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by CF_69
Tue Sep 10, 2019 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 3072

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

Xeloda dosage is calculated according to your body composition, at least initially. I was taking 5000 mg a day for adjuvant. Less while doing the chemoradiation. 3600 mg if memory serves me here. One doctor put it like this: chemo is more like a dial than an on / off switch. As for side effects, I h...
by CF_69
Fri Sep 06, 2019 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 3072

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

You can live a pretty normal life on Xeloda. It’s hard to make a blanket statement because everyone has different reactions to these drugs, and without pulling any punches, these drugs are nasty. That said, if you’re on Xeloda, you take it twice a day after food. I didn’t have any visible side effec...
by CF_69
Thu Sep 05, 2019 8:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 3072

Re: Adjuvant chemo or not

I was 2A. My oncologist originally said no chemo, but it was up to me. He thought that FOLFOX was overkill for my situation, so he recommended 3 months of Capecitabine (Xeloda) so that’s what I did. Seems like a pretty reasonable compromise. The data showed similar results. The pills weren’t fun, bu...
by CF_69
Tue Sep 03, 2019 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 6169

Re: Diagnosed while working abroad

I had 2 suspicious nodes that turned out not to be cancerous. You won’t know for sure until they take them out. So, I walked around thinking I was 3B for all those months, but it turned out I was 2A. I have my 6 month scan coming up in a few weeks. It’s a long road for sure. I also felt physically f...
by CF_69
Fri Aug 30, 2019 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 6169

Re: Diagnosed while working abroad

I’m in Canada and my oncologist told me that at my stage (2A) that the post surgery options are quite different.

Specifically that in the USA I would get adjuvant chemo, and in Europe, I would not.
by CF_69
Wed Aug 28, 2019 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1549

Re: Deciding between treatments?

I would go for the option to not have a permanent colostomy if the success rate is the same.

Also I think the radiation dose is the same total amount with both options. Someone will correct me if I’m wrong about that.
by CF_69
Mon Aug 26, 2019 10:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 spots on liver, 7 months after chemo success
Replies: 10
Views: 1486

Re: 2 spots on liver, 7 months after chemo success

I have a 2mm “hypodensity” on my liver that the CT said was too small to classify, so I had an MRI and it’s just a cyst. Actually there are 3 of them that the MRI picked up. I also have a cyst on my right kidney. None are concerning to my doctors. Apparently it’s very common. I hope you have good ne...
by CF_69
Sat Aug 24, 2019 10:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 50
Views: 6169

Re: Diagnosed while working abroad

I was also abroad when diagnosed. I was working on a ship and we were in Spain at the time. I had my colonoscopy and biopsy done there. I was sent back home to Canada, but I had no health insurance because I was out of my province for too long, and they figured it out. Luckily my company’s insurance...
by CF_69
Wed Aug 21, 2019 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 25024

Re: Newly diagnosed rectal cancer

I can relate to the desire to get the cancer out of you ASAP. When mine was found, I wondered why they didn’t keep me in the hospital and take it out that day. I was abroad in Europe, so my employer had to get me back home, which took several days, and then the whole process of getting a doctor, a s...
by CF_69
Tue Aug 20, 2019 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 25024

Re: Newly diagnosed rectal cancer

I’m by no means qualified to comment on medical issues, but your CT scan report looks pretty encouraging to me. My hospital has two MRI machines. One you go in feet first, and the other is head first. Neither were that bad. I’m pretty tall though, so my head wasn’t all the way inside on either machi...
by CF_69
Sat Aug 17, 2019 11:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery update
Replies: 21
Views: 5499

Re: Post surgery update

Turned out to be a herniated disc. I’m doing physio for it. I just had a follow up with my surgeon. He explained in greater detail what he did during the surgery. He told me he removed my entire sigmoid and explained about the blood supply. It all seemed to make sense to me, though from what I’ve re...
by CF_69
Sun Aug 11, 2019 2:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 345
Views: 116437

Re: Calling ALL Colorectal CANUCKS !

Nice.

I got invited (aggressively) to participate in a study since I’m under 50.

I opted in and sent the permission letter in a few weeks ago, but haven’t heard back yet.
by CF_69
Fri Aug 09, 2019 11:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Introducing myself, to a club I didn’t think I’d ever be a member of.
Replies: 9
Views: 1417

Re: Introducing myself, to a club I didn’t think I’d ever be a member of.

Just for another perspective, I didn’t have really any side effects from radiation until it was almost over. A lot depends on where exactly your tumor is. Mine was rectosigmoid so pretty high up, so maybe that spared me some of the more unpleasant side effects. I also got two sessions on the same da...
by CF_69
Thu Aug 08, 2019 2:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 3658

Re: Staging and treatment options.

I forgot about the skin darkening. My skin is pretty fair. Normally I burn then go back to normal, maybe a shade or two darker after the burn heals. I generally don’t spend a lot of time in the sun. I like to be outside, just in the shade. My drivers side arm is noticeably darker than the rest of me...
by CF_69
Mon Aug 05, 2019 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 25024

Re: Newly diagnosed rectal cancer

This is a good point. I had what the doctors called suspicious nodes so pre pathology I was treated as though I was T3 N1. The pathology after surgery found that the nodes were not cancerous, so I was ultimately staged at 2A which does change the adjuvant chemo element of treatment. My oncologist or...

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