Suzanne Lindley is a very good friend of mine and a very busy and does run her own foundation. She is on Facebook and bops around the world speaking, so she is out there! She also goes to Call on Congress every year! And she just did some PSA's in LaLa land during the Emmy's, she is very much alive ...

I did not see any posts about this and Kate Murphy was VERY active on ACOR and Fight Colorectal Cancer. She had the gift of researching anything and everything to do with ColoRectal Cancer and will be GREATLY missed! She passed yesterday 10-3-2012.

I HAD NO IDEA this happened, I am crushed beyond belief. In fact I had my support group this week that he came to for a year and I said he was in Hospice and to come and find out he is gone is heartbreaking! I have been so enthralled with my own grief and out of touch, I am just so sick about this!!...

I have been in a fog since September 3rd, and I am not even sure if any of you knew my mom passed unexpectedly! She had a massive brain hemorrhage while in the ER and was gone an instant! She was my best friend and several of you had the pleasure of meeting her at Call on Congress! Here are several ...

I am SO SORRY! Bill was such a sweet soul......and he will always be remembered, I think of him everyday when I look at my picture because he did so many of our avatar's(pictures) for our profiles! The Angels received one of the best today and will take good care of him! To be pain free is a blessin...

I am also in Phoenix...just a tip at your home city to you profile then people would have seen where you are from because there is a good handful of us here in the Valley. In fact I am on one of the Cancer Advisory Boards of one of our hospitals and I know pretty much all the ColoRectal Surgeons in ...

I am Stage III with some extreme circumstances and was a Federal Employee and very blessed to have had a program at work Called Medical Disability Retirement that I just was approved for in June! As I said I am a rare Stage III case, but I require surgery every 3 months for a frozen pelvis that comp...

You made a difference in so many lives!!!! I understood you and loved you and I am SO grateful to have been blessed to have you as a friend and in my life! And I am so grateful you are out of pain and will rest in peace! Love You Pat!!!!! Peace Out!

Being a "Retired" as of last Friday Federal Agent of the IRS I can say this, under no circumstances, unless if you got a 501C3 and all the rules that apply, can anyone deduct their donation on State or Federal taxes and I might add the people donating items can not get a credit either and ...

That's great Liz!! Sorry you had to hire an attorney. Don't know about regulations for federal, but for SSDI/SSI cases they get 25% of back benefits and I *think* for the next 2 years. :eek: Hope everything else goes smoothly. -Rick I was denied SSI/SSDI for now because I was still working. But thi...

Yesterday I received notice that my Federal Medical Retirement Disability WENT THROUGH!!! I am excited, scared, nervous and EXCITED!! For those that do not know me, I am/was Stage III but have SEVERE side effects for instance I have to have surgery every 3 months, have/had DVT and on Counadin for li...

This thread is a good example of not accurately clarifying which type of enema. A Fleet enema is a saline laxative. A water enema is obviously just water. When one doctor says a daily enema is OK and another doctor says it could develop a lazy colon - they may be talking about very different enemas...

I am bumping this up because I really want someone to tell me the difference between dailiey enema's vs irrigating?! I just think they are the same procedure.

I had 6 weeks of radiation and I now have SEVERE radiation damage! I have what is called a frozen pelvis and most of my organs are fused together, so much so that my Dr. could not get behind them to remove my rectal stump like they normally do for people with a perm ostomy. Another sideeffects is th...

Having a Permanent Colostomy someone PLEASE tell me what is the difference between irrigating daily and a daily enema, my first pass says NONE, but maybe I am missing something here?! I have lots of Ostomy friends that irrigate daily my dad in included and he has had a colostomy for 30+ years. And i...