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by Punky44
Mon Oct 15, 2018 9:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 7154

Re: I am so worried.

Thank you tater (I replied to your PM before I saw your reply here.) Yes they are saying “technically” she’s Stage 3 (or 3.5 according to some in the medical community) because of the internal iliac still being outside the mescorectal area that would typically be removed in surgery. I am reading pro...
by Punky44
Sun Oct 14, 2018 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 28
Views: 5587

Re: Stage 3 to 4

Just wanted to say I am praying for you and hope you and your doctors can develop a game plan to get you NED. I am very new to this cancer world but this reoccurrence stuff makes me MAD. It’s not fair that people have to fight this monster at all, let alone more than once.
by Punky44
Sun Oct 14, 2018 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Extremely Worried Common Iliac Lymph Node
Replies: 10
Views: 1263

Re: Extremely Worried Common Iliac Lymph Node

I’m so sorry you are going through this, too. We are in a similar situation right now where we had a clean CT but an MRI showed an enlarged internal iliac node. We’re getting a PET scan on Tuesday to see if it “lights up.” Our situation is slightly different in than our findings is at the time of di...
by Punky44
Fri Oct 12, 2018 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Hope
Replies: 30
Views: 5262

Re: Stage 4 Hope

Stu, I love that photo of your mom and I am so happy for you and her and hoping for a positive outcome for my mom just like this.
by Punky44
Fri Oct 12, 2018 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 3106

Re: Internal Iliac Node involvement??

Thank you all for your replies. I am still awaiting a call back from the surgeon for more explanation as to why they are staging her as a IV. Is this maybe just an issue of “staged as a III but treated like a IV?” Is this the classic case of “stage 3.5”? Has anyone ever had something show enlarged o...
by Punky44
Thu Oct 11, 2018 4:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 3106

Re: Internal Iliac Node involvement??

Thank you so much for your reply. I am amazed at the strength you and your spouse have to conquer two cancers. I am really trying to hang in there. Thank you for your suggestions for how I can help her. I am just so perplexed by this “internal iliac node” = stage IV. From everything I have read (the...
by Punky44
Thu Oct 11, 2018 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 3106

Internal Iliac Node involvement??

I am hoping someone can help me understand our options. My mom’s MRI revealed that she is a T3N2 but it also showed an enlarged lymph node at a distant site—the right internal iliac node. A PET scan will confirm but the doctor likely said it’s cancer and thus, stage IV. They said because of this the...
by Punky44
Thu Oct 11, 2018 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 7154

Re: I am so worried.

They just called with MRI results—T3/N2.

But then they said they found a distant enlarged lymph node in the iliac region. She’s stage IV. I can’t breathe. I can’t breathe. God please help us.
by Punky44
Wed Oct 10, 2018 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 7154

Re: I am so worried.

My grief and anxiety have just been going haywire today. I have been sick with worry about my mom since last week and also that the gastro recommended I myself have a colonoscopy now at age 34 due to previous episodes of rectal bleeding over the last decade. I obviously will get this scheduled but i...
by Punky44
Wed Oct 10, 2018 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 7154

Re: I am so worried.

Thank you all so much for your responses. We trust she is in good hands. (And I feel like I am in good hands by having found all of you.) Very interesting about the Watch & Wait approach. I told my mom we for sure should seek a second opinion at Mayo if we are lucky enough to have a complete res...
by Punky44
Tue Oct 09, 2018 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 7154

Re: I am so worried.

University of Iowa Hospital was able to get us into a consult with a board certified surgeon today—she reviewed the CT and did a scope herself and is leaning toward treating this as rectal cancer vs colon cancer (it is rectosigmoid in location, but she said she could actually feel it during the exam...
by Punky44
Mon Oct 08, 2018 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 4851

Re: New diagnosis and scared

I am all new to this as well with my mom but I just want to send prayers your way—I totally understand your feeling of being numb. I just read some article last night “The Median is Not the Message” by Gould that gave me hope about scary statistics.
by Punky44
Mon Oct 08, 2018 1:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 7154

Re: I am so worried.

Thank you again to everyone who replied with your stories and words of encouragement. It has been so informative and helpful for me during this whirlwind.

Another question as I lay in bed...

Would local lymph node involvement be able to be detected on a CT? Or just distant spread?
by Punky44
Sat Oct 06, 2018 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA correlation with metastasis and survival??
Replies: 12
Views: 1900

Re: Baseline CEA correlation with metastasis and survival??

Thank you guys again so much. I am really trying to breathe. Your support and advice is helping me a lot.
by Punky44
Fri Oct 05, 2018 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 7154

Re: I am so worried.

We got the CT scan results today and they were CLEAR! The gastro said he is “cautiously optimistic” this isn’t stage IV because of that but reiterated the staging will take place after surgery. We now have referrals to both University of Iowa and Mayo in Rochester, both with board certified surgeons...

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