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by dianne052506
Tue May 27, 2014 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DCVax-Direct: First Case Study Announced
Replies: 18
Views: 5009

Re: DCVax-Direct: First Case Study Announced

Is it really possible to inject the vaccine into lung tumors? It feels so dangerous to me.
Dianne
by dianne052506
Mon May 26, 2014 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Scotty Boy has flown away ....
Replies: 74
Views: 11271

Re: My Scotty Boy has flown away ....

DeAnn,

What a beautiful story, and truly, eloquent writing. Thank you for sharing both the story of your love for each other, as well as the small miracles that helped you these last terrible days.
May light perpetual shine upon Scott.
Dianne
by dianne052506
Sun May 25, 2014 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING
Replies: 2268
Views: 352846

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Cancerislame (Jennifer),

How blessed you are that you have been special enough to Candy that she wanted to tell you "goodbye." And I'm sure you have been a blessing in her life, also.
Lifting Candy, her family, and all of us dealing with this disease in prayer,
Dianne
by dianne052506
Fri May 23, 2014 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: He May Not Make It Through The Night ...
Replies: 60
Views: 5828

Re: He May Not Make It Through The Night ...

DeAnn,
Praying for peace and comfort for Scott and your whole family.
Dianne
by dianne052506
Wed May 21, 2014 12:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING
Replies: 2268
Views: 352846

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Gwen- I'm in shock with your news. The PD-L1 trial that I was on from 2012-to early this year didn't stop my disease, but it did buy me more time off chemo. With four drug companies rushing to get drugs moving in that area, is there no trial available near you? It broke my heart in the early days of...
by dianne052506
Tue May 20, 2014 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING
Replies: 2268
Views: 352846

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Reporting back in this evening. Just got back from a trip to Greenville, SC, where I signed the consent forms for the BBI-503 trial. http://clinicaltrials.gov/ct2/show/NCT01781455?term=BBI503&rank=1 My special thanks to Maia for pointing out this trial. (People from North Carolina don't always e...
by dianne052506
Fri May 16, 2014 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA creeping up
Replies: 27
Views: 3974

Re: CEA creeping up

Still dealing with inflammation from radiation to left lung in Feb-March. CEA got up to 15, but was heading back down on the last two checks. I had no idea how much damage radiation could do to me. Didn't have much of a choice, since the largest nodule had caused some pneumonia. Two months later, st...
by dianne052506
Thu May 15, 2014 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newly diagnosed returning with questions
Replies: 10
Views: 1222

Re: newly diagnosed returning with questions

I love this group. Somebody always has what you need! Thanks.
Dianne
by dianne052506
Thu May 15, 2014 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newly diagnosed returning with questions
Replies: 10
Views: 1222

Re: newly diagnosed returning with questions

Michelle, My colon resection was higher than yours sounds like it will be, but I remember the recovery time as being less than my C-section. The best advice towards recovery is walking. If you have lightweight robe to take to the hospital, it makes the hallway trip a lot easier. With 2 C-sections al...
by dianne052506
Tue May 13, 2014 6:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It is SOOOOOO much worse than thought .....
Replies: 39
Views: 3800

Re: It is SOOOOOO much worse than thought .....

DeAnn,
Sending prayers -- for pain-free days, for a beautiful confirmation celebration on Sunday, and for time.
Dianne
by dianne052506
Thu May 08, 2014 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm In Shock and I am truly So-Scared ....
Replies: 31
Views: 3241

Re: I'm In Shock and I am truly So-Scared ....

Prayers for pain-free time for Scott to share with you,
Dianne
by dianne052506
Wed Apr 30, 2014 4:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those on pain meds...
Replies: 18
Views: 1527

Re: Those on pain meds...

Talk about being dumb. This morning I wrote that I absolutely have to take the oxycontin every 12 hours; then I went and missed a dose. I was visiting a friend (only 2nd time I've been able to do that all year) and trying to figure out why I was hurting so badly. It was 2:30 p.m. when I figured out ...
by dianne052506
Wed Apr 30, 2014 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those on pain meds...
Replies: 18
Views: 1527

Re: Those on pain meds...

Skypup, I've been taking 10 mg of oxycontin twice a day for the last month or so. The radiation oncologist wrote the Rx when I was having treatments. For the last week, I've also needed hydrocodone (10/325) at least once a day for break-through pain. I was waking up in the middle of the night in tea...
by dianne052506
Thu Apr 24, 2014 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING
Replies: 2268
Views: 352846

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Jeanette, When I had oxaliplatin every 2 weeks, the cold sensitivity in my mouth did not last a full week each time. On week 2, I was able to drink my normal cold drinks. The cold sensitivity in my hands and feet, however, took a long time to leave, and wasn't gone completely until after I was off o...
by dianne052506
Wed Apr 23, 2014 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2-stage liver resection -- boo. update at end
Replies: 39
Views: 4047

Re: 2-stage liver resection -- info please

Just checking in -- waiting for good news.
Dianne

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