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by dianne052506
Thu Feb 06, 2014 5:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need to Gain Weight
Replies: 17
Views: 3241

Re: Need to Gain Weight

After my surgery years ago, I needed to put some weight back on, but it seemed there were so few things I really wanted to eat. I would try to add calories to even my bland comfort foods. Canned tomato soup had a dollop of sour cream on top of the bowl, plus shredded cheese. A baked potato had sour ...
by dianne052506
Thu Feb 06, 2014 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help me understand FIT/FOBT screening tests
Replies: 2
Views: 526

Re: Help me understand FIT/FOBT screening tests

FOBT simply identify that there is blood in the stool, there is no way to determine the source. The newer FIT are a diagnostic tool, it seems, and claim to have a high degree of accuracy in detecting CRC. According to a recently published article, FITs are just now replacing FOBTs in the U.S.
Dianne
by dianne052506
Mon Feb 03, 2014 2:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: (Good) News on anti PD-L1 MPDL3280A / Immunotherapy
Replies: 35
Views: 15043

Re: (Good) News on anti PD-L1 MPDL3280A / Immunotherapy

The best news about this trial is that it doesn't require a positive test for the required protein. The current single agent MPDL3280A trial requires that CRC patients be positive for the protein, either with a recent biopsy, or from stored material. I've heard numbers that only have of the CRC pati...
by dianne052506
Sun Feb 02, 2014 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: An, um, interesting day
Replies: 21
Views: 2376

Re: An, um, interesting day

Have you considered looking at one of the PD-L1 clinical trials? There are now four different drug companies out there with trials going, although I admit to being partial to The Genetech (Roche) drug, MPDL-3280A, since that is what has kept me off chemo for almost 2 years now. There is a recent thr...
by dianne052506
Sun Feb 02, 2014 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lasting effects
Replies: 6
Views: 1069

Re: Lasting effects

Scarey, You're only 6 months out of treatment and you're rowing 2 kg a day? Sounds pretty impressive to me. Patience is a hard thing to have when all you want is a return to normalcy. Do what you feel like you can, exercise when you are able, eat sensibly -- with occasional "I deserve this choc...
by dianne052506
Fri Jan 31, 2014 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: sleep with infusion pump?
Replies: 21
Views: 6464

Re: sleep with infusion pump?

I put the pump fanny pack under the two pillows I sleep on, then took some Ativa asn to knock me out enough do I wouldn't toss and turn and pull the needle out.
by dianne052506
Fri Jan 31, 2014 12:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My soulmate, my husband, my love, Michael is free
Replies: 44
Views: 8681

Re: My soulmate, my husband, my love, Michael is free

I am sorry to hear of your husband's passing. Every time you wrote, the love that you shared came through. I think it was so important that in his last moments on this earth, you were right there with him, hand in hand. Quite a love story. May that same love, and the Peace that passes understanding,...
by dianne052506
Fri Jan 31, 2014 12:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kathryn in MN
Replies: 59
Views: 8520

Re: KathyrnMN

This is one we were all expecting and yet dreading. I don't think I ever told Kathryn how much I admired her. Her treatment was filled with challenges, and she chose to be proactive and become educated, an advocate, and a trailblazer in treatment. Kathryn also seemed to fill each moment of life with...
by dianne052506
Fri Jan 31, 2014 12:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: An, um, interesting day
Replies: 21
Views: 2376

Re: An, um, interesting day

raym, that's more than interesting. That's downright scary. I have a question, though, and I apologize for not remembering where you are as far as treatment goes. The last line in your signature is about Zaltrap. Are you still on it? If so, how were they able to do any type of procedure right away? ...
by dianne052506
Thu Jan 30, 2014 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency surgery yesterday...
Replies: 47
Views: 3444

Re: Emergency surgery yesterday...

You survived. That's the important thing.
Hope things only get better from here, and that pain is gone --soon!
Best wishes,
Dianne
by dianne052506
Wed Jan 29, 2014 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING
Replies: 2268
Views: 328930

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Just wanted to say hello to those who "hang out" on this thread more than others. I don't often post here; my troubles pale in comparison to what so many are going though. Jeanette- I have a high degree of respect for my poor kidneys now. I did not know that antibiotics can also be hard on...
by dianne052506
Mon Jan 27, 2014 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Usopen ?
Replies: 7
Views: 2137

Re: Usopen ?

I apologize for the delay in posting the news about Joan (usopen). I was hoping to hear from her husband with permission, but for now will just use her first name. I was fortunate enough to meet Joan last year when she came to NC to inquire about the PD-L1 trial I am on. She was very gentle, sweet, ...
by dianne052506
Mon Jan 27, 2014 2:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The scoop on our appt for the clinical trail ....
Replies: 5
Views: 2178

Re: The scoop on our appt for the clinical trail ....

I'm not sure where you are located, but there are now 4 different companies with PD-L1 trials going, Genentech (Roche), Bristol Myers Squibb (BMS), Merck, and Medimmune (AstraZeneca). I'm heading out the door right now, but I can put together some more info this afternoon if you like. Or, you can se...
by dianne052506
Sun Jan 26, 2014 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nosebleeds?
Replies: 9
Views: 1513

Re: Nosebleeds?

You don't mention Avastin in your signature, but I get nosebleeds quite often when I am on Avastin. For me, they don't necessarily correlate with platelets.
Dianne
by dianne052506
Sun Jan 26, 2014 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: always cold
Replies: 11
Views: 1179

Re: always cold

I think that oxaliplatin has permanently screwed with my internal thermostat. I have such a terrible time getting warm now, even when it is not below freezing outside. The nurses laugh at me because I bring my own electric blanket to treatment. Infusion rooms are always cold, and a regular blanket n...

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