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by CF_69
Sun Jul 07, 2019 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sluggish bowel
Replies: 3
Views: 782

Re: Sluggish bowel

I eat a lot of fiber too. I’m just over 3 months post surgery now, no ileostomy. I tend to constipate, however on occasion I’ve had to beeline to the nearest washroom. Everyone seems to have their own unique do’s and don’ts when it comes to LARS. I consider myself pretty lucky as I’ve had relatively...
by CF_69
Sun Jul 07, 2019 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 13
Views: 1565

Re: Here we go. Xeloda dosage question

I was on 1800 mg twice a day during radiation, on radiation days only. 3 x 500 mg and 2 x 150 mg per dose. I was told not to handle the pills but to pop them into a cup and to take them that way. Also was told to keep my body fluids to myself while on chemo. Now I’m doing the adjuvant phase, which i...
by CF_69
Fri Jun 21, 2019 11:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tightness in hips-radiation?
Replies: 5
Views: 836

Re: Tightness in hips-radiation?

MRI came back. Disc pushing on nerve, nothing suspicious.

Relieved in a sense but probably looking at another surgery before I can go back to work.
by CF_69
Fri Jun 14, 2019 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I might have advanced cancer
Replies: 26
Views: 3199

Re: Scared I might have advanced cancer

The way I got through the staging process mentally was to think what is there is already there. They need to find it to get rid of it. I know all about the anxiety. I’m sure everyone here does. You need to find out what’s wrong in order to fix it. Maybe you’ll get good news and some peace of mind. G...
by CF_69
Fri Jun 14, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I might have advanced cancer
Replies: 26
Views: 3199

Re: Scared I might have advanced cancer

Did you have a colonoscopy? If not, get one.
by CF_69
Wed Jun 12, 2019 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation - Drinking Water (>120 ounces)
Replies: 7
Views: 872

Re: Constipation - Drinking Water (>120 ounces)

It actually tastes pretty good. It seems most people are on the other end of the spectrum, but for us that tend to get constipated this shake may help. I know everyone is different, but give it a shot. I tend to eat as though nothing ever happened to me so I can get plugged up pretty easily if I’m n...
by CF_69
Wed Jun 12, 2019 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation - Drinking Water (>120 ounces)
Replies: 7
Views: 872

Re: Constipation - Drinking Water (>120 ounces)

I’ve been experimenting with smoothies for my first meal of the day. My latest concoction is: 1 banana Handful of blueberries 5-6 strawberries 5-7 prunes 1 cup spinach 1 cup coconut water 1/2 cup Greek vanilla yogurt Usually I’ll have a coffee alone before I ingest anything else. I’m constantly tryi...
by CF_69
Tue Jun 11, 2019 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU as second line?
Replies: 12
Views: 1310

Re: 5FU as second line?

I’m not sure if this is what you’re asking, but I’m currently taking Xeloda alone for adjuvant chemo.
by CF_69
Sat Jun 08, 2019 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tightness in hips-radiation?
Replies: 5
Views: 836

Re: Tightness in hips-radiation?

I’ve had terrible hip / low back pain. I’m about 2 1/2 months post LAR, no ileo. I had about 6 weeks of radiation around Christmas time. I do have a history of back problems. A L5-S1 disc herniation and my most recent MRI noted degenerative disc disease at L4-L5. I’ve tried everything. Most pills do...
by CF_69
Sat Jun 01, 2019 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 74161

Re: Surviving radiation for rectal cancer

No such luck. Stretching seems to have made it worse.

I can feel something pushing on the nerve. Have an MRI coming up as soon as I get the call. I’ve been basically immobile for over a month now.
by CF_69
Fri May 31, 2019 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1992

Re: Laid off before Dx

I don’t know anything about immunotherapy and hopefully I never need to. You’re right about the cost of drugs. My province covers chemotherapy if it’s administered at the hospital, but not if you take it home. Surely there are plenty of examples like that. I agree with you that the best treatments s...
by CF_69
Fri May 31, 2019 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1992

Re: Laid off before Dx

Ain’t that the truth. It’s not all puppy dogs and ice cream up here either. In my province, if you’re gone for more 7 months of any 12 month period, you’re cut off. Due to the nature of my job, I was, so when I was diagnosed and sent home, I was not covered. I did have insurance through my employer,...
by CF_69
Thu May 30, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo & Radiation BEFORE 1st Surgery - What to Expect?
Replies: 9
Views: 828

Re: Chemo & Radiation BEFORE 1st Surgery - What to Expect?

The other thread does have a lot of info. I think the biggest factor is where the tumour is. Mine was basically rectosigmoid, so quite high up. I didn’t have many of the symptoms that a lot of people do have. Think preventative. Wash instead of wiping. Keep things off your skin that could burn. List...
by CF_69
Thu May 30, 2019 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1992

Re: Laid off before Dx

As a Canadian I can’t complain about the level of care I’ve had here. Serious illnesses are prioritized. I’ve waited 11 months for a CT scan for something not urgent, I’ve also been squeezed in immediately numerous times over the past 6 months for many procedures. All without giant bills or premiums.
by CF_69
Wed May 29, 2019 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 360070

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I’ve had horrible back pain that started a few weeks after surgery. More like pain in my left hip and calf. Tingling all up and down the leg too. I can’t walk very far without needing to stop. I lie on ice packs whenever I am home. Whenever I drive anywhere I turn on the heated seats. I went to the ...

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