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by Annie50
Thu Feb 14, 2019 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81403

Re: Surviving radiation for rectal cancer

Sorry to ask a new question, but how long after radiation ended with the diaherra (for those who got it) go away? I have 3 more days (the boosts) and I am ready for this particular side effect to end. I never experienced the diarhea too much, but do notice that you are doing 28 sessions. Just wonde...
by Annie50
Mon Feb 11, 2019 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81403

Re: Surviving radiation for rectal cancer

Hi Anne,, Ca19/9 is a carbohydrate released by certain cancers , manly pancreatic, but also can pick up others. My CEA, is unreliable, so im watching my CA19/9 also Which is still within the normal range but has increased from 8_17, so that concerns me ,,, pictullarly since my CEA, is unreliable, h...
by Annie50
Mon Feb 11, 2019 1:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81403

Re: Surviving radiation for rectal cancer

Hi lakeswim I took IV Vitiman C BETWEEN CHEMORADIATION AND SURGERY, for 12 weeks once a week 50/100 g Not a whole lot of info here on it but a few people deffo on here educated on it( prguy... Zephyr etc ) I had my surgery in may and awaiting reversal in end march ( delayed because of shingles) I f...
by Annie50
Sun Feb 10, 2019 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Surgeon gave me option of seeing if extra time would allow radiation to continue working and perhaps make my fat plane more distinct. But she also warned me it isn’t likely (after chemo and chemoradiation). Surgery will be quickly scheduled if nothing changed. As my cousin, who is an experienced ra...
by Annie50
Sun Feb 10, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81403

Re: Surviving radiation for rectal cancer

Hi Anne, I do it all the time lol I've a surgon appointment march 1st so I imagine now surgery won't be till end march, but life is good ( Ignorance is bliss sometimes) a rare thing for me :) I agree strongly with lakeswim, even if u go for W&W I ( if it were me) would absolutely insist on 3 mo...
by Annie50
Sun Feb 10, 2019 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81403

Re: Surviving radiation for rectal cancer

Hi Anne, I do it all the time lol I've a surgon appointment march 1st so I imagine now surgery won't be till end march, but life is good ( Ignorance is bliss sometimes) a rare thing for me :) I agree strongly with lakeswim, even if u go for W&W I ( if it were me) would absolutely insist on 3 mo...
by Annie50
Sun Feb 10, 2019 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for info and suggestion. My Rad Onc office emailed me back and said “all side effects are gone 2 weeks after radiation ends.” Ha! So my hopes to get active again if/when my treatment is over (and I have a handle on the continence situation) is a pipe dream then. Hi lakeswim glad you are feel...
by Annie50
Sun Feb 10, 2019 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for info and suggestion. My Rad Onc office emailed me back and said “all side effects are gone 2 weeks after radiation ends.” Ha! So my hopes to get active again if/when my treatment is over (and I have a handle on the continence situation) is a pipe dream then. Hi lakeswim.. how did you get...
by Annie50
Sun Feb 10, 2019 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for info and suggestion. My Rad Onc office emailed me back and said “all side effects are gone 2 weeks after radiation ends.” Ha! So my hopes to get active again if/when my treatment is over (and I have a handle on the continence situation) is a pipe dream then. Hi lakeswim glad you are feel...
by Annie50
Sun Feb 10, 2019 10:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for info and suggestion. My Rad Onc office emailed me back and said “all side effects are gone 2 weeks after radiation ends.” Ha! So my hopes to get active again if/when my treatment is over (and I have a handle on the continence situation) is a pipe dream then. Hi lakeswim.. how did you get...
by Annie50
Mon Jan 28, 2019 3:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My experience with "Watch and Wait" is only with the Habr-Gama protocol for rectal cancer patients who show a complete clinical response to chemo radiation. I believe that Dr. Habr-Gama has published strict guidelines for "complete clinical response" and that she developed these...
by Annie50
Sun Jan 27, 2019 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Anne, chemo is rough but won't kill u Matastais will..... I think that's a no brainer for me ( 3 months of shit v reacurance) Hope this is helpful and not more confusing ADELE X It is really helpful Adele you don't think it's too late to start now do you ? A month after CCR ? But I still don't unde...
by Annie50
Sun Jan 27, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Trial, chemo before chemo/rad, chemo after chemo/rad, we shall see result's before the end of this year. Will be interesting. We have result's chemo/rad than 6 rounds of Folfox. In this trial they are giving 8 rounds of Folfox or 6 rounds of CapeOX. Wonder if anybody on this board is part of that t...
by Annie50
Sun Jan 27, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191072

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Annie50, my surgeon definitely recommended I take mop up chemo as soon as she told me I'd had a CCR. In fact I had my first infusion seven days later. She has since told me there is plenty of data out there showing that patients who have mop up chemo have lower recurrence rates than those who do...
by Annie50
Sun Jan 27, 2019 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81403

Re: Surviving radiation for rectal cancer

I've been thinking about Annie too and wondering..... I hope she updates us! Hi Lakeswim ! I lost my password ? How are you doing ? Where are you up to with treatment ? I saw my top surgeon at The Christie even though he hasn't asked to see me ! And he was still adamant that chemo not required as n...

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