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by dauofcamom
Sun Jun 03, 2018 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OT- My dog Harlee has passed away
Replies: 12
Views: 1547

Re: OT- My dog Harlee has passed away

So sorry Lee. I know the pain of losing a pet is just as hard as losing a loved one. I’m glad Harlee had a good quality of life
by dauofcamom
Sun Jun 03, 2018 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!
Replies: 13
Views: 2465

Re: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!

I don’t have anything to offer other than my sincerest hope that you find the best care and treatment for your mom. My heart goes out to you.
by dauofcamom
Tue May 29, 2018 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Will they operate in more than one spot affected. Im so sad
Replies: 8
Views: 1403

Re: Will they operate in more than one spot affected. Im so sad

Trying, I am so sorry you are going through this. Please, you have nothing to apologize for. Let your family and friends help you. From a caregiver’s perspective—because this disease affects everyone around you—there is an enormous amount of helplessness that your family and friends probably feel. L...
by dauofcamom
Mon May 28, 2018 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not sure if this is a stupid question, but ...
Replies: 6
Views: 1094

Re: Not sure if this is a stupid question, but ...

Thank you both for your input. I keep reading things like “make sure you get to the best cancer hospital” and it makes me second guess whether my mom is in the best hands. I have been here with her for the past two months but leave to go home to the opposite coast later this week. I worry about not ...
by dauofcamom
Mon May 28, 2018 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not sure if this is a stupid question, but ...
Replies: 6
Views: 1094

Not sure if this is a stupid question, but ...

There are two very good hospitals where my mom lives in a large SoCal area. One is affiliated with MD Anderson. My stupid question is, is there really that big of a difference?? Both are highly rated but one is, well, MDA. My mom’s network is with the other hospital although as a Medicare patient wi...
by dauofcamom
Sun May 27, 2018 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Julie Yip Williams passed away last Monday, Mar 19th, 2018
Replies: 19
Views: 10646

Re: Julie Yip Williams passed away last Monday, Mar 19th, 2018

I am new here and didn’t know Julie but I have been reading her blog. I am sad. I am grateful. I am angry. I am hopeful. I am overwhelmed with information. I am touched by the human kindness I have seen. I am bolstered by the courage of so many others. I am forever changed, like every cancer patient...
by dauofcamom
Fri May 25, 2018 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3C
Replies: 12
Views: 2287

Re: Stage 3C

My mom is 3C and had 1 of 15 positive. But her tumor
Is T4b.
by dauofcamom
Fri May 25, 2018 7:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about chemo side effects
Replies: 5
Views: 754

Re: Question about chemo side effects

Thank you for your responses. I am a realist and this is what I suspected. First round being fairly easy. I am heading back home next week and won’t be here with my mom for the next few rounds. I want to be able to prepare my dad and brother and aunt for what they can expect.
by dauofcamom
Thu May 24, 2018 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about chemo side effects
Replies: 5
Views: 754

Question about chemo side effects

This may be wishful thinking but my mom doesn’t seem to be experiencing any severe side effects on the Xelox regime...so far. She started her chemo last Wednesday. About three days after her infusion of oxaliplatin, she had mild tingling, cold sensitivity and was tired and lost her appetite. That la...
by dauofcamom
Thu May 24, 2018 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried Daughter
Replies: 17
Views: 5302

Re: Worried Daughter

Please keep us posted and know we are thinking of you and your mom. Take it one day at a time.
by dauofcamom
Thu May 24, 2018 6:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I declined Oxaliplatin
Replies: 8
Views: 2017

Re: I declined Oxaliplatin

According to everything I've read, Oxaliplatin DOES improve results in patients with dMMR, including those with Lynch and suspected Lynch. Here's one example: https://watermark.silverchair.com/djv438.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAaQwggGgBgkqhkiG9w0BBwagggGRMIIBjQIBA...
by dauofcamom
Tue May 22, 2018 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I declined Oxaliplatin
Replies: 8
Views: 2017

Re: I declined Oxaliplatin

Thank you for this. My mom is 75 and I worry about her handling the Oxi and am also starting to question the benefit of it for a person of her age vs the potential side effects and subsequent decline in quality of life. Also just found out her tumor is MSI so genetic testing is next. It’s my underst...
by dauofcamom
Tue May 22, 2018 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried Daughter
Replies: 17
Views: 5302

Re: Worried Daughter

Emkay, I could have written your exact post two months ago. Almost exactly. My mom is 75 and was feeling tired, losing weight and having pain in her right side abdomen area. She’s always been healthy and never had a colonoscopy. So right after the procedure, as Mom was recovering, doc came out to ta...
by dauofcamom
Fri May 18, 2018 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about MSI
Replies: 3
Views: 714

Question about MSI

My mom is having genetic testing on her tumor. She is MSI. I’m confused by some things I’ve read. Would/should her treatment change from Xelox regime to something different? Forgive me for not remembering but there were 4 things that are indicators (not sure if that’s the right terminology). She has...
by dauofcamom
Thu May 17, 2018 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: And so it begins ...
Replies: 3
Views: 1080

Re: And so it begins ...

Thank you so much for all this helpful info. By the end of the evening Mom was feeling a little tingling in her fingertips. How quickly do side effects usually kick in? I thought it took a couple days. I hope Mom getting tingly so quickly is not a sign that she’s going to have neuropathy problems.

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