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by TinaFish
Sat Jul 27, 2019 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 6153

Re: CLUSTERINGGGGGGGGG!!!!!!!

Wait, I'm so sorry for being so naive, but I thought that if someone doesn't have a rectum, then they have to have a colostomy. If you don't have a rectum, then you have no ability to control your poop, right? So would you have to wear adult diapers all the time? I hate the thought of a colostomy, b...
by TinaFish
Sat Jul 27, 2019 1:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 6153

Re: CLUSTERINGGGGGGGGG!!!!!!!

Clustering is where you go to the bathroom a lot. The rectum collects and stores waste for when you have the opportunity to go to the bathroom and it can release large amounts quickly. Waste normally comes into the rectum over a long period of time. If you don't have a rectum, then it wants to exit...
by TinaFish
Sat Jul 27, 2019 12:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 5372

Re: Opinions on alternative treatments?

Does anyone have any opinion on these meds/supplements? Yes Has anyone had a good or bad experience with them? Yes and No They're prescribing me metformin, doxycycline, mebendazole, and atorvastatin. Based on what evidence ? Just in my own opinion ... I would follow a legitimate scientific protocol...
by TinaFish
Sat Jul 27, 2019 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New “diet” ?
Replies: 2
Views: 541

Re: New “diet” ?

Bill Henderson says that cancer patients should stay away from ALL meat, because, according to him, the effort that the body has to put forth to digest that meat is so huge, and it takes away from the body's cancer-fighting energy. My oncologist said that it doesn't matter at all what I eat - that i...
by TinaFish
Fri Jul 26, 2019 11:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 6290

Re: Intro, and please give your feedback

Tina, You also need to test your MSI status and ideally you should get NGS gene sequencing of your tumor. Maybe they are waiting for surgery to do this, but they should already have biopsy samples. You may have some specific targets that open the door for more effective treatment. Thank you for tha...
by TinaFish
Fri Jul 26, 2019 11:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 5372

Opinions on alternative treatments?

So since being diagnosed with stage IV rectal cancer almost two months ago, I have been doing a crazy amount of research. I want to give myself the absolute best chance of beating this monster. I'm taking artemisinin, cimetidine, 20mg of melatonin at night (melatonin is an antioxidant at low doses, ...
by TinaFish
Fri Jul 26, 2019 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 6153

Re: CLUSTERINGGGGGGGGG!!!!!!!

Clustering is where you go to the bathroom a lot. The rectum collects and stores waste for when you have the opportunity to go to the bathroom and it can release large amounts quickly. Waste normally comes into the rectum over a long period of time. If you don't have a rectum, then it wants to exit...
by TinaFish
Fri Jul 26, 2019 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unrelenting fatigue...help!
Replies: 4
Views: 811

Re: Unrelenting fatigue...help!

She has to get something in her stomach! During my last chemo treatment, the thought of eating anything was disgusting. I forced 3-4 Ensure shakes down my throat each day for a few days. I was so fatigued and I knew I needed the calories. Those shakes are like 350 calories apiece, so if she can down...
by TinaFish
Fri Jul 26, 2019 1:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 6290

Re: Intro, and please give your feedback

I am certainly no expert (or even mildly informative about this) but remember that what you read in the posted article is for people with PRIMARY LIVER CANCER That is NOT the same as someone having liver mets from another cancer. You need to remember that. You can't apply the statistics for someone...
by TinaFish
Fri Jul 26, 2019 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 6290

Re: Intro, and please give your feedback

https://www.nhs.uk/conditions/liver-cancer/treatment/

Wow, it says that 1 out of 30 people will die from liver resection operations??
by TinaFish
Fri Jul 26, 2019 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 6290

Re: Intro, and please give your feedback

Thank you for the incredible advice. I'm so happy that I joined this site.
by TinaFish
Thu Jul 25, 2019 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 6153

Re: CLUSTERINGGGGGGGGG!!!!!!!

What does clustering mean?
by TinaFish
Thu Jul 25, 2019 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 6290

Intro, and please give your feedback

Hello, everyone. I've been lurking for a couple of weeks now and I would really love to get feedback from all of you knowledgeable people! I'm a 45-year-old single mom (ex husband died a few months ago) of a 7-year-old boy and a little girl who's turning 3 next month. I have one sister, who's not ca...

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