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by AlexandraZ
Sat Feb 22, 2020 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

I'm so upset and confused. We went to see Jesper's oncologist yesterday, and he was ALL doom and gloom. He says he doesn't think FOLFIRI will work this time, since Jesper's CEA kept rising while he was on FOLFOX. He says we are probably looking at chemo resistance and his hopes for any treatment wor...
by AlexandraZ
Mon Feb 17, 2020 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Local chemo - TACE?
Replies: 5
Views: 667

Local chemo - TACE?

Hi everyone, I really hope some of you have some input for me and my boyfriend. We are in Germany now to see Dr. Vogl, who is an interventional radiologist. We were hoping he could ablate some of Jesper's tumors, but he says he doesn't dare to at this point. Since Jesper has 800-1000 small mets in h...
by AlexandraZ
Tue Feb 11, 2020 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

brokenwings wrote:
I'm not sure they will be able to zap them all at once... I read somewhere that they can do 6 or 7 max in one intervention...


Yeah you're probably right. Well we'll start with the biggest ones in that case and then see what the next step is.
by AlexandraZ
Tue Feb 11, 2020 6:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

brokenwings wrote:Hi.

I think the only treatment for the liver that excludes other options is Y90. However, you should wait for an expert to chime in.
How many liver mets does he have?

Hugs.


Thanks for your reply! He has between 10 and 20 liver mets. The biggest ones are about 2.5 cm.
by AlexandraZ
Sun Feb 09, 2020 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

I was wondering - do any of you know if ablation precludes any other kind of treatment? As I mentioned, we are driving down to meet with Dr. Vogl but we were just planning on getting his opinion and seeing what he recommends. Now I'm thinking that if he wants to ablate Jesper's liver mets before the...
by AlexandraZ
Sat Feb 08, 2020 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

If I had worked with one of the first three oncologists I met with, I might be halfway to dead by now. Three of them! And all from major cancer centers! Finding a doctor who can treat Jesper with curative intent might be a challenge but they ARE out there. You’ve done a great job researching and pl...
by AlexandraZ
Sat Feb 08, 2020 5:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

I just wanted to second Julie (BTW Juliej you rock) “Stay strong. Be persistent and keep asking questions” We have been continually shocked by the differences between doctors.... we also are searching for the ones that think outside the box! Wow, it gives me hope to hear you say that! I'll definite...
by AlexandraZ
Sat Feb 08, 2020 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

I think there's some truth to this. All those lung mets are probably pumping up his CEA, especially since the liver mets are shrinking. I also agree that it's a very positive sign that chemo has arrested tumor growth in the liver and even reduced it quite a bit. Those lungs mets are problematic tho...
by AlexandraZ
Fri Feb 07, 2020 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

Seems like you are being really proactive and have a plan in place, that's great! I'll be very interested to hear what you learn about local chemo for lung mets. My husband's seem to be under control, but he too had many (tiny) and I'm nervous they'll start growing again someday. Thanks Claudine! I...
by AlexandraZ
Fri Feb 07, 2020 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

Thanks for your responses everyone, I really appreciate it. We went to see his oncologist today and we agreed that Jesper will have a liver biopsy done soon, and we will explore our options with MSK, Dr. Vogl, etc. Then we'll meet again in the beginning of March to coordinate future treatment. The h...
by AlexandraZ
Fri Feb 07, 2020 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

I don’t have experience to give you any valuable insights but I think you’re doing the right thing to get second opinions (well done on raising funds for Jesper!). From what I gathered in your past posts, you’re not too pleased with the pessimistic approach of your doctors so I think it’s really ti...
by AlexandraZ
Fri Feb 07, 2020 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

Hi , My mum’s oncologists have always only worked from the scan results and never from CEA in isolation . My mum’s CEA always rose after two cycles and stayed that way for the full six cycles each year . It did not drop until well after chemo stopped . I would be keeping a close eye on his CEA to s...
by AlexandraZ
Wed Feb 05, 2020 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

Hey Alex, glad you guys are both feeling well. Sorry about the CEA - hopefully indeed just a flare. I can understand the nervousness around doing another 8 weeks on the same chemo though. I haven’t heard of changing chemo based in CEA alone and with stable scans, but I can also see the onc’s point....
by AlexandraZ
Tue Feb 04, 2020 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

Re: No more chemo?

Well, the increase in CEA definitely means something. But the stable scan is very interesting. He wouldn't be the first patient with an increase in CEA due to the significant death of tumor cells. I'm not saying that's what's happening. But it's worth considering, especially with the stable scan. H...
by AlexandraZ
Tue Feb 04, 2020 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 6254

No more chemo?

Jesper and I went to officially get the results of his last CT scan after 4 rounds of FOLFOX + Avastin. The scan was stable, but his CEA has gone from 1300 to 2900 during these 4 rounds. So our oncologist says that though the scan was stable and we technically COULD continue, he wouldn't recommend i...

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