day

What a beautiful day for your family. I am so happy for all of you, it had to mean so much to your daughter (the bride) to share that day with her sister. I can't imagine my wedding day without my sister. It is also great to hear that Lauren is doing so well, I remember when you first reported her r...
by jmarie
Sat Oct 22, 2011 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New doctor and questions about change of plans
Replies: 8
Views: 902

Re: New doctor and questions about change of plans

I don't know much about the guidelines, but if you are not comfortable with it get second opinion. You don't want to have any regrets down the road. Make sure you are comfortable with what ever follow up plan you end up with.
by jmarie
Sat Oct 22, 2011 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mysterious bump and the usual "is that cancer" dilemma
Replies: 4
Views: 817

Re: Mysterious bump and the usual "is that cancer" dilemma

Ya, I guess I would rather it was a lymph node rather than a bone met. Not sure why, or if it would be better that way. Either way its getting too close to my brain for me. If this headache gets any worse I will call my Onc this weekend, otherwise I will be calling first thing Monday morning. I shou...
by jmarie
Sat Oct 22, 2011 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mysterious bump and the usual "is that cancer" dilemma
Replies: 4
Views: 817

Mysterious bump and the usual "is that cancer" dilemma

So sometime last week I noticed a bump behind my left ear, it is a very hard lump and at first only hurt when I pressed on it. The only reason I noticed it was because I tried to lay on my left side and noticed some pain behind my left ear. At first I thought it was just a pimple and didn't think mu...

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