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by Punky44
Thu Oct 24, 2019 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Joe Rogers (1974-2019)
Replies: 10
Views: 953

Re: Joe Rogers (1974-2019)

So sorry for your loss. You’ll be in my prayers.
by Punky44
Thu Oct 24, 2019 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need to vent
Replies: 9
Views: 1291

Re: I need to vent

Positive thoughts for you—been through a c diff nightmare with my daughter before and it is no fun.

Probiotics and more probiotics.
by Punky44
Thu Oct 24, 2019 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4301

Re: Freaking out of my mind...CEA climb and specks on lungs

Thanks Amy. I just wish I could find some guidance on how long to wait for infection/inflammation to clear or start to clear so I can be sure the scheduled PET in a month will be meaningful. I also wish I could better understand statistically what we are looking at here—is it like a 50/50 chance it’...
by Punky44
Wed Oct 23, 2019 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4301

Re: Freaking out of my mind...CEA climb and specks on lungs

No antibiotics—I would say she started feeling better last week. We’ve all had this upper respiratory thing for a couple weeks.
by Punky44
Wed Oct 23, 2019 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4301

Re: Freaking out of my mind...CEA climb and specks on lungs

Thank you so much Stu and Claudine. I called this morning and asked all of these questions and said we didn’t feel comfortable doing nothing for three months so the oncologist agreed to order a PET in a month, but he cautioned me that the PET will also show uptake for infection as well so that’s why...
by Punky44
Wed Oct 23, 2019 1:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4301

Re: Freaking out of my mind...CEA climb and specks on lungs

More questions since I can’t sleep...

Isn’t 13mm x 9mm huge?

Why can’t they do a PET scan right away?

Why can’t they biopsy it?
by Punky44
Tue Oct 22, 2019 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4301

Re: Freaking out of my mind...CEA climb and specks on lungs

Thank you for your replies Boxhill, Stu and Radnyc. I am trying so hard not to jump to the most catastrophic scenario but it’s really hard. I am also failing miserably at trying not to project my fears and anxiety onto my mom—I am like the total opposite of a strong supporting caregiver right now. O...
by Punky44
Tue Oct 22, 2019 5:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4301

Freaking out of my mind...CEA climb and specks on lungs

My mom went in today for her 6 month check and got a CEA draw and CT scan.... Her CEA rose from 1.9 to 2.6. I saw this in the portal even before the meeting and it freaked me out. I know it’s still “within normal range” but it just seems like such a significant jump given that her other readings wer...
by Punky44
Mon Oct 21, 2019 11:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 50622

Re: My CRC with liver mets journey

Just catching up but glad your surgery went well and continued good vibes during your recovery!
by Punky44
Mon Oct 21, 2019 11:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It’s that time again - CEA check
Replies: 16
Views: 1082

Re: It’s that time again - CEA check

Congrats on a steady number!
by Punky44
Mon Oct 21, 2019 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 1/2 years post Stage IV liver resection
Replies: 10
Views: 797

Re: 7 1/2 years post Stage IV liver resection

Such awesome news!!

My mom is scheduled for her CEA and CT check tomorrow and I am praying for clear results so we can start down our journey of years and years of NEDville. Please keep us in your thoughts!
by Punky44
Thu Oct 17, 2019 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It’s that time again - CEA check
Replies: 16
Views: 1082

Re: It’s that time again - CEA check

Totally feeling your anxiety too—my mom’s CEA check and CT scan is this coming Tuesday. I can’t stop thinking about it and obsessing over it. She’s also been sick with an upper respiratory thing the past week or so and isn’t totally over it. Worried that might affect things. Hugs to you and I’ll be ...
by Punky44
Sat Oct 05, 2019 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In hospital.
Replies: 8
Views: 1221

Re: In hospital.

So sorry to hear but happy they got it in time. How are you doing otherwise on your treatment?
by Punky44
Sat Oct 05, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Monday 7th 2019 Salvage Resection Surgery
Replies: 14
Views: 1384

Re: Surgery Monday 7th 2019 Salvage Resection Surgery

I’m glad you have a plan in place and that insurance finally got their act together. Onward!
by Punky44
Sat Oct 05, 2019 1:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at Mayo Clinic MN
Replies: 3
Views: 916

Re: Treatment at Mayo Clinic MN

Yep, my mom went there for her radiation treatment (because they offered proton beam therapy) and her surgery. She did neoadjuvant chemo locally but per their recommendation and then her current 6 month follow up CT scans are all done at Mayo under the care of their oncology team. Mayo is A-mayo-zin...

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