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by MetastaticEquilibria
Sun Aug 25, 2019 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Different treatment in Germany
Replies: 22
Views: 2095

Re: Different treatment in Germany

Dagmar wrote:Thank you very much for all the answers. I have been in contact with Heidelberg regarding proton and heavy ion beam therapy. Hope is everything.


Hi Dagmar,

Any details you care to share about your situation?
You don’t have to reply if you don’t want to, of course.
by MetastaticEquilibria
Sun Aug 25, 2019 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Different treatment in Germany
Replies: 22
Views: 2095

Re: Different treatment in Germany

Actually, the US is catching up in the number of proton and heavy ion beam therapy facilities. I think Japan currently has the largest number of proton and heavy ion facilities of any country in the world, but the US has been on a building spree the past few years and is rapidly catching up in abso...
by MetastaticEquilibria
Sat Aug 24, 2019 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Different treatment in Germany
Replies: 22
Views: 2095

Re: Different treatment in Germany

Germany has one of the TOP radiation centers in the world with new carbon technology. It's better then US radiation treatments and less damage from it. US is the slowest from all the other countries when it comes to cancer treatments and advancements. https://www.heidelberg-university-hospital.com/...
by MetastaticEquilibria
Sat Aug 24, 2019 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 5982

Re: Diagnosed while working abroad

Anyhow, I feel a little stuck. My extended family and long-term friends are in the US, but it's not like I can pop back over there and expect to get medical care. OTOH my job here is a temporary contract, and my residence here is contingent on my job. It's a tricky situation. I am really really hop...
by MetastaticEquilibria
Thu Aug 22, 2019 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried about chemo port
Replies: 24
Views: 2268

Re: Worried about chemo port

TinaFish wrote:I've honestly hated this thing from the beginning. It makes me feel like a cyborg.


Heh, that’s the one thing I like about it.

“I’ll be back.”
by MetastaticEquilibria
Thu Aug 22, 2019 6:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery did not happen
Replies: 13
Views: 1231

Re: Surgery did not happen

Oh no, that sucks. Just sucks.

Good luck with MSK.
I wonder if radiation might be an option?
by MetastaticEquilibria
Mon Aug 19, 2019 6:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 5217

Re: Those of you in Japan - PSK Mushrooms

Hey everyone, I have been reading that PSK Mushrooms have been proven effective and have been used in Japan and China along with adjuvant chemo since the 70s. https://www.mskcc.org/cancer-care/integrative-medicine/herbs/coriolus-versicolor https://www.cancer.gov/about-cancer/treatment/cam/patient/m...
by MetastaticEquilibria
Fri Aug 16, 2019 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 3599

Re: How crucial is the HAI pump?

TinaFish wrote:Four days of total lack of control, and you cannot imagine how many pairs of my underwear had to be washed.


Let me put in a good word for adult diapers. They will save a lot of that washing. You can get them pretty thin these days, no one will know you’re wearing them.
by MetastaticEquilibria
Sun Aug 11, 2019 5:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 37
Views: 4564

Re: Olymphians w/ surgery advice/experiences??

According to your second link, they are planning Phase 1 trials of the lymphatic chemo delivery system, but no time line is given. Contact info is given for the leader of this research, Prof. Kodama at Tohoku University, so you could conceivably send him an e-mail asking about how soon trials may c...
by MetastaticEquilibria
Sun Aug 11, 2019 2:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5701

Re: Please allow me to introduce myself

Hi boxhill, I just want to clarify that the drug under discussion, which goes by various brand names, stimulates WHITE blood cell production (hence neutrophils), not platelets. Yes, good clarification. Actually, it looks like a possible side effect of Filgrastim is reduced platelets: https://www.neu...
by MetastaticEquilibria
Sun Aug 11, 2019 1:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 37
Views: 4564

Re: Olymphians w/ surgery advice/experiences??

Hey Olymphians, I read this and it looks very promising. Anyone any thoughts? How about those of you from Japan? MetastaticEquilibria Micro-CT scan : https://www.tohoku.ac.jp/en/press/lymph_nodes.html Lymph Node Targeted Therapy: https://researchoutreach.org/articles/lymph-nodes-targeted-in-novel-c...
by MetastaticEquilibria
Sat Aug 03, 2019 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 6198

Re: Intro, and please give your feedback

Hi Jacques, Here is something I wrote on another thread , if it is relevant: P/S: we live in Amsterdam and will be getting treated at the NKI. We were considering getting treated at MSK or MD Anderson if things don’t go well here but we were told that the medical bill would be in the millions of dol...
by MetastaticEquilibria
Sat Aug 03, 2019 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5701

Re: Please allow me to introduce myself

Thanks for the replies and suggestions, Jolene and Rock_Robster! I have asked my oncologist about Filgrastim/Neulasta in the past (I know someone in the US who had received it with every chemo infusion), and his reply was similar to that of RR’s onc, that it is not a good long-term solution, and the...
by MetastaticEquilibria
Thu Aug 01, 2019 11:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 37
Views: 4564

Re: Olymphians w/ surgery advice/experiences??

P/S: we live in Amsterdam and will be getting treated at the NKI. We were considering getting treated at MSK or MD Anderson if things don’t go well here but we were told that the medical bill would be in the millions of dollars! Is that true? You can get rough prices from them — look for their “Int...

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