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by Jolene
Thu Apr 11, 2019 2:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 6165

Re: Vaginal stenosis - an issue for women with rectal cancer

An update. Met my rectal cancer oncologist 2 days ago to start chemo treatment, I mentioned briefly to him about gynae suggestion to start me on HRT as soon as I reach the 12 months no menstruation period and he was frowning big time shaking his head and said "try not to". :? We didn't hav...
by Jolene
Thu Apr 11, 2019 1:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery update
Replies: 21
Views: 5018

Re: Post surgery update

Congrats on a successful surgery and you managed to keep half of the rectum !!! Well done you !! Have you joined any support group outside of this forum ? It's amazing how meeting some real life patients sharing their experiences with you one-on-one can also benefit you ! I haven't gone down the sur...
by Jolene
Wed Apr 10, 2019 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144508

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for update nifty ! As you know I'm very curious in following up your case as my surgeon was not confident of a local excision as suggested by Weiss! Good to know that you are feeling fine and all ! Will you be starting chemo after oncologist meet up ? Hi All, I had the TAMIS procedure last Fr...
by Jolene
Wed Apr 10, 2019 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe back pain
Replies: 20
Views: 3320

Re: Severe back pain

:? My husband has severe back pain nearly 1 month. Have you got any idea. He got MRI for back and the mrı shows nothing . So why ??? Pls help I just returned from a meeting with my oncologist and he mentioned that back pain for cancer patients is often the result of a low immune system due to vario...
by Jolene
Wed Apr 10, 2019 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144508

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just went for my first Xelox cycle today and apart from an aching left arm which can't seem to grip onto anything without causing pain, I am feeling better than I thought. As long as no strength is being exerted, on the infusion arm all is well at least for today PRS - I can finally relate to your e...
by Jolene
Wed Apr 10, 2019 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11743

Re: Anyone doing xelox and xeloda. Please help

Thank you Stoma Mia !! I will take the effort to check in with the doctor's blood test reasons and systemic inflammation. I did my homework as you advised - bringing a paper and pen to jot down all the infusions !! :D Jolene - Good luck on your first chemo session today. I hope that it goes well and...
by Jolene
Wed Apr 10, 2019 8:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11743

Re: Anyone doing xelox and xeloda. Please help

Thank you Margie ! I managed to read up your notes just before I went for the infusion !! Started my very first cycle today and it turned out better than I imagined but then they were pumping me with loads of supplemental infusions and I guessed I can only tell in a few days time ! I was given the f...
by Jolene
Tue Apr 09, 2019 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11743

Re: Anyone doing xelox and xeloda. Please help

Hi Stoma Mia - Thank you once again for the specific details !!! I have been reading up on the links you posted in the other boards but these are exactly the starter specifics that I'm looking for which you have once again helped answer ! Thank you ! I am having my infusions on Weds (tomorrow)! I wa...
by Jolene
Tue Apr 09, 2019 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11743

Re: Anyone doing xelox and xeloda. Please help

1) Did I work? Took Xelox + Avastin. Infusions on Mon every 3 weeks - Xeloda 14 days on / 7 days off. I went to work on Tuesday post infusion - might have shortened my day a little but I can't remember. Skipped work on Wed. Worked about half time from home on Th/Fr. Not sure if some of your job can...
by Jolene
Mon Apr 08, 2019 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11743

Re: Anyone doing xelox and xeloda. Please help

Trying to revive this thread as I'm going onto 6 cycles of Xelox very very soon ! My mum was a colorectal patient 4 years back and she had 12 cycles of folfox. It was traumatic for her and also for the family seeing what she went through. I an expecting myself to experience similar typical Xelox rel...
by Jolene
Sun Apr 07, 2019 11:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144508

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Back in 2015 the standard chemo protocol was twelve 2-week cycles of Folfox, or eight 3-week cycles of Xelox. I chose the Xelox, but after six cycles my blood counts fell so low the 7th cycle kept getting delayed. After three weeks delay my oncologist cancelled the last two Oxaliplatin infusions an...
by Jolene
Wed Apr 03, 2019 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144508

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

... I didn't have too much reaction from an earlier dosage of Xeloda although towards the end of the month I started to experience some itch and tingly on my finger tips which felt irritating. With Xelox, I'm guessing I will be experiencing a lot more as it's gonna be spanned across 4 months instea...
by Jolene
Wed Apr 03, 2019 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144508

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Congrats Jolene. As per the others, I would recommend the mop up chemo. It’s not much fun but it’s a small price to pay for peace of mind - not that you really have peace of mind when you’re on W&W, but it’s important to feel that you have given yourself the best chance of success. Thanks tickt...
by Jolene
Wed Apr 03, 2019 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144508

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Congrats Jolene!! You really did just win the lottery!! That said, you should absolutely do the chemo part to address any potential micrometastases. The xeloda dose is slightly higher than the one you took during radiation, so if you tolerated that okay, then that should not be such an issue. It's ...

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