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by Claudine
Sat Dec 28, 2019 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 6474

Re: Liver and lung mets

Sorry about Jesper getting sick, that sounds miserable! As far as neutropenia resulting in chemo delays, my husband has had this happening several times (3 I think?) over his 18 cycles of Folfiri/Avastin. Each time, the counts rebounded after a week break, and there was never any problems with cance...
by Claudine
Sat Dec 28, 2019 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 21
Views: 2019

Re: In need of metastasis education

Very interesting topic jsbsf, thank you for getting it going! I’m not sure that I can answer any of your questions, but the more I read about cancer (and I’ve done a lot since the whole ordeal started a couple of years ago), the more I realize just how little we still know about it, despite all the ...
by Claudine
Tue Dec 24, 2019 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I rang the bell today.
Replies: 16
Views: 1857

Re: I rang the bell today.

Fantastic!!! And thank you for the "extra rings" for those who are not out of the woods yet. Meanwhile, enjoy a fantastic holiday season!!
by Claudine
Fri Dec 20, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5038

Re: Please allow me to introduce myself

Ugh I'm really sorry about the new met. But this treatment sounds promising, I hope it works for you! C'mon CRISPR technology, hurry up we need you!
by Claudine
Tue Dec 17, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Done SBRT to the Lung?
Replies: 7
Views: 505

Re: Anyone Done SBRT to the Lung?

We're about to have another SBRT experience, for the adrenal gland this time. DH scheduled for 3 sessions January 2, 6, and 8. Yes! Let's burn this damn thing to a crisp!
by Claudine
Tue Dec 17, 2019 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Done SBRT to the Lung?
Replies: 7
Views: 505

Re: Anyone Done SBRT to the Lung?

Hi James, My husband had it done in his 4th lumbar vertebrae, after "regular" radiation (EBRT I believe) failed to control the cancer there. It's been about a year and so far so good; the treatment was delivered in 3 doses. No side effects beside a little fatigue. So although we have no ex...
by Claudine
Mon Dec 16, 2019 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear CT results!
Replies: 19
Views: 2294

Re: Clear CT results!

Had to laugh at your updated signature. Hubby's CEA still creeping up, yet tumor still shrinking. wtf indeed! Last chemo... I'm sure you can't wait to get that over with, hopefully it'll be just a distant memory very soon!
by Claudine
Fri Dec 13, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Suspicious CT scan - need feedback
Replies: 7
Views: 730

Re: Suspicious CT scan - need feedback

I guess I'd be more concerned about multiple myeloma if you'd received a lot of radiation treatment for your cancer, but that doesn't seem to be the case based on your signature, correct? After a bout with cancer, it is so hard not to think that anything out of the ordinary is cancer! I really hope ...
by Claudine
Thu Dec 12, 2019 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 20
Views: 3263

Re: Baseline CEA levels

I remember the oncologist telling us not to panic if CEA levels starting by going UP after chemo, instead of going down; he said it's not uncommon. Didn't happen for my husband, though. And, he also had a multitude of small lung nodules, yet his CEA was more what you'd expect (58). I guess Jesper is...
by Claudine
Thu Dec 12, 2019 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and Nausea
Replies: 15
Views: 1853

Re: Folfiri and Nausea

Interesting how people have such different reactions to the same treatment. My husband was completely clobbered by Xeloda/Oxaliplatin but so far Folfiri has been a breeze (by comparison), even after 18 cycles.
by Claudine
Wed Dec 11, 2019 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 27
Views: 3350

Re: My recent significant CEA jump.

That's fantastic, a nice present just in time for the holidays!
by Claudine
Tue Dec 10, 2019 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checking In- Diagnosed in September 2014
Replies: 4
Views: 991

Re: Checking In- Diagnosed in September 2014

Life is pretty good today. I do live with some pretty bad peripheral neuropathy in both of my feet. I use gabapentin, but it is not a cure for me. I am seeing a chiropractor now and he is using a tens unit and cold laser therapy on both of my feet. It seems to be helping. We will see how that goes....
by Claudine
Mon Dec 09, 2019 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is radiation/chemo treatment actually like?
Replies: 42
Views: 6132

Re: What is radiation/chemo treatment actually like?

My husband had radiation, 5 days a week for 4 weeks (I think). He was tired and felt nauseated right after, but felt better after a couple of hours. It was pretty fast, 15 minutes each time maybe? Of him being in the radiation room (which included undressing, etc). The actual radiation was only a fe...
by Claudine
Mon Dec 09, 2019 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 20
Views: 3263

Re: Baseline CEA levels

It seems to me that what matters, if CEA levels are good indicators for you, is the trend, not single values. But even so. I was so worried this morning when we went to the onc to hear about last Friday's control scan. My husband's levels, after bottoming out at 3.2 in July, have since slowly but re...

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