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by Annie50
Sun May 12, 2019 8:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

Hi Susan, I've started taking bicarbonate soda (soup spoon on an empty stomach n the morning in small amount of wate, ) and within an hour I'm emptied for the day, I'll try too take less at the weekend and see if it's as effective,,, I'm working this week so can't chance taking a lesser amount,,, I...
by Annie50
Mon Apr 29, 2019 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

Not a problem ATM but I don't remember swelling but in saying that I was in hospital for 2 weeks in a pajamas so might not have noticed it's as much I've a nice belly ( I love wine and cheese and and and lol)! so my opening looks like an elephants ass lol very fetching lol lol I'll tattoo around it...
by Annie50
Mon Apr 29, 2019 12:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203818

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Scary ? Sorry, I thought I'd read you had blood again etc in stools ? Xxx annie xxx Sorry I misread your post. Yes after chemo radiation which was done in Feb 2017, I thought all was well. I had scopes for 6 months twice and nothing. Then the same bleeding starting happening again and thats how I k...
by Annie50
Wed Apr 24, 2019 6:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203818

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Rikamaroo Did you feel any symptoms before recurrence ? So was it about 6 months after you had stopped chemo rad or more ? Thanks for help xxx Annie ccx No symptoms. I just went for my 3 month follow-ups and scans and blood work and that is how they saw recurrence. Scary ? Sorry, I thought I'd r...
by Annie50
Sun Apr 21, 2019 7:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203818

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Rikimaroo... I am so sorry to hear you had the local recurrence. I imagine that must have been devastating for you, but you sound like you have a positive attitude. I am missing where you are in the process? Did you have your surgery? And I’m curious why you want a permanent ileostomy (have to read...
by Annie50
Sun Apr 21, 2019 6:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

Lake swim: You are commenting about newfound hip/pelvis pain following chemo radiation and wondering “What’s up?” I was a physical therapist before chronic ill-health found me and treated many individuals following radiation therapy. Radiation has known effects on the connective tissue that compris...
by Annie50
Sat Apr 20, 2019 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

HI SUSAN I'm not Gona lie ,, ITS ROUGH!!!!! I may have turned a corner today??? Lol Slept for 5hours last night and only 5 times to the toilet this morning ( from 7/11am) clean up is less today which makes all the difference ( skin is in bits) It's like radiation all over again :( :( :( Accept for ...
by Annie50
Sat Mar 30, 2019 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

Eleda wrote:Hi Anne,,, yes thus Thursday :shock:

How did you get on Adele ?? Xxx
by Annie50
Sat Mar 16, 2019 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

I don't like hearing this MC Pudd :( ,but I get it in relation to comfort and quality,,,, many people have had good results with Avistin,,,,!!!!!!!! We are all only a phonecall away from a life changing event,,,,," EVERYONE" We are slightly fortunate ( if I can say that ) if we survive a ...
by Annie50
Sun Mar 03, 2019 4:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

Eleda wrote:Hi ANNE
I'm seeing the surgon on Friday Anne, so hoping I'll have a date then to go ahead within the next month
Thanks
Adele X


His did it go Adele.. ? Hope you have your date ! Lots of love Xxx Annie xxx
by Annie50
Wed Feb 27, 2019 6:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

Same here every day got a bit better, but I know when Ur in the throws of it a day to day evaluation is what u want,,,, I'm sure ull find it on mike's thread..... He documented everything firm day one,,,,practly by the hour http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=58447#p4600...
by Annie50
Tue Feb 26, 2019 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203818

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I basically had the same as W & W (except my 'biopsy' was a full thickness excision) and I only had a CT chest/abdomen/pelvis every 6 months. I may be cynical here, but I highly doubt that you would get your insurance company to pay for an MRI every 3 months. Like the newer W&W, my protocol...
by Annie50
Sat Feb 23, 2019 5:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203818

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I wrote a lengthy post about my appt @MSK this week but the draft I had saved disappeared. Here's an abbreviated replacement. (I have my first cold post-treatment and it's quite a doozy so I don't have much energy.) Interesting things to note about MSK: - My MRI @ MSK was a RECTAL MRI vs. the 3 PEL...
by Annie50
Sat Feb 16, 2019 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 203818

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene You should check this out. He is head of MSK Colorectal surgery and running the watch and wait study. I'm surprised you have not been advised to do full chemotherapy. It's called "consolidation" chemo and increases the chance of a full response. My opinion is that I would do eve...
by Annie50
Sat Feb 16, 2019 4:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 81661

Re: Surviving radiation for rectal cancer

Me too Susan, struggling with the joints ATM, also manopause isint helping it. Im completely post manopausal now,, ( thanks to radiation) , so should probably take a calcium and magnesium supplement,,,,, I'm weigh training 3 times a week But don't do much core /abs because I'm afraid I'll gather a ...

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