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by wwroam
Thu Aug 02, 2018 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer Again: Not Colon?
Replies: 29
Views: 11687

Re: Cancer Again: Not Colon

Bill I was Colon Stage 3a in 2007 and diagnosed with Stage 3A NSCLung Cancer last year. I use LUNGevity to read and occasionaly post. Tom Galli is a real stand-up guy on that site. At the time of diagnosis I was declared inoperable. I had a small 2.5cm tumour and 2 lymph nodes. After 4 rounds of Gem...
by wwroam
Tue Jul 10, 2018 11:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA false positives?
Replies: 12
Views: 2053

Re: CEA false positives?

I don't know about false positives but CEA is a very useful alarm for a range of cancers. Last year over an 8 month period my CEA went from 4 to 6.2. My onc at the time sent me off for a PET scan. Result after an EBUS biopsy was Stage 3A NSCLung Cancer. I am now in remission from this but reflect th...
by wwroam
Mon Jun 18, 2018 11:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 5194

Re: Is the day that cheno treatment ...

It depends on when you get the last " hit" of dexamethasone. Last year when I was doing chemo for NSCLC , I reluctantly agreed on 8 mg on infusion day . I had a bottle of dex orals ( 4 mg) which I was supposed to take on days 2 and 3. Instead of 8mg I took 4mg on day 2 and nothing on 3. It...
by wwroam
Thu Jun 14, 2018 11:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 783
Views: 314260

Re: For Stage III's: NED for how long now?

Ten days early but I'm claiming 11 years before this thread disappears to page 3.
Even better, I am now 4 months in remission for NSC Lung Cancer. From inoperable to remission.
Best wishes to all
Wayne
by wwroam
Wed Mar 28, 2018 12:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 15359

Re: Scanxiety: Anyone else having testing now?

I hate to say it but I have never suffered from scanxiety. In fact now that I have another oncologist for my NSCLC I hit him up for a script for CEA testing since that was what set off the alarms 12 months ago. I would strongly urge others to continue with CEA testing long after the 5 byear mark. It...
by wwroam
Wed Mar 21, 2018 5:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 46
Views: 21063

Re: I'm busted

Hello Ron and Barbara As of the 12th March, after my 2nd CT scan post treatment, I am now in remission from NSC Lung Cancer. I have to remind myself that I am now free from 2 separate cancers. Colon left me with type 2 diabetes and lung ( or radiation ) has sapped my endurance. These I regard as sma...
by wwroam
Tue Jan 23, 2018 3:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 46
Views: 21063

Re: I'm busted

Well I'm still plodding along. My haemoglobin is back to normal so I'm not as tired as I had been. Back in August I treated myself to a new car. A BMW M240i. An insane little beast. Unfortunately on Oct 2nd I wrote it off and nearly did the same to myself. Ten days flat on my back with an L4 fractur...
by wwroam
Mon Sep 18, 2017 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 46
Views: 21063

Re: I'm busted

I finished my 30th radiation yesterday and my 6th Carbotaxol the previous week. All said it wasn't too bad. Not as bad as the Gemcitibine in the first treatment. Now I start the follow ups. The medical oncologist starts Monday next week and the radiation oncologist in mid-December ( after 3 months)....
by wwroam
Wed Aug 02, 2017 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 7074

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

Yesterday I had an appointment with my medical Oncologist to discuss chemo concurrent with my radiation. This is for NSCLung Cancer and I took the opportunity to discuss Opdivo. It has been most successful with NSCLC ( hes has trialled it with 50 patients over the past 12 months with success). It's ...
by wwroam
Tue Aug 01, 2017 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 7074

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

Last week it was accepted onto the Pharmaceutical benefits Scheme for Lung ( my current hobby) and Breast Cancers in Australia.
It certainly appears versatile.
by wwroam
Thu Jul 27, 2017 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: looking for advice for Dad's mobility?
Replies: 10
Views: 3765

Re: looking for advice for Dad's mobility?

How are his haemoglobin levels ? I recently completed 4 rounds of GemCarb chemo for lung cancer. My haemoglobin levels were slightly above half the reference range and I was so tired . Over the last round of chemo and the week afterwards I received transfusions of 8 units of blood. Low haemoglobin l...
by wwroam
Sun Jul 16, 2017 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 46
Views: 21063

Re: I'm busted

There will be no 5th round of GemCarb. It isn't necessary. I will be going straight into Radiation + Carboplatin + Taxol. After the 4th round I had a PET scan. The primary is now smaller than 1 cm and the 2 lymph nodes are cancer free. An "excellent response". I had 4 units of blood last w...
by wwroam
Tue Jul 04, 2017 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer, it never leaves
Replies: 2
Views: 1809

Re: Cancer, it never leaves

My old oncologist was perfectly happy to see me while I could be bothered turning up for appointments.
The CEA test can detect more cancers than bowel.
In the end it may ultimately save my life.
by wwroam
Tue Jul 04, 2017 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Cancer. Your thoughts please.
Replies: 18
Views: 4534

Re: Lung Cancer. Your thoughts please.

Swirdfish

If this is of any use, I have settled on Lungevity as my NSCLC forum.
by wwroam
Sun Jul 02, 2017 11:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Cancer. Your thoughts please.
Replies: 18
Views: 4534

Re: Lung Cancer. Your thoughts please.

I'm afraid I'm not very well informed at the moment. I'm still in "trust the oncologist " mode. I had the impression that Keytruda was a Stage 4 treatment. The GemCarb chemo is a deceptive critter. Folfox is in your face from Day 1.Gemcarb lulls you into a false sense of security, up to th...

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