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by crikklekay
Thu Oct 04, 2018 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High alkaline phosphatase?
Replies: 5
Views: 1219

High alkaline phosphatase?

It is hard to believe that it has been a little over a month since my DH last Folfox infusion and he was given a thumbs up and clear CT Scan. The only thing the doctor was concerned about was his alkaline phosphatase levels which had risen during treatment, but it looked like they were coming down. ...
by crikklekay
Thu Sep 20, 2018 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why do I torture myself? Signet Ring Cell Sigmoid Colon
Replies: 5
Views: 1671

Re: Why do I torture myself? Signet Ring Cell Sigmoid Colon

My husband has the same staging except he's N2a since it was just 6 out of 22 affected. I remember sitting in the hospital room the evening after he was diagnosed and thinking I would feel better with facts, I'm generally calmer if I know what's going on and feel in control. I'll never forget openin...
by crikklekay
Thu Sep 06, 2018 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 11133

Re: The things people say to cancer patients

How do caregivers respond when asked, "How are you?" My honest thought is "How the bleep do you think I am?" How do you respond to "How many more chemo treatments?" or "How much more chemo is required?" when the answer is forever? I once responded "Til i...
by crikklekay
Tue Sep 04, 2018 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 After Treatment Plans?
Replies: 9
Views: 1900

Stage 3 After Treatment Plans?

Hello! So we are finally in NEDville, insert happy dance here! We talked a little bit with our Oncologist on where we go from here, and she mentioned that no new CT scans would be needed until August of next year. I thought that was odd because most of the threads I've read here mentioned every 6 mo...
by crikklekay
Sun Sep 02, 2018 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling confused . What symptoms to watch for
Replies: 23
Views: 7747

Re: Feeling confused . What symptoms to watch for

OK so my DH just finished his last chemo treatment, CT scan was clear, CEA levels dropped back into normal range, only thing to watch right now are some elevated liver enzymes. Here is what our Oncologist has planned: No need to do another CT Scan until next year unless something weird pops up. We’r...
by crikklekay
Thu Aug 30, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 11133

Re: The things people say to cancer patients

My favorite thing (not) is when I get back to work from a doctor’s appointment and my coworkers ask “is everything okay?” No, everything has not been okay for some time now! Yes, thank you! Or the generic "Let me know if you need anything", what I need is for my husband to not have cancer...
by crikklekay
Wed Aug 29, 2018 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got to update my signature!
Replies: 16
Views: 6429

Re: I got to update my signature!

That's wonderful, congrats! I hope it's a beautiful wedding!!
by crikklekay
Wed Aug 29, 2018 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Encouragement
Replies: 15
Views: 6183

Re: Encouragement

That is such great news, congratulations!!
by crikklekay
Tue Aug 28, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Big CT Scan Tomorrow, Wish Us Good Luck!
Replies: 11
Views: 2018

Re: Big CT Scan Tomorrow, Wish Us Good Luck!

I am thrilled to say the CT scan came back normal, no signs of metastatic disease! My DH has his last round of Folfox 6 today and if his CEA levels are normal then the PICC line goes next week! If his CEA level is still elevated she wants to do a PET scan in a month to make sure there is no funny bu...
by crikklekay
Mon Aug 27, 2018 12:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 11133

Re: The things people say to cancer patients

I think any cancer patient/caregiver can relate as like many people have said in this thread, no one thinks before they speak. The thing I hate the most is when people pipe up with "Oh my friend had cancer, they only lived for two years after" or "My mother-in-law had lung cancer, she...
by crikklekay
Mon Aug 27, 2018 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety Part 1000
Replies: 18
Views: 6338

Re: Scanxiety Part 1000

Ahh, I know what you mean! We had our pre-last-chemo-treatment scan on Wednesday day and will receive the results tomorrow. Scanxiety is awful but I've found keeping busy helps, especially if you can hang out with friends/family. The worst of the anxiety hits me when I'm alone and my brain has the o...
by crikklekay
Wed Aug 22, 2018 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Big CT Scan Tomorrow, Wish Us Good Luck!
Replies: 11
Views: 2018

Re: Big CT Scan Tomorrow, Wish Us Good Luck!

Good luck! I have my CT scan on Friday :D Claudia Haha, scan buddies! Good luck to you too! Praying for you this morning. No doubt about it, the days leading up to the next scan are the worst. Early on in this journey I used to get worked up about them - couldn't sleep, eating was difficult, felt o...
by crikklekay
Wed Aug 22, 2018 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxious about upcoming colonoscopy and endoscopy
Replies: 3
Views: 895

Re: Anxious about upcoming colonoscopy and endoscopy

Hello! Goodness, that list of symptoms is awful! I'm sorry you've been feeling so bad, and hope that your tests on Friday go well. I am familiar with this line on your CT Scan: "Mild circumferential thickening of small bowel loop in the descending colon suggestive of colitis." It's what sh...
by crikklekay
Wed Aug 22, 2018 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling confused . What symptoms to watch for
Replies: 23
Views: 7747

Re: Feeling confused . What symptoms to watch for

I understand how you feel, we're not out of the wood yet with my DH's end of chemo CT scan today and one more treatment to go, and even now I wonder if any little thing could mean something is wrong. I told my Mom that every pain, sneeze, and symptom going forward is going to freak me out and she to...
by crikklekay
Wed Aug 22, 2018 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gastritis CEA
Replies: 6
Views: 1486

Re: Gastritis CEA

Congrats on the clear PET scan! I had a similar freak out when I saw my husband's CEA number creeping up almost into the not-normal range, but the wonderful people here let me know not to be worried unless our doctors were worried because CEA levels are influenced by many factors. The Oncologist men...

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