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by wwroam
Tue Apr 18, 2017 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 46
Views: 20183

Re: I'm busted

Thanks all for the well wishes. Today is day 1 of my first cycle of GemCarb. I had a meeting with my new Oncologist on Monday and he certainly is thorough. Basicly he explained why he has chosen this path, taking into account the amount of chemo that I have already had, and the state of my kidneys. ...
by wwroam
Tue Apr 11, 2017 1:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: dodged one
Replies: 11
Views: 2579

Re: dodged one

T1A N2 M0
Could be worse
by wwroam
Tue Apr 11, 2017 1:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 46
Views: 20183

Re: I'm busted

A fair bit has happened since my post. I've had an EBUS biopsy , and got preliminary results within 48 hours. Didn't read so good. Today I had a Lung Clinic Panel meeting. I will have a more extensive appointment with my new Oncologist on Easter Monday. The punchline is that I will do 3 months of Ge...
by wwroam
Tue Apr 11, 2017 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: dodged one
Replies: 11
Views: 2579

Re: dodged one

Hi Ron It's 6 months wait in the public system still Ron. It doesn't seem to have improved in 9 years. I had my last C. , June 2015. My colon was a battlefield. I'll be back in 2018 ( provided I'm still drawing breath). I had my first ever contact with the public system today at the Lung Clinic ( th...
by wwroam
Sun Mar 26, 2017 10:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice from long time survivors re when to stop scans
Replies: 21
Views: 3043

Re: Need advice from long time survivors re when to stop scans

If all follow up stopped at the 5 year mark I'd really be in trouble now. My onc has always been sparing with CT scans but when my CEA bumped up in January he re-ordered another blood test for 2 months time. When the CEA had gone up again , without hesitation he ordered a PET. I got the results on F...
by wwroam
Fri Mar 24, 2017 6:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 46
Views: 20183

I'm busted

Jan 26 SIL #1 Kathleen passed away from lung cancer Feb 26 My beloved Christine passed away away from Stage 4 Colon Cancer . 41 cycles of chemo in 23 months . what a fighter Feb 26 SIL #2 Sandy sdcharged from hospital after mastectomy for breast cancer Mar 24 I was diagnosed with Lung Cancer. A new ...
by wwroam
Tue Jan 31, 2017 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Creatinine and CEA/worried
Replies: 6
Views: 1753

Re: Creatinine and CEA/worried

Perhaps she is Type 2 diabetic. 18% of former chemo patients are. I was diagnosed as a T2 in 2011 with an A1C of 9.1. It now runs at 5.6-5.8 .Even so I have high creatinine levels and an eGFR of around 45 ( but stable). I had diagnostic imaging and a kidney biopsy performed before my specialist conc...
by wwroam
Fri Nov 25, 2016 6:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: folfox not working....
Replies: 24
Views: 5918

Re: folfox not working....

My partner has now done 40 cycles of chemo. The big gains on Folfox+ Avastin were in the first 4 cycles. After 22 cycles of that chemo she was switched to Folfiri + Erbitux . Much the same happened there. At the moment it is fairly stable with only a slight increases in CEA. Strewth she's tough. I w...
by wwroam
Fri Nov 25, 2016 6:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things I wish our onco would have explained better or up front
Replies: 3
Views: 1055

Re: Things I wish our onco would have explained better or up front

"chemo" doesn"t cause diabetes.
Dexmethasone may. 18% of former patents will be diabetics.
12 cycles of chemo will reduce your kidney function by 20%.
by wwroam
Thu Sep 22, 2016 11:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diabetes Question
Replies: 13
Views: 2060

Re: Diabetes Question

Sounds like reactive hypoglycaemia to me.
The best solution is to cut back on the carbs to cut back on the wild swings
by wwroam
Sun Aug 21, 2016 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reuse Folfox?
Replies: 6
Views: 1290

Re: Reuse Folfox?

Reading your signature it appears that you have done 12 cycles of Folfox but switched to Folfiri after recurrence. Oxaliplatin has a useful life of 20-24 cycles according to our oncologist. I think many oncologists drop it after 12 cycles fearing progressive side effects which aren't necessarily the...
by wwroam
Fri Aug 19, 2016 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Delays in treatment
Replies: 13
Views: 1716

Re: Delays in treatment

Neulasta is a tricky subject in Australia. For the OP, are you being treated in a public hospital or are you a private patient ? To have neutraphil issues after 7 cycles is a little unusual. I had one deferment of a week in 12 cycles but that was after overdoing it the week before. My partner had a ...
by wwroam
Thu Aug 11, 2016 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Desensitization to Oxaliplatin
Replies: 11
Views: 1750

Re: Desensitization to Oxaliplatin

My partner had severe fever reactions ( requiring hospital admissions) after the 15th and 16th cycle of Oxi. I recall the program ran over 2 or 3 cycles . It basicly involves very slow administration of chemo , a bit at a time. There were no further side-effects so it appeared to work. Chrissie got ...
by wwroam
Sun Aug 07, 2016 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: AVASTIN on NHS - Maintenance
Replies: 12
Views: 1438

Re: AVASTIN on NHS - Maintenance

I'm rather sceptical of the benefits of Avastin, so if it were discontinued I wouldn't be too down. Also I wouldn't be too quick to discontinue Oxaliplatin. Talking to our Oncologist it is good for 20-24 cycles ( my partner did 22 before it ceased to be effective). It was only then that she switched...
by wwroam
Wed Jul 27, 2016 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU
Replies: 6
Views: 841

Re: 5FU

My partner has now completed 32 cycles of 5FU in combination with 22 cycles of Oxaliplatin , 24 cycles of Avastin, 5cycles of Irinotecan and 6 cycles o Erbitux., which is a lot of chemo. At this prolonged dosage it is the 5FU that is causing the most problems, particularly after the 25 cycle. The mo...

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