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by Jolene
Sun Jun 16, 2019 9:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144463

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I'm into my 4th cycle of Oxy now.... CCR isn't without it's problems but I understand that in the grand scheme of things, it provided a ray of light of not having to undergo radical surgery and for that I'm grateful. Interim blood tests and MRI scans / rectal site check have been positive and doing ...
by Jolene
Sun Jun 16, 2019 8:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144463

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just wanted to report this week marks the four year anniversary of my Complete Clinical Response and being offered the W&W program. :!: :D I had a follow up rectal exam back in April. As usual my surgeon had one of her residents in tow. I remarked to him that Dr McLemore had literally saved my ...
by Jolene
Tue Jun 11, 2019 3:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tightness in hips-radiation?
Replies: 5
Views: 897

Re: Tightness in hips-radiation?

Hey everyone - I posted a topic about this a while back and had the same issue. So I will share my experience a little here hopefully it can help however it may. After completing 28 sessions of chemoradiation, like you guys my hip area started to ache and feels very tight (but not painful, I also ha...
by Jolene
Fri May 24, 2019 6:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144463

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Seen my doc - he had prescribed me some pro-biotics to start off !! Let's see how it goes !
by Jolene
Wed May 22, 2019 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11739

Re: Anyone doing xelox and xeloda. Please help

Hi all Am about to start my 3rd Xelox cycle and have a question regarding infusion time ! In my 1st cycle , I was given a 2 hour IV oxy infusion and didn't felt much pain or tenderness on my arm during that 2 hours. I left the hospital feeling quite okay and the tenderness/pain was felt only when I ...
by Jolene
Wed May 22, 2019 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 6164

Re: Vaginal stenosis - an issue for women with rectal cancer

I am a month out from radiation for rectal cancer and having a lot of brownish vaginal discharge. Is this normal?? I was told by my doc it was but it seems like a lot and I am worried. I found that it's much more useful to speak to a gynecologist at the same time and DO NOT depend solely on your ra...
by Jolene
Mon May 20, 2019 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144463

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi all - thanks for sharing. Feeling a little better this morning checking into all your response. My doc was much more concerned about diarrhea over the past few weeks than constipation ! I'm someone who hardly get constipation and the only constant constipation I ever experienced was one week befo...
by Jolene
Mon May 20, 2019 12:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144463

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Dear WW-ers, In my first Xelox cycle, I experienced a 2 day constipation in the first week of my first cycle. I took Duphlac syrup and was prescribed Domeperidone and it was resolved immediately. I'm in the midst of my second Xelox cycle (second week) and have been experiencing some more constipatio...
by Jolene
Sun May 05, 2019 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11739

Re: Anyone doing xelox and xeloda. Please help

Hi all ! Had my second Xelox cycle 2 days ago ! All seems well ! 1) Asked for infusion to be extended to 4 hours instead of 2 even though doctor didn't think it was necessary as I coped quite well with the aching in the first cycle. I insisted on a prevention better than cure mindset and doc was hap...
by Jolene
Thu Apr 25, 2019 2:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11739

Re: Anyone doing xelox and xeloda. Please help

Hi, Jolene - I also wanted to reiterate what someone else mentioned here... If your infusion is higher up in the arm, it's not nearly as uncomfortable as in the hand. And if the infusion is ever a little painful, the nurse can slow it down and it helps a lot. My infusions were generally 5-6 hours. ...
by Jolene
Wed Apr 24, 2019 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 11739

Re: Anyone doing xelox and xeloda. Please help

Hi, Jolene - it doesn't sound like you have much cold sensitivity.. That's great! Usually the cold sensitivity was wearing off a bit after a week or so following the oxy infusion. I definitely had stomach pains, gas, bloating, etc from the capecitabine. Intermittent diarrhea. My Dr prescribed Prilo...
by Jolene
Wed Apr 24, 2019 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144463

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, the tingling in the palms is why I suggested not to have the infusion into the back of your hand. The arm/hand ache and tingling slowly get worse with each infusion. It was the third or fourth cycle when they switched from my elbow to hand, but after that infusion my hand was so tender I...
by Jolene
Tue Apr 23, 2019 1:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Using a vaginal dilator after radiation
Replies: 10
Views: 2053

Re: Using a vaginal dilator after radiation

I finished radiation in Feb.. In March I was given two sizes of vaginal dilators to use. I have to be honest and say I used them 2x a week. But then when I started back with chemo, it was somewhat tricky for me to be on a schedule with the dilator use. Long story short. After chemo and my ileosotmy...
by Jolene
Mon Apr 22, 2019 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144463

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hey Nifty - was just thinking about you and wondered if you started Chemo ! Congrats on the good pathology news ! What's your WW surveillance arrangement with your team like ? My mum had a port installed herself a few years back due to colon cancer and she appreciated it. Like you, they often couldn...
by Jolene
Mon Apr 22, 2019 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 144463

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Mine had no issue...I believe because the standard of care protocol calls for testing every 3 - 6 months even following traditional methods. The only time my insurance pitched a fit was at after my 5 year mark. They didn't want to pay for the CT scan. Instead they told me that I could have a chest ...

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