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by Joy
Sun Jul 03, 2011 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can Chemo Cause Cancer to your Blood Marrow?
Replies: 10
Views: 1773

Re: Can Chemo Cause Cancer to your Blood Marrow?

Yes! MDS can be caused by Chemo and radiation. I was diagnosed with Cll after routine blood work almost 2 years ago (not caused by chemo) My Hemoglobin is also very low and my hemo/onc feels that I have MDS was possibly caused by radiation and chemo. My hemoglobin is 9.9 refractory anemia which does...
by Joy
Fri Jul 01, 2011 9:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long did your neuropathy last?
Replies: 21
Views: 2967

Re: How long did your neuropathy last?

Still have neuropathy in my feet. Not painful just darned annoying :evil:
by Joy
Sun Jun 19, 2011 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEDS and Nerds
Replies: 29
Views: 2450

Re: NEDS and Nerds

whooeeeeeeeeeeee!! yipeeeeeeee! Doing the happy dance for you.
by Joy
Fri Jun 17, 2011 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Passed the 3 YEAR mark - NED; still neuropathy
Replies: 10
Views: 985

Re: Passed the 3 YEAR mark - NED; still neuropathy

Still have neuropathy in feet............... no "sexy hgh heel shoes"......have to wear "old lady shoes" I'm 65 so I guess I wouldn't be wearing "sexy shoes" :D Neuropathy is just something I deal with, annoying as heck but thankfully in my case it doesn't give me "...
by Joy
Wed Jun 08, 2011 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Info re: Pico Salax
Replies: 13
Views: 2011

Re: Info re: Pico Salax

I'm impressed with the Pico Salax company. I e-mailed for information and received a phone call within 2 hours. Unfortunately I wasn't home to speak to the pharmaceutical rep, she left me a message to return her call to-morrow. What I want to know: is Pico Salax "safe" for patients who hav...
by Joy
Sat May 14, 2011 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer and Folfox - 8 or 12 treatments?
Replies: 15
Views: 2164

Re: Rectal Cancer and Folfox - 8 or 12 treatments?

28 5FU + radiation ...."8" round of FOLFOX.

I was 59 at the time of diagnosis, just celebrated by 65 birthday last December :D

With me 8 was enuf :D
by Joy
Thu Sep 30, 2010 7:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anyone have kidney problems from chemo or radiation
Replies: 8
Views: 1488

Re: anyone have kidney problems from chemo or radiation

Hi Liz I went to my Oncologist and she said "You should see a kidney specialist", my hemotologist says "You should see a kidney specialist", my GP (family doc) says "You should see a kidney specialist" and now when I went for my CT scan to-day my GFR is at 23 and the CT...
by Joy
Tue Sep 28, 2010 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anyone have kidney problems from chemo or radiation
Replies: 8
Views: 1488

Re: anyone have kidney problems from chemo or radiation

I am experiencing kidney problems. My creatinine level was steady at 118 (slightly elevated) until last year when it took a big dive and is now at 180. Recently my hemoglobin went to a low of 8.8 with a diagnosis of MDS (refractory anemia ) which can be caused by Radiation and Chemo. I'm one of the ...
by Joy
Tue Aug 31, 2010 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what are the odds of getting cancer?
Replies: 24
Views: 3916

Re: what are the odds of getting cancer?

Pearl girl: I didn't have any symptoms. During a routine visit with my primary care Doc last year it was noted that I had an elevated white cell count. Sent to a hemo/oncologist and diagnosed with Chronic Lymphocytic leukemia. Went to my hemo/oncologist on 7th August and it was noted that I was very...
by Joy
Mon Aug 30, 2010 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what are the odds of getting cancer?
Replies: 24
Views: 3916

Re: what are the odds of getting cancer?

I'm an "overachiever".......Colonrectal cancer stage III. . I was given a diagnosis of Chronic Lymphatic Leukemia (not Chemo induced) but now I am very anemic and Hemotologist/Oncologist is testing for a much more aggressive Leukemia caused by Radiation/Chemo used in treatment of Colonrect...
by Joy
Thu Jul 15, 2010 8:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: how do you explain to others?
Replies: 31
Views: 5559

Re: how do you explain to others?

We went to Mexico for 2 weeks (shared a condo) with good friends. Fortunately friend was a nurse and she is of the "been there, seen that, done that attitude" so my frequent bathroom visits didn't need to be explained. I still have "accidents" but I always carry a spare pair of u...
by Joy
Wed Jul 14, 2010 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitalmin C and iron pills
Replies: 8
Views: 1222

Re: Vitalmin C and iron pills

Hi Ivona: CLL - Chronic lymphocitic leukemia. It is usually diagnosed in MEN over the age of 65 (wrong again :D ) and can be either slow, moderate or fast growing. I'm praying in my case I have a slooooooooooooooow variety. The treatment is not initiated until there are symptoms. i.e. extremely elev...
by Joy
Wed Jul 14, 2010 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitalmin C and iron pills
Replies: 8
Views: 1222

Re: Vitalmin C and iron pills

Ivona: I think you have hit on something :D 2 years ago we had fresh squeezed orange juice every morning when we were in Florida and my HGB was on the low side but not extremely low. Last year was a terrible year for oranges (frost in Florida) and we sort of "forgot" about the our daily ri...
by Joy
Sun Jul 11, 2010 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I Pooped my Pants at a Rock Concert
Replies: 5
Views: 1268

Re: I Pooped my Pants at a Rock Concert

Hi....I still have the "occasional" accident :roll: My most memorable one was in Walmart. Now when I need to make a hasty exit I say "I'm having a Walmart" and we head for home pronto :D

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