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by raym
Mon Oct 06, 2014 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st colonoscopy -chemo/radiation or surgery?
Replies: 8
Views: 1127

Re: 1st colonoscopy -chemo/radiation or surgery?

I was in a similar situation an initial diagnosis. The tumor board discussed how to treat me since it was on the edge of colon versus rectal cancer. They had concerns that the sigmoid area was not fixed enough for effective radiation. At the time I was relieved as the treatment scared me. Now lookin...
by raym
Mon Oct 06, 2014 9:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mental burden
Replies: 7
Views: 941

Re: Mental burden

I actually have looked forward to future events now. There was a time where i said why bother, but you know any one of us can be dead in an instant from something other than cancer. It's been a busy several years as I fight this disease and we (wife and I) have had alot of good times. I've been down...
by raym
Sat Oct 04, 2014 3:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 26/F Just Found Out I Have Stage 4! HELP!
Replies: 24
Views: 4497

Re: 26/F Just Found Out I Have Stage 4! HELP!

I'm sorry you have had to join this "club", especially at a young age. Things are such a whirlwind in the beginning as it's so much to comprehend. The best advice is to take a breath, talk to your oncologist to see what the treatment plan is going to be. Additional surgery may be helpful b...
by raym
Sat Oct 04, 2014 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To the People of the Forum
Replies: 13
Views: 1759

Re: To the People of the Forum

Thank you for your thoughts and am sorry for your loss. This is the only online forum I am in so I can't speak to other resources on the web, but what I have learned and experienced here has been a real benefit in the treatment and management of my disease. I can't imagine a non-medical person (as I...
by raym
Sat Oct 04, 2014 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 3
Views: 754

Re: What do you think?

Her husband did not want all of the visitors. If it were me I would have put out out a polite but firm statement indicating that Dick does not want to be overwhelmed by visitors during this time as he does not have the energy to manage the visits. Nip it in the bud before it starts. People can also ...
by raym
Fri Oct 03, 2014 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reduced chemo
Replies: 9
Views: 1005

Re: Reduced chemo

I'm assuming the oxaliplatin was reduced by 25%? This is the drug that can cause numbness and tingling (potentially permanent) in the hands and/or feet. Typically when reduced the reduced dose continues through the rest of the protocol. If side effects continue to be an issue it may be eliminated at...
by raym
Wed Oct 01, 2014 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it just me?
Replies: 49
Views: 5594

Re: Is it just me?

Not it's just not you. The death rate from colon cancer is much higher than breast cancer. Breast cancer patients can complain about loss of self image , etc with CC surgery and treatment I can complain too, bathroom issues, nasty scars, a colostomy, sexual side effects, not have a good internal bod...
by raym
Mon Sep 29, 2014 7:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Marco has passed
Replies: 64
Views: 10581

Marco has passed

I saw a post on Marco's girfriends facebook page that I assume means Marco has passed away. It was translated as:

Mamoste Mark went off yesterday.
Wednesday afternoon will be celebrated his last goodbye to Carpaneto Piacentino in his home in via Saragat, about 36 at 15:00.

Sad news :(
by raym
Mon Sep 29, 2014 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KANGEN WATER helped my mother..
Replies: 19
Views: 10933

Re: KANGEN WATER helped my mother..

Alternate treatments (and some perhaps even damaging and very expensive) have been discussed here many times. With out a proper study no one can say that a particular treatment had any affect on the cancer. Alkaline water in particular is a topic that tends to lend itself to "snake oil" pr...
by raym
Sun Sep 28, 2014 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Really hard topic
Replies: 29
Views: 9070

Re: Really hard topic

I don't have any special plans or thoughts when that time comes. I just have a lot of information written down for my wife..various accounts and passwords, this site being one of them. I assume she will post updates if I am not able.
by raym
Sun Sep 28, 2014 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My dear husband newly diagnosed
Replies: 11
Views: 1543

Re: My dear husband newly diagnosed

Go got http://www.hipectreatment.com to locate surgeons that do HIPEC. I recall one or more people on this board having surgery in Pittsburgh. I had mine local to me in Baltimore (numerous hospitals there do it). I would check out this option as soon as you can, as doing chemo first may not address ...
by raym
Sat Sep 27, 2014 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post-Op Weight Loss
Replies: 6
Views: 2147

Re: Post-Op Weight Loss

Everyone is different. I lost a good bit of weight after my first surgery; was on a low residue diet and just didn't eat as much. I was 220 pre diagnosis and down to about 175 post surgery. Though after HIPEC in 2012 I went down to 150..now down even more due to various chemos and hospital stays wit...
by raym
Fri Sep 26, 2014 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rise
Replies: 11
Views: 1209

Re: CEA rise

I've gotten a report (and disk) from the CT scan facility soon after, perhaps you can do that and see what the report says (if you are up for that).
by raym
Thu Sep 25, 2014 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PICC Line
Replies: 2
Views: 594

Re: PICC Line

No automatic pumps, just a gravity feed IV drip once a day for 30 minutes. Plus they can take blood out for my labs next week and CT contrast in as well. Hoping it's out in the near future.
by raym
Thu Sep 25, 2014 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PICC Line
Replies: 2
Views: 594

PICC Line

Never had a PICC IV line before. Interesting contraption. I've been self administering an IV antibiotic through it. Not difficult, just a lot of steps! Hoping it comes out soon after the 2 week course is complete (and also the drain from pelvic abscess :shock: ).

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