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by mobrouser
Thu Jun 21, 2018 8:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Canadians-Husband diagnosed-what about WORK and PAY?
Replies: 10
Views: 1816

Re: Canadians-Husband diagnosed-what about WORK and PAY?

My husband was diagnosed a few weeks ago with colorectal cancer. Treatment should start soon...we are meeting with the oncologist next week. My husbands work only gives him 5 sick days and 4 personal days. In Canada, does that mean after he uses those 9 days, he only gets 4 months of medical EI? Pl...
by mobrouser
Tue Jun 19, 2018 7:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 15
Views: 6305

Re: A cautionary tale

Gosh, from the angry verbiage and denunciations, I thought this guy was going to be a real refusenik. Nope, he did 9 rounds of folfox-Avastin, got hammered; did Erbitux, got hammered; did Vectibix and had some success; did some rounds of surgery including Hipec, and then eventually, Stivarga. I do ...
by mobrouser
Sat Jun 16, 2018 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Losing the will to live
Replies: 16
Views: 6545

Re: Losing the will to live

Dauofcamom, I am so sorry. Your questions are very difficult ones and the answers are neither easy to give or maybe even to accept. Did your mother ever discuss, even casually, end of life options with your dad; or with you, brother and Dad at some point in the past? If she did that should be your s...
by mobrouser
Fri Jun 15, 2018 11:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pizza
Replies: 21
Views: 5718

Re: Pizza

My surgeon advised that I could anything I wanted after surgery. Terminal ileum, cecum, appendix and most of the ascending colon were removed. Surgery was on Monday morning, I was home Wednesday afternoon. In reality I found that after surgery and more so now during chemo most foods are unappealing....
by mobrouser
Fri Jun 15, 2018 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 5022

Re: Taste Change Advice

I stopped eating meat after my surgery and live on a diet similar to your husband, however I am able to eat some vegetables and whole wheat bread. I lost about 25lb in the 6 weeks between surgery and chemo, but have been able to maintain my weight since then. Just started #9 of 12 Folfox infusions t...
by mobrouser
Thu Jun 07, 2018 10:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 35
Views: 9191

Re: The Miseries - But 'Hey I have it pretty good...'

This may sound odd, but I found that Lamaze type breathing exercises are helpful - as a distraction from the pain and to help with pushing.

8) mob
by mobrouser
Wed May 30, 2018 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried Daughter
Replies: 17
Views: 5294

Re: Worried Daughter

.... She is most likely looking at a hemi-colectomy (no ileostomy). He said she may be able to have the surgery done laprosocpically. That would be a huge blessing. Has anyone else on here had it done laporscopically? Are there any increased risks?... Right hemi-colectomy done laparoscopically 6 mo...
by mobrouser
Tue May 29, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rebuilding neutrophils and platelets
Replies: 7
Views: 1126

Re: Rebuilding neutrophils and platelets

Update: I was scheduled for blood tests this morning and chemo infusion this afternoon. Results came back - neutrophils are down now to 0.7 from last week's 0.9. So home I went. I got a phone call a few hours later from the cancer centre to say that another blood test has been scheduled for Thursday...
by mobrouser
Fri May 25, 2018 8:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgeon has me feeling horrible
Replies: 24
Views: 5880

Re: Surgeon has me feeling horrible

Hi. It was actually found when i went to the emergency room. I have seen an onc.who only works with a team of 3. Hes the one who sent me to the liver surgeon. Finding each appointment is making things seem worse. I am going to be asked to be sent to a larger cancer center in surrey bc. Thank you so...
by mobrouser
Wed May 23, 2018 8:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rebuilding neutrophils and platelets
Replies: 7
Views: 1126

Re: Rebuilding neutrophils and platelets

Thanks everyone. My biggest issue seems to be with neutrophils. One oncologist suggested Neupogen injections, but I didn't like the sounds of the side effects plus I already have to give myself (and hate) daily blood thinner injections. My regular oncologist wasn't for it either. I think my next app...
by mobrouser
Tue May 22, 2018 9:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rebuilding neutrophils and platelets
Replies: 7
Views: 1126

Rebuilding neutrophils and platelets

I was supposed to have my 8th of 12 folfox infusions tomorrow but results from today's blood tests show both platelets and neutrophils are too low so I am delayed for a week. Platelets are just barely below the minimum level, but the neutrophils are at 0.9 where I've been told the minimum level is 1...
by mobrouser
Sun May 20, 2018 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 10187

Re: Start tomorrow. So scared.

Lakeswim, I will start Folfox round 8 of 12 on Wednesday. The infusion nurses have all been outstanding and attempted to answer any questions I had. I'm not sure if you will read this before your first round, but I hope it will help. I was prescribed 2 anti-nausea meds to be taken at least 1 hr prio...
by mobrouser
Thu May 10, 2018 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum - CEA trending up while on adjuvant chemo
Replies: 14
Views: 2087

Re: New to forum - CEA trending up while on adjuvant chemo

I started at 2.4 pre chemo which puts me toward the high end of normal. They continued trending upwards with each infusion. It was at 6.3 or 6.8 (I can't remember now) prior to my 6th infusion. Oxaliplatin was reduced from 90% down to 75% for the 6th and 7th due to platelet and neutrophil issues. My...
by mobrouser
Sat May 05, 2018 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 14
Views: 3068

Re: CEA increasing trend

Thank you for posting the question as I am in a similar situation. My CEA level was 2.4 prior to starting folfox and had risen to 6.3 prior to my 6th treatment last week. My oncologist told me that chemo will affect CEA levels, and it is not really a good indicator. Of course I was left wondering th...
by mobrouser
Sun Apr 15, 2018 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Completed
Replies: 11
Views: 2361

Re: Surgery Completed

22 staples over 5 sites; 2 staples were inside my belly button. Staples were removed at my family doctor's office by the nurse once my doctor had assessed the incisions. I forgot to bring the removal device they gave me at the hospital, but the office had them as well. It took about about 10 minutes...

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