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by Punky44
Mon Mar 30, 2020 11:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 784

Re: Chemo break due to covid-19 outbreak

Just want to share a similar situation in that my mom’s surveillance CT, CEA and colonoscopy are all being pushed back from April to June. It’s tough not knowing what June will bring (will it be pushed back again?) but right now the hospitals don’t think it is safe to risk it and feel like a slight ...
by Punky44
Tue Mar 24, 2020 1:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year anniversary and now delayed surveillance
Replies: 6
Views: 607

Re: One year anniversary and now delayed surveillance

Thank you Stu, I hope they will come up with a safe plan. NHMike, we are going to call and ask—that bloodwork was supposed to be up at Mayo as well same day as scan so now we are wondering if we should get it local “on time” (or if that’s even safe...) Unrelated NHMike but I was reading your signatu...
by Punky44
Sat Mar 21, 2020 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 1258

Re: Clear scans!

Just seeing this...congratulations!!!
by Punky44
Sat Mar 21, 2020 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year anniversary and now delayed surveillance
Replies: 6
Views: 607

One year anniversary and now delayed surveillance

A year ago today my mom was wheeled away from me in a hospital stairway at Mayo where she underwent a 6 hour surgery to get NED. A celebratory day indeed that we’ve made it this far, but of course now with this pandemic, she got calls that her CEA / CT scan and colonoscopy have been postponed. (CT s...
by Punky44
Tue Mar 10, 2020 2:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 1275

Re: Me again, my fave topic: CEA

Fellow CEA obsesser here. I think it’s super positive that it was that high once and then dropped. So while it climbed, it has done this before with no rising trend and you could reasonably anticipate it will drop again and that’s just your “range.” I am obsessively losing it over my mom’s, which wa...
by Punky44
Fri Mar 06, 2020 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another clear CT!
Replies: 15
Views: 635

Re: Another clear CT!

What a great birthday present!! I cannot believe he is already 1!
by Punky44
Wed Feb 19, 2020 1:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal -- What do I pack/prep/plan?
Replies: 5
Views: 493

Re: Ileostomy Reversal -- What do I pack/prep/plan?

It does seem like recovery varies depending on several factors, and recovery can continue for up to a year after the procedure before they deem whatever the state of things is as “your new normal.” Maybe to be on the safe side, wait until after your procedure to see how your first days/weeks go and ...
by Punky44
Mon Feb 10, 2020 1:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advise.. I need to be more aggressive
Replies: 14
Views: 973

Re: Advise.. I need to be more aggressive

Make that call Nicole! When we are at Mayo, we always hear how lucky we are to be in driving distance because so many people we run into have flown from all over the world.
by Punky44
Mon Feb 10, 2020 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ULAR recovery process
Replies: 5
Views: 489

Re: ULAR recovery process

Sounds like you are having a good recovery, which is great! I can only speak for my mom’s experience but things only got better weeks/months after reversal. She had and continues to have her “bad days” but they become less frequent as the months go by. I think they say it can take up to a year to fi...
by Punky44
Fri Feb 07, 2020 2:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP its grown. Please I'm sick I can't breath
Replies: 18
Views: 2259

Re: HELP its grown. Please I'm sick I can't breath

I cursed out loud when I read the title of your thread—I am sorry you didn’t get the news you wanted today. I really hope the new cocktail is the answer and I also hope your mom was able to help provide some comfort tonight. You are one strong mama! You’ve got this.
by Punky44
Fri Jan 31, 2020 1:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal recurrence
Replies: 3
Views: 1076

Re: Peritoneal recurrence

I am so sorry. Giving you a big virtual hug. This cancer journey is a nightmare rollercoaster indeed. Thinking of you.
by Punky44
Thu Jan 30, 2020 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years since diagnosed
Replies: 9
Views: 1427

Re: 10 years since diagnosed

Thank you for sharing! Love hearing these positive stories!
by Punky44
Tue Jan 28, 2020 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4858

Re: Freaking out of my mind...CEA climb and specks on lungs

Thank you so much Stu! She just got out of the meeting and they said everything looked great! The spots on her lungs got smaller even. They still want her back in 3 months for another scan but if that looks good they can go back to every 6 months. This is also when she will have her colonoscopy. I d...
by Punky44
Mon Jan 27, 2020 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 4858

Re: Freaking out of my mind...CEA climb and specks on lungs

CEA has now risen to 2.8. This CEA continues to creep upward. Also a lot of the CBC bloodwork levels continue to trend to the high point of normal (platelets, lymphocytes, etc.) I am so worried that this is all “evidence” that a recurrence is in the making. Will know more tomorrow when we get CT res...

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