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by thelongglass
Fri Nov 04, 2011 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanning today and neuropathy annoyance
Replies: 8
Views: 882

Scanning today and neuropathy annoyance

I am getting scans this afternoon and my thoughts are with all you others who have scans this week or coming up soon. So Kenny, Beth, soworried, Michelle, and all the others I don't know about, I am with ya! This is my first scan in about 10 months since I started treatments. Preparing for my takedo...
by thelongglass
Sun Sep 25, 2011 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I hate what this is doing to my kids
Replies: 20
Views: 2345

Re: I hate what this is doing to my kids

I know that feeling too well. I was really lucky in that somehow I had those few days where I wasn't good..but then I was lucky to have some good days where I went crzay inbetween working to create special moments. It was tough for me because it was in the summer and the kids were always around. Th...
by thelongglass
Sun Sep 25, 2011 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I hate what this is doing to my kids
Replies: 20
Views: 2345

Re: I hate what this is doing to my kids

Thanks for sharing your frustrations. I hate that we have to deal with this. Our kids who are dealing with it well have lowered their expectations for our involvement in their lives, which I don't like. Then the ones who are not dealing with it well are struggling and these formative years are affec...
by thelongglass
Sun Sep 25, 2011 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a 5 cm tumor in sigmoid colon considered large?
Replies: 22
Views: 92484

Re: Is a 5 cm tumor in sigmoid colon considered large?

I am eager to hear how your scans and tests go. My tumor was 5 cm, but they also measured it to spread to 50% of the colon wall, which perhaps indicates how much it was obstructing (it didn't obstruct 50%, though, because it wasn't bulging that far). In my case it had spread to 3 lymph nodes. I had ...
by thelongglass
Wed Jun 29, 2011 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Meeting w/Surgeon Next Week - Permanent Colostomy
Replies: 16
Views: 1776

Re: Meeting w/Surgeon Next Week - Permanent Colostomy

I was so glad to hear your good news on the scans! Good luck on the surgery, it is clear that you have weighed your options carefully and that this will make a huge difference in your quality of life.
by thelongglass
Thu Jun 23, 2011 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Five years ago today!!
Replies: 51
Views: 5205

Re: Five years ago today!!

Great post! Looking forward to my five year mark! Congratulations.
by thelongglass
Thu Jun 23, 2011 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAPPY BIRTHDAY 'thelongglass'
Replies: 3
Views: 499

Re: HAPPY BIRTHDAY 'thelongglass'

Thanks, Jaynee! This birthday is different for me-- I am more grateful and have fewer expectations of others. I don't mind getting older, in fact it is kind of what I am hoping to continue doing. Cancer changes things like that, doesn't it? Had my fourth Folfox infusion yesterday, so I am just chill...
by thelongglass
Sun Jun 19, 2011 12:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newly dx RC T3N0M0 age 38...SHOCKED still
Replies: 23
Views: 3602

Re: newly dx RC T3N0M0 age 38...SHOCKED still

So it sounds like your surgeon has some amazing credentials, no doubt. The general surgeon my oncologist confidently sent me to was fabulous, but she was the first to tell me that I shouldn't have a general surgeon do the job. Now I imagine your surgeon does more of these surgeries than other genera...
by thelongglass
Sat Jun 18, 2011 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newly dx RC T3N0M0 age 38...SHOCKED still
Replies: 23
Views: 3602

Re: newly dx RC T3N0M0 age 38...SHOCKED still

Tanlor, You have already gotten so much good advice from Jaynee and others, I don't know that mine will add much more, but for what it is worth, I started this whole process six months ago with a colonoscopy because of blood/mucous in my stool as well. My youngest daughter (I have three) was 2 1/2 a...
by thelongglass
Sat Jun 18, 2011 5:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm up and running:)
Replies: 57
Views: 5790

Re: I'm up and running:)

That is great news! I am so happy for you. Hope your recovery goes well.
by thelongglass
Sat Jun 11, 2011 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The skin on my fingers is peeling - Folfox?
Replies: 22
Views: 4944

Re: The skin on my fingers is peeling - Folfox?

I had the peeling lingering even a few weeks after my 5 weeks of 5FU. I am on my fifth week of Folfox but haven't had the reaction yet. It makes it hard to do detailed work with your fingers for sure, which wouldn't be great alongside cold sensitivity and numbness, I imagine.
by thelongglass
Sat Jun 11, 2011 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ramblings: Do other cancer patients tick you off?
Replies: 91
Views: 12006

Re: Ramblings: Do other cancer patients tick you off?

I read through that whole list of replies! I think it was a very good discussion that brought out a lot of people who haven't commented a whole lot. I am too new to all of this to contribute much, but I have appreciated the support and cheers for when I have had good news. I feel yucky today after T...
by thelongglass
Fri Jun 10, 2011 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum
Replies: 20
Views: 3131

Re: New to forum

Looked at your blog and looks like you are getting great care at Mayo. I am ignorant in regards to care in other regions, but I guess I expect lot from the Mayo brand.
by thelongglass
Fri Jun 10, 2011 6:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum
Replies: 20
Views: 3131

Re: New to forum

I add my welcome and support to those who posted before. As you can see in my signature, I started all of this less than six months ago. My rectal tumor was in the upper third, so not the same situation here, but if I were you, I would get on the phone and talk to your oncologist first thing tomorro...
by thelongglass
Fri Jun 10, 2011 5:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Travel
Replies: 8
Views: 994

Re: Travel

I have been curious about this as well, though I don't think I will fly before my ileostomy reversal. I do, however, have permanent staples in my rectum following the LAR. I have envisioned an amusing encounter with security over the metal detector wands beeping as they go over my backside. I am wor...

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