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by Pyro70
Mon May 06, 2019 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy in Switzerland
Replies: 40
Views: 4205

Re: Immunotherapy in Switzerland

In a properly tissue targeted mode, metronomic 5FU-cimetidine has a reasonable claim of far better adjuvant OS performance than Folfox even today, without the costs, inconvenience, morbidity and disability. Ok you’ve said this a bunch of times. Please show us the clinical trial data that shows bett...
by Pyro70
Sat May 04, 2019 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy in Switzerland
Replies: 40
Views: 4205

Re: Immunotherapy in Switzerland

Let’s say it did work, why wouldn’t your oncologist have heard about it? It's been my personal experience that U.S. based oncologists only know about treatments that have gone through the expensive and time consuming process of FDA approval. While that certainly prevents patients from learning abou...
by Pyro70
Sat May 04, 2019 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T question about Metastasis
Replies: 1
Views: 757

Re: O/T question about Metastasis

Hello - I have been diagnosed with Leptomeningeal Carcinomatosis which is a result of metastatic non-small cell lung cancer. Does CimaVax immunotherapy have the ability to reach the disease in the brain? Thank you If you have questions about CimaVax your best bet is likely to call the clinic in Hav...
by Pyro70
Sat May 04, 2019 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy in Switzerland
Replies: 40
Views: 4205

Re: Immunotherapy in Switzerland

“Data show: effective against most, perhaps all solid tumor types“ This should set off a BS alarm. Where are the clinical trials that show efficacy/safety? I see a lot of “data” intended to confuse the uneducated under publications but no clinical trial data. Let’s say it did work, why wouldn’t your...
by Pyro70
Sun Apr 28, 2019 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OFF TOPIC: Specialists in silos, patient suffering as result
Replies: 17
Views: 1936

Re: OFF TOPIC: Specialists in silos, patient suffering as result

I understand that Medicaid can have some access issues, but typically if you go to an in-state academic/university hospital every specialist and PCP there will accept Medicaid without discrimination (in-network). Is there an institution like this where the patient could go? Since you mention there i...
by Pyro70
Sat Apr 27, 2019 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OFF TOPIC: Specialists in silos, patient suffering as result
Replies: 17
Views: 1936

Re: OFF TOPIC: Specialists in silos, patient suffering as result

I have a new client who does not have the mental/emotional/physical capacity to advocate for himself/herself. I was recently hired after failure of the "advocates" and "case managers" at this client's main/local medical system and insurance company to assist in any meaningful wa...
by Pyro70
Sat Apr 27, 2019 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC hitting young people more frequently
Replies: 5
Views: 1209

Re: CRC hitting young people more frequently

A comment from fb: It’s happening more and more and more with that age range, and medical field can’t figure it out. I had read an article in a medical journal that said anyone who is born in 1995 and after has a crazy number higher risk for CRC. A paper showing a correlation between IBD rates and ...
by Pyro70
Sat Apr 27, 2019 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Managing erractic mood swings. Is psychologist the answer ?
Replies: 34
Views: 4648

Re: Managing erractic mood swings. Is psychologist the answer ?

especially when there is such a prominent expectation to get over your treatment and go run a marathon. Yes, yes, yes! I have people sending me job offers and wondering why I’m not out and about more. The worst (I’m sorry, I’m not thinking of anyone here) are the poor folks who had stage 1 and got ...
by Pyro70
Fri Apr 26, 2019 8:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 2211

Re: Stage IV, what happens after surgery?

I believe it’s a new immunotherapy they are testing. If you google m7824, it think you can find some more information about the drug. I’ll find more out about the trial in a few weeks if I qualify. Here’s an article I found about m7824. https://www.google.com/amp/s/immuno-oncologynews.com/io-m7824/...
by Pyro70
Fri Apr 26, 2019 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on supplements with some history
Replies: 39
Views: 4361

Re: Update on supplements with some history

I see this as a great challenge. Is being kind and not trying to help someone avoid being taken advantage of by magical/weak thinking really the high road? To be honest, I don’t know. It’s people’s own body, but studies show there is a lot of damage done by alternative medicine - both in terms of he...
by Pyro70
Fri Apr 26, 2019 12:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 2211

Re: Stage IV, what happens after surgery?

The following information in this article shocks me: "In view of the available data regarding the lack of benefit from [post liver resection] adjuvant irinotecan plus fluorouracil (FU), cetuximab, and bevacizumab, we would consider that FOLFIRI (irinotecan plus leucovorin [LV] and short-term i...
by Pyro70
Thu Apr 25, 2019 11:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 2211

Re: Stage IV, what happens after surgery?

my surgeon initially thought I wouldn’t need chemo either, but that I’d need to talk to a medical onc just to make sure. The onc I was assigned to is the lead for this immunotherapy clinical trial. It seems like the trial is the route they are wanting me to go. I’m not opposed to the trial at all, ...
by Pyro70
Thu Apr 25, 2019 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mild ascites and jaundice - cancer spread to liver?
Replies: 20
Views: 3721

Re: Mild ascites and jaundice - cancer spread to liver?

Hi Tex, Yes he had an echo I think in January. What I’m not sure is why the oncologist didn’t mention the elevated bilirubin when I spoke to him. He only mentioned the mild ascites. I only found out when I got hold of the lab report. From what I’ve read, if there is elevated bilirubin plus ascites,...
by Pyro70
Wed Apr 17, 2019 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 2110

Re: Anyone Managing Stage IV with Avastin Only?

She wants a better offer, a means off the ledge taking fewer risks - a protocol, a treatment or even an analytical improvement, rather than that simple leap of faith based on some crude statistics with a lot of people not enough like her. This speaks volumes. You suggest following evidence based me...
by Pyro70
Wed Apr 17, 2019 6:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 2110

Re: Anyone Managing Stage IV with Avastin Only?

I really do not want to sound like an Avastin advocate - no axe to grind - other than my survival. Obviously there are no truths to be found in individual experiences - but this board is pretty much about individual experiences. Pyro70 referenced an interesting trial comparing Avastin only to monit...

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