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by CF_69
Tue Aug 20, 2019 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 20528

Re: Newly diagnosed rectal cancer

I’m by no means qualified to comment on medical issues, but your CT scan report looks pretty encouraging to me. My hospital has two MRI machines. One you go in feet first, and the other is head first. Neither were that bad. I’m pretty tall though, so my head wasn’t all the way inside on either machi...
by CF_69
Sat Aug 17, 2019 11:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery update
Replies: 21
Views: 4673

Re: Post surgery update

Turned out to be a herniated disc. I’m doing physio for it. I just had a follow up with my surgeon. He explained in greater detail what he did during the surgery. He told me he removed my entire sigmoid and explained about the blood supply. It all seemed to make sense to me, though from what I’ve re...
by CF_69
Sun Aug 11, 2019 2:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 344
Views: 108672

Re: Calling ALL Colorectal CANUCKS !

Nice.

I got invited (aggressively) to participate in a study since I’m under 50.

I opted in and sent the permission letter in a few weeks ago, but haven’t heard back yet.
by CF_69
Fri Aug 09, 2019 11:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Introducing myself, to a club I didn’t think I’d ever be a member of.
Replies: 9
Views: 1220

Re: Introducing myself, to a club I didn’t think I’d ever be a member of.

Just for another perspective, I didn’t have really any side effects from radiation until it was almost over. A lot depends on where exactly your tumor is. Mine was rectosigmoid so pretty high up, so maybe that spared me some of the more unpleasant side effects. I also got two sessions on the same da...
by CF_69
Thu Aug 08, 2019 2:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 2963

Re: Staging and treatment options.

I forgot about the skin darkening. My skin is pretty fair. Normally I burn then go back to normal, maybe a shade or two darker after the burn heals. I generally don’t spend a lot of time in the sun. I like to be outside, just in the shade. My drivers side arm is noticeably darker than the rest of me...
by CF_69
Mon Aug 05, 2019 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 20528

Re: Newly diagnosed rectal cancer

This is a good point. I had what the doctors called suspicious nodes so pre pathology I was treated as though I was T3 N1. The pathology after surgery found that the nodes were not cancerous, so I was ultimately staged at 2A which does change the adjuvant chemo element of treatment. My oncologist or...
by CF_69
Mon Aug 05, 2019 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 20528

Re: Newly diagnosed rectal cancer

I went on a super strict diet and worked out a lot when I found out. There is so much waiting and anxiety going through the initial diagnosis and staging that I wanted to feel like I was at least doing something positive. I’m not sure where you are, but I’m in Canada and while I got rushed through a...
by CF_69
Mon Aug 05, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 2963

Re: Staging and treatment options.

I had some mild nausea at the beginning of each cycle and softer stools, possibly more frequent. Hard to know as I’m about 4 months post surgery so my body is still adjusting to that. I was taking 5000 mg a day. 5 pills in the morning and 5 in the evening. 2 weeks on, 1 week off. I haven’t done the ...
by CF_69
Sun Aug 04, 2019 12:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ct scans
Replies: 9
Views: 1138

Re: Ct scans

My tumor didn’t show up on my post radiation CT scan, and they knew exactly where to look.

It took an MRI to see what was left of it.
by CF_69
Sat Aug 03, 2019 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 2963

Re: Staging and treatment options.

My oncologist originally said no chemo, but we gave it a few weeks and at my choice, I did 3 months of Xeloda. He told me about a study that showed that at my stage (2A) there was no benefit to adding the oxiplatin and also that 3 months was shown to be as effective as 6. I’m going by memory here. I...
by CF_69
Sun Jul 21, 2019 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Complete pathological response
Replies: 3
Views: 846

Re: Complete pathological response

The tailbone pain could be a result of the radiation.

I had very bad back pain after surgery but it turned out to be herniated discs.
by CF_69
Tue Jul 09, 2019 3:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 1481

Re: Worried... no poop

People do it to lose weight.
by CF_69
Mon Jul 08, 2019 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 1481

Re: Worried... no poop

Intermittent fasting is pretty common these days. I’d say anyone with bad LARS should give it a try. Probably some end up doing it unintentionally just to manage their bowels. The quick version of it is to skip breakfast and don’t eat after dinner. I didn’t have a whole lot of symptoms. I felt bloat...
by CF_69
Sun Jul 07, 2019 11:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 1481

Re: Worried... no poop

Just to add I also did some intermittent fasting and even experimented with the carnivore diet for a while. I don’t think either would account for what you’re experiencing, but I’m not a doctor. In my case, I think the carnivore diet helped me to get diagnosed since it backed me up pretty badly and ...
by CF_69
Sun Jul 07, 2019 11:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 1481

Re: Worried... no poop

Hi. Get a colonoscopy done ASAP. I was told I had hemorrhoids about 3 weeks before I was sent for a colonoscopy after a second visit to the doctor that I almost didn’t bother to do. In retrospect I can identify symptoms that I missed, such as never feeling totally empty, and of course blood that was...

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