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by Annie50
Mon Nov 26, 2018 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

It's the chemo after surgery Anne I was on folfox( 5FU & Oxaliplatin) for 3 months,,,, only Finnish last Tuesday,,,, I had 6 OXI and 85FU because of an allergic reaction innitally to OXI...... Looks like Ur in good hands Anne https://www.iwantgreatcare.org/doctors/mr-omer-aziz?page=2 ADELE X Hi...
by Annie50
Thu Nov 22, 2018 5:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

A Very skilled surgeon I think Anne, yes just inside,, He can feel it with his finger in an exam ( Great fun lol) It s 17 weeks from beginning so u seem to be on track,!!! We take a lot from the USA in relation to proceedure but then again Apparently new protocol is now 3 months adjuvant chemo but ...
by Annie50
Wed Nov 21, 2018 7:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Hi Adele So pleased for you about no Leak. ! Reversal here you come hey ? Wow that was low - was it just as you go into rectum then ? Because it sounds very similar in size and position to mine yet they said before that there was risk of stoma if they had to operate as so low., so I am really intere...
by Annie50
Wed Nov 21, 2018 5:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Hi Anne, I had a sigmoid after my radiation,, 8 weeks after if I remember correctly, because apparently would be too sore any earlier,,,, no scan or MRI at that stage,,, Then organised surgery,,, was able to talk to the surgon during sigmoid so was good,,, No waiting for results ( That kills me &qu...
by Annie50
Tue Nov 20, 2018 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Sorry Anne, I missed Ur reply,,, IIf u saw me also I LOOK THE PICTURE OF HEALTH LOL If I knew how to upload a picture I would lol I know it seems weird that the symptoms begun near end of radiation, but have no explanation as to why,,, after they did disappear, When are you due to have Ur sigmoid??...
by Annie50
Sun Nov 11, 2018 2:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

I had 25 sessions of chemo/rad(xeloda/radiation), cancer completelly erased. Almost 2 years ago, still negative. Felt tired after those 25 sessions, but overall not bad. Pushed to have folfox after, my surgeon was ok with that. He thought that 10 rounds was a bit over killing. Managed to get 8 in, ...
by Annie50
Fri Nov 09, 2018 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Hi Adele, That does make me feel a little better .. it's so odd because I feel so well and look so well that it's hard to know what's going on ? Thanks so much Adele for your help .. if you had that issue when you had 80% shrinkage do you think it was caused by what was left or the effect of radioth...
by Annie50
Wed Nov 07, 2018 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Adele, Thanks so much you are a superstar .. it gives me a lift to know Christies is good .. I'll do some more digging ! .. scans after radio coming up .. terrified what they show.. all my symptoms gone and feel so well ! only thing worries me is my stools are a bit narrower than before but some peo...
by Annie50
Fri Nov 02, 2018 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Thanks so much for asking for me xx Still waiting for my scans another 3 weeks ! Feeling great though can't believe I'm prob still ill .. all my symptoms gone but the little bugger may still be there ? Who knows ! Terrified of the scans ! How are you Adele ? Xxxx Annie.., xxx
by Annie50
Thu Nov 01, 2018 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

I'll do that no problem Anne,,,it was 2.5/3cm above AV so really really low, apparently TATME is mainly used for men ( narrow pelvis, or grossly obese) but yes as u said becoming very popular,, I'm fact I had chosen against this surgery with the other surgon but in the end had it with my original o...
by Annie50
Sun Oct 21, 2018 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Anne my surgon was Irish,,,, His understudy had trained in. The UK and USA,,, I'm not fimilliar with UK surgeons but I've a friend n Dublin who's friends husband is a colorectal surgeon,, I can ask for a recommendation if u like??? What part are u in??? From my surgery u can see it's possible, so d...
by Annie50
Sun Oct 21, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

It was ment to b LAR, but ended up being a TATME AND LAPAROSCOPY, so no external scars really and quick recovery too TBH,,, I was offered this surgery by a new upcoming surgon who worked n the UK and US but I had such comfidance in my surgeon , I politely declined,, lol ( He had been an understudy ...
by Annie50
Thu Oct 18, 2018 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Hi I'm sure it will ! You have done so well ! I am at The Christie in Manchester a famous cancer centre . .. sorry but was yours just at the rectum entrance from the anal canal or higher. That is so interesting I hope I can track a good surgeon down ? !! Xxxxx thanks Annie
by Annie50
Thu Oct 18, 2018 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Gosh that's interesting.. where was the surgeon based and was he a particular low rectal specialist ? Do you have an actual stoma at the moment before your takedown ? Xxxx
by Annie50
Thu Oct 18, 2018 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81400

Re: Surviving radiation for rectal cancer

Would you do watch and wait ? If complete response ? Did all your original symptoms go and bowels return to normal ? Or not ? Thanks you guys xxx annie My bowels were fine after radiation, then came the ileostomy. My doctor's advised against waiting, why take any chances. In Europe they do it diffe...

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