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by Joy
Sun Oct 16, 2011 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scans for rectal cancer surveillance
Replies: 11
Views: 1179

Re: CT scans for rectal cancer surveillance

At my hospital they require that everyone has blood work done prior to CT scan procedure and if the GFR is showing kidney damage they do not use injected contrast. My kidneys function continues to be on the low end....it says in my records "caused by radiation, chemo and CT scan contrast"....
by Joy
Mon Sep 26, 2011 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Venting! Drs office and their staff!!!!!
Replies: 28
Views: 2332

Re: Venting! Drs office and their staff!!!!!

At my last oncologist appointment the RN was very friendly and attentive. I asked her for a copy of my "blood work" and she said no problem I'll get it for you. She said "good idea to keep all your records". Now this is the same person who told me that I was being silly to worry ...
by Joy
Wed Sep 14, 2011 7:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy - How would you describe it
Replies: 20
Views: 2214

Re: Neuropathy - How would you describe it

Bev: CLL is "usually" a slow growing form of B cell leukemia. I say "usually" because like all cancers it is unpredictable. There is NO cure so most patients are put on a watch and wait until such times as the disease advanced to a stage that Chemo is recommended. The only known ...
by Joy
Wed Sep 14, 2011 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy - How would you describe it
Replies: 20
Views: 2214

Re: Neuropathy - How would you describe it

Bev...Don't get me going :D Hubby had a hip replacement done at the same time as I was going through Chemo. He came with me to all my Oncologist appointment and I swear to gawd he told everyone (in detail) in the cancer clinic about his darned Hip surgery. I sometimes thought that he was a little &q...
by Joy
Wed Sep 14, 2011 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy - How would you describe it
Replies: 20
Views: 2214

Re: Neuropathy - How would you describe it

Love the cartoons. Showed them to hubby! I have been tryng for years to explain to him that "I have no idea where my feet are" :D On one fall down a flight of stairs (lucky I only bruised by posterior) Hubby said "please quit doing that you scared ME". Yup...I throw myself down s...
by Joy
Mon Sep 12, 2011 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy - How would you describe it
Replies: 20
Views: 2214

Re: Neuropathy - How would you describe it

Feels like a really tight elastic band around my foot and I don't have any flexibility. Can't walk bare foot on the beach.......wooeeee feels like I am walking on broken glass.

Five years out ...still trying to find a "comfortable" pair of shoes. :cry:
by Joy
Tue Sep 06, 2011 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Survival statistics: Facing reality or scaring oneself?
Replies: 37
Views: 4505

Re: Survival statistics: Facing reality or scaring oneself?

I looked at stats for weeks. I finally asked my oncologist "what is my prognosis?"
She said "it is between you and the cancer and I am betting on you"!!!

She also told me to QUIT LOOKING AT STATS :oops:
by Joy
Sat Aug 27, 2011 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ok..What if CEA isn't a good marker?...
Replies: 27
Views: 2563

Re: Ok..What if CEA isn't a good marker?...

loooooong story. I did not have an initial CEA done!! During colonoscopy large bleeding polyp noted. biopsy came back as BENIGN! Colonrectal surgeon decided because it was "bleeding" he would do a LAR. I was told after surgery that "lucky you, benign". Fast forward to 6 week chec...
by Joy
Sat Aug 27, 2011 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ok..What if CEA isn't a good marker?...
Replies: 27
Views: 2563

Re: Ok..What if CEA isn't a good marker?...

I had CT scans every 3 months for the first 2 years. Graduated to every 6 months for year 3 and 4 and now I have CT scans every year.

I live in Ontario. I was treated at a teaching/research hospital.
by Joy
Wed Aug 17, 2011 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disconnect Day of Hubby's first FOLFOX
Replies: 11
Views: 1249

Re: Disconnect Day of Hubby's first FOLFOX

I I tried hot chocolate and we had to have ourwhite carpet replaced.... hot chocolate and chemo residue left a stain which could not be removed. This was my worst case of sickness....I was able to keep a fairly even keel with anti-nausea medication. Remember take the Zofran BEFORE you start feeling ...
by Joy
Wed Aug 10, 2011 8:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: therapy destroy lukemia
Replies: 1
Views: 372

Re: therapy destroy lukemia

I'm a colonrectal cancer survivor who was diagnosed with Chronic Lymphocitic Leukemia. I am in the watch and wait stage right now.Waiting for the "bomb" to hit when the leukemia overtakes my bone marrow and the leukemia must be treated. The current treatment for Chronic lymphocitic leukemi...
by Joy
Tue Jul 26, 2011 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hotdogs cause CC interesting article
Replies: 6
Views: 833

Re: Hotdogs cause CC interesting article

I'm a Scot :D Before I came to Canada I had never seen a hot-dog, let alone ate one. I had a Coke but never developed a taste for it :shock:

I always suspected that it was the "haggis" that I ate that caused the CC.

Genetics, and bad luck had nothing to do with me getting CC. :wink:
by Joy
Thu Jul 07, 2011 10:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pink globs of jelly mucus type stuff with red blood streaks
Replies: 6
Views: 65498

Re: Pink globs of jelly mucus type stuff with red blood stre

I had almost forgot about this....I had lots of incidents of "jelly mucus type stuff" ....as far back as my teenage years.
I never mentioned it to anyone. :oops:
by Joy
Mon Jul 04, 2011 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TP Alert
Replies: 11
Views: 1247

Re: TP Alert

I went into a restroom in Mexico and the woman handed me two sheets of TP. I only had a 1 dollar bill. Yup..I know what you are thinking, it did cross my mind, but I gave her the dollar. I'm Scottish and hubby swears that I still haven't got over the shock of the "most expensive TP in the world...
by Joy
Sun Jul 03, 2011 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can Chemo Cause Cancer to your Blood Marrow?
Replies: 10
Views: 1773

Re: Can Chemo Cause Cancer to your Blood Marrow?

Hi Chrissy....refractory anemia doesn't improve with B12 or iron pills. That is one of the "clues" which points to MDS. I take B12 and iron pills but my hemoglobin doesn't improve. Another clue is "macrocytic" anemia (which I have) where the blood cells are large. MDS is a very s...

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