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by Caat55
Sun Jan 14, 2018 1:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 94
Views: 18314

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

You might want a driver for the first infusion. I drove (and still am driving myself) each time. The first couple of times I had a slight fuzzy head feeling and just took back roads, which are slower and less traffic, home. I live 25 minutes away from where I get my infusion. I live in the Sierra N...
by Caat55
Sun Jan 14, 2018 1:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 94
Views: 18314

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Caat: I am somewhat familiar with LifeSeal and its clinical study and pending FDA approval. It is an ingenious product, and if you have the opportunity to participate through Stanford it might be well worth the additional time/energy of travel to the Stanford University medical campus. Lifeseal is ...
by Caat55
Sun Jan 14, 2018 1:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 94
Views: 18314

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

I am a water treatment plant operator and I took a month off after surgery. You may want to speak to your surgeon about the physical nature of your job and see what he has to say. As for ileostomy care in public restrooms, I have never had to change a pouch in public. To make clean up after emptyin...
by Caat55
Sat Jan 13, 2018 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 94
Views: 18314

Surgery scheduled, clinical study for Lifeseal, questions about recovery

Lots of questions here. My LAP is scheduled for 1/31/18. Finished neoadjunct 12/8/17. It is a terrible month, my skin on legs, genital area for fried. Finally feeling "Normal" still issues with wrinkly fingers, itchy skin, but walking a couple miles a day. Stanford is participating in stud...
by Caat55
Sat Jan 13, 2018 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 52
Views: 7060

Re: Surgery is over!

Why didn't you need a temporary ileostomy? Where was your tumor located? My tumor is about 12CM from the anal verge and my doc is saying he wants to give me a temp for healing purpose, but I am kind of wondering why you didn't get one? Being that high up a direct anastomosis for me should be all th...
by Caat55
Sun Jan 07, 2018 12:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 29262

Re: New Member here on the forum

Hi. Just completed 5 wks neoadjuvant Xeloda/rad. After initially feeling very optimistic about my drs. and the local hospital am now having some reservations, but unsure if justified. First two weeks went smoothly. Last three weeks extreme diarrhea and dehydration. Rec'd 2 liters IV H2O nearly dail...
by Caat55
Sat Jan 06, 2018 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skin Pain after radiation/Xeloda
Replies: 15
Views: 2066

Re: Skin Pain after radiation/Xeloda

This was really good news! I got excited for you! :D I am scheduled MR in two weeks to check how much the tumor have shrinked :) Claudia Thank you. It's scary because you want to believe it's gone but afraid to be disappointed. I am an over achiever and would love to kick this cancer to the curb co...
by Caat55
Sat Jan 06, 2018 2:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skin Pain after radiation/Xeloda
Replies: 15
Views: 2066

New MRI and met my surgeon, Skin Pain after radiation/Xeloda

Meet my surgeon on Thursday for first time. He said he could barely find tumor, previous 9.2 cm. MRI showed similar results, only thickening of the rectal wall. Oncologist said that is results of tissue under microscope is similar we are 99.9 %, total remission. Is that same as NED? Happy, excited g...
by Caat55
Wed Jan 03, 2018 9:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skin Pain after radiation/Xeloda
Replies: 15
Views: 2066

Re: Skin Pain after radiation/Xeloda

Thanks for the responses. I can't get over how sensitive my skin has become, shampoo bubbles caused a flare up yesterday. Don't know about "Gray", what is it? Yes, tailbone is sore. The radiologist finally gave me Miaderm, which has helped some. Initially offered Percocet, I would have pr...
by Caat55
Sat Dec 30, 2017 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skin Pain after radiation/Xeloda
Replies: 15
Views: 2066

Re: Skin Pain after radiation/Xeloda

Thanks for the responses. I can't get over how sensitive my skin has become, shampoo bubbles caused a flare up yesterday. Don't know about "Gray", what is it? Yes, tailbone is sore. The radiologist finally gave me Miaderm, which has helped some. Initially offered Percocet, I would have pr...
by Caat55
Fri Dec 29, 2017 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new. . trying to decide between xeloda? (sp) with iv chemo and modified folfax
Replies: 20
Views: 3290

Re: new. . trying to decide between xeloda? (sp) with iv chemo and modified folfax

To add signatures go to your profile.

I did oral Xeloda. It was no big deal, hands and feet were very dry, constantly using serious moisturizers. A little tired.
by Caat55
Fri Dec 29, 2017 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skin Pain after radiation/Xeloda
Replies: 15
Views: 2066

Re: Skin Pain after radiation/Xeloda

Thanks for the responses. I can't get over how sensitive my skin has become, shampoo bubbles caused a flare up yesterday. Don't know about "Gray", what is it? Yes, tailbone is sore. The radiologist finally gave me Miaderm, which has helped some. Initially offered Percocet, I would have pre...
by Caat55
Thu Dec 28, 2017 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skin Pain after radiation/Xeloda
Replies: 15
Views: 2066

Skin Pain after radiation/Xeloda

I finished by 33 treatments of radiation with Xeloda on December 8th. The raw, painful skin on my inner thighs has finally healed but the rest of my skin is still very painful, feels like it weeps. Does anyone have a similar experience, advice, how long till I feel normal again? It hurts to walk, pe...

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