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by musiclover
Wed Oct 11, 2006 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone had luck with IRINOTECAN all by itself???
Replies: 2
Views: 1101

Anyone had luck with IRINOTECAN all by itself???

My friend Mark is being put on Irinotecan until a study opens up to help stabalize his disease. He is stage IV. Has anyone use this before all by itself?? Has it done any good? I'm so distraught - he was scheduled to go on a trial and then they pulled it from underneath. No room they say. This reall...
by musiclover
Wed Oct 11, 2006 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Holly - question about your cancer and treatment
Replies: 9
Views: 2688

Yes, I'm sure. I couldn't believe my ears when the woman on the other end of the line told me they wouldn't see him without the $13,000. It's worth another call though as often two people say two different things. As far as medicaid (or Medical here in Calif), Mark applied and wasn't eligible. He ow...
by musiclover
Wed Oct 11, 2006 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Holly - question about your cancer and treatment
Replies: 9
Views: 2688

Wow Holly. That was very thorough and inspiring. The one thing that stands out is "MD Anderson". I continue to hear great things about that hospital. I've called and been told, unfortuntately, that they do not do second opinions. If Mark wants to make an appointment he has to put up $13,000 before h...
by musiclover
Sat Oct 07, 2006 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Holly - question about your cancer and treatment
Replies: 9
Views: 2688

For Holly - question about your cancer and treatment

Holly, thanks for posting you answers below. That was so helpful. Can you please tell me how extensive your cancer was, what sort of treatments you went through and how you managed to stick around long after the doctor's predictions? That would be so encouraging for me and my friend. Congratulations...
by musiclover
Thu Oct 05, 2006 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: rotten news (the truth) verses false hope
Replies: 6
Views: 2197

All your posts are so helpful. Missjv, thanks for that story about your Uncle. I don't think the current hospital is so wrong in not telling my friend all the sordid details. His doctor also says he is "treating" the cancer. My friend knows this is serious stuff and that he could die from this but h...
by musiclover
Wed Oct 04, 2006 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: rotten news (the truth) verses false hope
Replies: 6
Views: 2197

rotten news (the truth) verses false hope

After a second opinion regarding my friends Stage IV cancer possiblities, I've discovered the hospital he's been getting treated at has been lying to my friend about the reality of his situation. Now that I know, I don't know what to do. His cancer is very aggressive and widespread - much worse than...
by musiclover
Wed Oct 04, 2006 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isn't there another way?
Replies: 4
Views: 1502

IssyP You may want to do some research to see if you can find a surgeon that does Total mesorectal excision (TME). This is rectal surgery that is much less invasive, will leave your father intact and may give him just a temporary iliostomy. My friend had this surgery done - he was told there was no ...
by musiclover
Sun Oct 01, 2006 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: re: Anyone try Vectibux? (panitumumab)
Replies: 1
Views: 1685

re: Anyone try Vectibux? (panitumumab)

Has anyone tried this?? One of my friends oncologists mentioned this in passing before he signed the papers for his current trial which will be starting soon. After much research, this sounds much better. Here is another link with more stats: http://patient.cancerconsultants.com/rectal_cancer_news.a...
by musiclover
Fri Sep 29, 2006 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: re: Any stage IV's try radio frequency ablation?
Replies: 7
Views: 1892

re: Any stage IV's try radio frequency ablation?

Even those with advanced metastatic cancers can now have this procedure done with great outcomes. Is there any Stage IV's there that have done this? Thanks!
by musiclover
Fri Sep 29, 2006 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: free travel/lodging for cancer patients
Replies: 2
Views: 1316

free travel/lodging for cancer patients

I know free flights exist for people with cancer - does anyone know off hand who does this? I need to find out pronto. I've found a doctor out of state who will see my friend this Tuesday who does some cutting edge therapy (RFA). Thanks so much!
by musiclover
Wed Sep 27, 2006 2:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For mrsfaber - important questions
Replies: 0
Views: 711

For mrsfaber - important questions

Congratulations on your successful treatment! That is great news. My friend also has stage IV with mets to liver and lung. Can you please tell me: how extensive your cancer was (Mark has many lesions) what sort of chemo treatments you had (the type and duration) the recovery time for the surgery, an...
by musiclover
Tue Sep 26, 2006 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: re: Clincal Trials - creating new/more cancer?
Replies: 0
Views: 729

re: Clincal Trials - creating new/more cancer?

I'm at odds with the clinical trials. For one, there is no end in site. Other's treatments I continue to read are "I went on so-and-so for 4 months...". With the Clinical Trials there is no end. They continue until 1) the patient decides to go off themselves 2) if the cancer begins to grow again 3) ...
by musiclover
Tue Sep 26, 2006 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: re: Any Stage IV rectal cancer survivors w/liver, lung mets?
Replies: 7
Views: 2153

Wow, thanks for the quick reply! I am dealing with a County hospital that is inundated with insurance-less poor people (like my friend). I've already discussed the hell I am having getting the records with the doctor. He did say the the records were the patient's property but was unwilling to help m...
by musiclover
Tue Sep 26, 2006 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: re: Any Stage IV rectal cancer survivors w/liver, lung mets?
Replies: 7
Views: 2153

Holly Thanks for your reply. I've sat with Mark's first doctor as they looked over the scan prior to his trial. There were nodules everywhere - too many to count. Surgery was out of the question. When that news hit Mark he was paralyzed. I saw it happen at that moment and his spirit began to shrivel...
by musiclover
Tue Sep 26, 2006 5:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: re: Any Stage IV rectal cancer survivors w/liver, lung mets?
Replies: 7
Views: 2153

re: Any Stage IV rectal cancer survivors w/liver, lung mets?

My friend Mark is going through a rough time after being taken off his last trial and told he has days to decide between two other regimens, neither of which are sounding good. Can any of you out there who have been through this and survived please offer some encouraging words?? It would be so appre...

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