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by MetastaticEquilibria
Wed Jul 31, 2019 5:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 5154

Re: Opinions on alternative treatments?

Thanks, CRGuy! Well fortunately your descriptors are very good and I have a Japanese / Pinyin / English formulary cross-reference :D I have also given the common English name and Pinyin for reference. Juzentaihoto (十全大補湯) {shi quan da bu tang} All-Inclusive Great Tonifying Decoction One of many deri...
by MetastaticEquilibria
Wed Jul 31, 2019 4:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 644
Views: 105217

Re: If you want prayer stop in here!

Hi Pyro, I’m only on my first round of FOLFIRI, and already I’m wondering how long I can take it. I have always been of the stance, “don’t talk to me about QOL, let’s just try anything that might work.” But this stuff just saps my will like nothing else I’ve experienced. And you’ve been on it for a ...
by MetastaticEquilibria
Mon Jul 29, 2019 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 5154

Re: Opinions on alternative treatments?

And what is this nonsense about “western medicine”?? And you have been here long enough to know that I am certified in TCM (Traditional Chinese Medicine), acupuncture, herbal medicine, and laser therapy. All of which I use in an integrative medicine program to treat patients. INTEGRATIVE ... NOT ei...
by MetastaticEquilibria
Tue Jul 23, 2019 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH report: no Zinc Oxide during radiation
Replies: 4
Views: 613

Re: NIH report: no Zinc Oxide during radiation

Interesting. I’d have expected that it might be better to avoid creams containing metals, or other high-Z elements like iodine, but the following paper suggests no significant difference due to cream type: https://academic.oup.com/jrr/article/59/6/794/5105874 Seems like this is an area still under i...
by MetastaticEquilibria
Fri Jul 19, 2019 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We Still Need to Laugh Resumed : 2019
Replies: 151
Views: 27755

Re: We Still Need to Laugh Resumed : 2019

https://scontent.fsyd4-1.fna.fbcdn.net/v/t1.0-0/cp0/e15/q65/p320x320/66855853_1286043714891471_6053241110715695104_n.jpg?_nc_cat=106&efg=eyJpIjoiYiJ9&_nc_eui2=AeG5GHaHt1lPBoza-Tg0EBrT5nLeJG9-W_ygez0DbKKJRXt4wMmYSBmCQ-aJEzeNwxujvEf6pZhcTOA-TS0swEfhVc8A4MHepSvX8amAW8SO1g&_nc_oc=AQnhpSZhLs...
by MetastaticEquilibria
Thu Jul 18, 2019 7:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Problems with port
Replies: 13
Views: 1463

Re: Problems with port

One thing you may wish to consider is just allowing the infusion nurses to access the port, and everyone else has to use arm veins ???? I had a Bard power port with a Groshong catheter ( good for infusions for scans etc. ) BUTT my cancer center ONLY allowed port access by chemo infusion nurses for ...
by MetastaticEquilibria
Tue Jul 16, 2019 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 29
Views: 3607

Re: Chemo has caught up to me yall

Chemo sucks, no question. If there is any consolation, at least it is better than not being able to get chemo!
by MetastaticEquilibria
Mon Jul 15, 2019 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 5883

Re: CLUSTERINGGGGGGGGG!!!!!!!

Strongly second the suggestion for a bidet or washlet. Squirt bottle might sort of work as a poor man’s substitute, but nothing beats the real thing. I’m on the toilet so many times a day on average I shudder to think what life, and my bottom, would be like without. No need to suffer needlessly!
by MetastaticEquilibria
Sat Jul 13, 2019 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5701

Re: Please allow me to introduce myself

Hi rp1954, He also measured CEA and CA19-9, both of which were in the low normal range, I'd say the two of the most important values you could mention here or in your signature are the CEA, CA199, with inflammation marker(s) at dx and post op, along with more dated way points. No CSLEX1 test was eve...
by MetastaticEquilibria
Fri Jul 12, 2019 10:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5701

Re: Please allow me to introduce myself

Thanks Claudine, rp1954 and boxhill. Claudine, not sure that I would say my attitude is all that great. I have been through all the shock, dismay, several cycles of dashed hopes, and have ended up somewhere that I would not describe as at peace, but perhaps realistic and resigned to some extent. To ...
by MetastaticEquilibria
Thu Jul 11, 2019 5:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver met near artery and bile duct
Replies: 7
Views: 1323

Re: Liver met near artery and bile duct

Just to throw another possibility out there: proton beam therapy, which I have had done on some inoperable liver mets.
by MetastaticEquilibria
Thu Jul 11, 2019 4:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5701

Re: Please allow me to introduce myself

Thanks for the welcome, Claudine and fumaros. Yes Claudine, let’s hope for continued or new FOLFIRI results, for your husband and me. The story thus far: December 2016: following unexpected weight loss, I went to the GP (at the insistence of my wife - I didn't believe anything was really wrong) who ...
by MetastaticEquilibria
Wed Jul 10, 2019 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5701

Please allow me to introduce myself

...I’m a man of neither wealth nor taste. (Oh well.) Nevertheless, hi everybody. I have been reading this board ever since I got on this roller-coaster from which I cannot seem to get off, and it has been a great source of information and inspiration. After two and a half years, I figured I should s...

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