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by Lee
Wed Aug 08, 2018 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas - HELP
Replies: 10
Views: 677

Re: Enemas - HELP

Hi Scott, Sorry no one has responded to you yet, I hope by bumping this back to the top, someone with experience with enemas can answer you directly. I don't have any experience with enemas, as I have a permanent colostomy. Have you checked the search button? Top left side "Search this Forum&qu...
by Lee
Wed Aug 08, 2018 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member looking for information
Replies: 3
Views: 715

Re: New Member looking for information

Hi Kim, Welcome, sorry for the reason you had to join. Not sure where you live, butt getting a 2nd opinion at a major cancer hospital or major cancer treatment center is ALWAYS a good idea. You might want to do a search here on HIPEC procedure. Top left hand "Search this Forum", input HIPE...
by Lee
Wed Aug 08, 2018 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH trial update .. my T cells are growing!!
Replies: 20
Views: 699

Re: NIH trail update .. my T cells are growing!!

Sleen wrote:I'm so glad to read this!!! Good luck to you! I look forward to your updates :)

Celine


Me too!! CONGRATULATIONS

Lee
by Lee
Wed Aug 08, 2018 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 597
Views: 110620

Re: TIL Immunotherapy at NCI

Got my good news today my cells are growing! Going back to NIH to review recent scans... which are good stable or shrinking lung mets after 5 treatments folfiri+ avistan...Thursday August 16th. The are starting testing on my T cells. Possible start in the trial the end of September.... fingers cros...
by Lee
Thu Jul 19, 2018 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 44
Views: 1969

Re: Just Diagnosed

Yes my tail bone is sewn shut back there. Reversal is not an option for me, EVER!!! Rectum is 100% gone. Again best decision I made. I've cried maybe 3 times over the past 14 years because of my colostomy, I've thank GOD a million + times for helping me made the right decision and giving me my life ...
by Lee
Tue Jul 17, 2018 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 93
Views: 10914

Re: Surviving radiation for rectal cancer

Hi did your ability to go to toilet without accidents improve after radio therapy ! Thanks ! X If you are asking me, my quality of life IMPROVED after I got the colostomy bag. Radiation destroyed 2/3 of my rectal muscles. I was tied to the toilet for hours anytime I ate. I had to be home for the da...
by Lee
Tue Jul 17, 2018 3:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo pain?
Replies: 6
Views: 381

Re: Chemo pain?

Have you heard back from your Dr. yet?

Lee
by Lee
Tue Jul 17, 2018 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 44
Views: 1969

Re: Just Diagnosed

Hi. Does all this mean I am going to have a colostomy bag? Or does it mean there is nothing the surgeon can do? I noticed that this report is a lot lower You've got some WONDERFUL advice from weisssoccermon. I have a permanent colostomy and believe me, it gave me my life back. You really should see...
by Lee
Mon Jul 16, 2018 4:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 44
Views: 1969

Re: Just Diagnosed

Hi and welcome, sorry for the reason you are here. It sounds like you have rectal cancer and as Mike stated, looks like stage I. Your chances are very good that you will beat this. Surgery for sure, more than likely, no chemo. Butt you might be getting radiation prior to the surgery to help shrink t...
by Lee
Mon Jul 16, 2018 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2nd opinions outside of your hospital network
Replies: 3
Views: 343

Re: 2nd opinions outside of your hospital network

From what I understand, Kaiser will not pay for a 2nd opinion at Sutter unless they give you a referral for one. And I don't think they will. Butt if you are paying out of pocket, you should be able to see an Onc at Sutter. I would call up Sutter and see what they say. Good luck, let us know what yo...
by Lee
Mon Jul 16, 2018 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo pain?
Replies: 6
Views: 381

Re: Chemo pain?

I'm glad you've got a call to your Dr. I'm wondering if the Avastin is causing the problem.

I was only on FOLFOX and don't remember stomach pain.

Hope you get answers soon.

Lee
by Lee
Mon Jul 16, 2018 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MAP and colectomy
Replies: 5
Views: 371

Re: MAP and colectomy

DianeD wrote:Thanks for the info Lee. I will check it out. I had not heard about this option


You are welcome, butt I have to ask what is MAP?

Again welcome to the forum. You will find a lo of helpful people around here.

Lee
by Lee
Sun Jul 15, 2018 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage II2b - T4 - need help
Replies: 4
Views: 364

Re: Stage II2b - T4 - need help

Stage II is such a gray area. IF I understand correctly, stage II2b would require chemo, butt in an 80 year old man, traditional chemo regiment might be overkill. Maybe look into "light" chemo. Either 5FU or the pills form of it. Maybe a 2nd opinion at a major cancer treatment center might...
by Lee
Sun Jul 15, 2018 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it possible for a rectal polyp to grow to 10cm aggressive T4 advanced tumour in 3 years?
Replies: 16
Views: 864

Re: Is it possible for a rectal polyp to grow to 10cm aggressive T4 advanced tumour in 3 years?

This just popped into my head. Check and see if there are any medical compliant against that doctor who did the scope back in 2011.

Lee

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