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by Pyro70
Mon Jul 29, 2019 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy perfusion on lungs question
Replies: 2
Views: 533

Re: Chemotherapy perfusion on lungs question

Butt wrote:Any places in the US that perform this surgery? It is like HIPEC for lungs.


Haven’t heard of it. Who does it abroad?
by Pyro70
Sat Jul 27, 2019 6:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 4902

Re: Opinions on alternative treatments?

You’re asking for opinions. So I’ll say stay away from pseudoscience. Save your money, and frankly time, for real medicine. Remember alternative medicine that works is just called “medicine”. If you want to go out on a limb, consider clinical trials - at least you’ll be helping to advance the state...
by Pyro70
Sat Jul 27, 2019 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 16205

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

Hi, I'm on LTD. I have state health insurance plan. They didn't ask for my tax info, only my health insurance info. It looks like the process go must faster if patient applies directly rather than through doctor's office. Obviously, onc will have to fill out all the info but you can follow up with ...
by Pyro70
Sat Jul 27, 2019 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 4902

Re: Opinions on alternative treatments?

You’re asking for opinions. So I’ll say stay away from pseudoscience. Save your money, and frankly time, for real medicine. Remember alternative medicine that works is just called “medicine”. If you want to go out on a limb, consider clinical trials - at least you’ll be helping to advance the state ...
by Pyro70
Sat Jul 27, 2019 7:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 5987

Re: Intro, and please give your feedback

Tina, You also need to test your MSI status and ideally you should get NGS gene sequencing of your tumor. Maybe they are waiting for surgery to do this, but they should already have biopsy samples. You may have some specific targets that open the door for more effective treatment. Thank you for tha...
by Pyro70
Fri Jul 26, 2019 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 5987

Re: Intro, and please give your feedback

Tina,

You also need to test your MSI status and ideally you should get NGS gene sequencing of your tumor. Maybe they are waiting for surgery to do this, but they should already have biopsy samples. You may have some specific targets that open the door for more effective treatment.
by Pyro70
Fri Jul 26, 2019 10:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical trial NIS793 & PDR001
Replies: 2
Views: 568

Re: Clinical trial NIS793 & PDR001

Hello all. My mum is now a candidate of the clinical trial for NIS793 & PDR001, which we know they are drugs for immunotherapy. We have difficulty choosing between the trial and the current treatment plan (plz see my signature below). Mum’s CEA was 200 last month, but now dropped to 164 with th...
by Pyro70
Thu Jul 25, 2019 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 16205

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

Hi, I just received a letter from Bristol-Myers Squibb approving my application for free Opdivo (Nivoumab). Huge relieve. I applied it directly to the company and the response time is very quick. After they received completed application, the response time is 24 hours. If the application needs to b...
by Pyro70
Sun Jul 21, 2019 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 16205

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

simonseconddone wrote:Excuse me, Where is the mss facebook ? I want join it


You can join by registering at:
https://colontown.org/
by Pyro70
Sun Jul 14, 2019 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 29
Views: 3473

Re: Chemo has caught up to me yall

You could have a cumulative impact on your blood counts. After about 9 rounds of FOLFOX my hemoglobin was low and made me tired. One blood transfusion helped take care of it. Check your CBC and ask for blood if you think it could help.
by Pyro70
Mon Jul 08, 2019 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 1637

Re: Worried... no poop

The OPs symptoms are non-specific. Lots of relatively benign things could cause these symptoms. You should get checked out by a qualified doctor, but stressing about cancer is premature.
by Pyro70
Sat Jul 06, 2019 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 4535

Re: Bucket List

In the spirit of bucket list and cancer patients getting out and doing stuff, here is a picture of my wife and I doing our first joint kiteboarding downwinder last week. Before this picture was taken, I had spent a 11 days in the hospital with a neutropenic fever and all kinds of things going wrong....
by Pyro70
Sat Jul 06, 2019 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 16205

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

More discussion on this combo starting at slide 27: https://lookaside.fbsbx.com/file/0900-Argiles-MED_0.pdf?token=AWwGjiAklpfgv2Ppjd3fkOWZBMJUoARkaDriMwAnQX-p-VcEGW6ZyhEcCYz361SzE14UJKAqU2yyzdwOojzQehgr85HcD2K8E8omdjYhWWrzbdQaJAzlzTsQmwAx2qYdvCv6yJ0h5TSkN8sqhlYAREM0nTivN5zQ8cF2xc7Rerc_Hdz7F0zoE-iWAz...
by Pyro70
Sat Jul 06, 2019 6:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 16205

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

FYI, I’m reposting from the MSS Facebook group. There are also two trials one can join to test this combo. Pembrolizumab should be equivalent to nivolumab and there is a trial in Southern California and Florida. There is also a trial recruiting in Florida for reg + Opdivo. NCT03712943 (rego + nivol...
by Pyro70
Fri Jul 05, 2019 4:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 74
Views: 16205

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

Thank you for starting this thread, Pyro70. Today, our oncologist recommended the Regorafenib (Stivarga) + Nivolumab (Opdivo) regimen for my dad. Our onc cited this study and informed us that he has several other patients who will start this regimen under his care. My dad will start this regimen in...

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