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by Caat55
Sun May 12, 2019 10:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 74084

Re: Surviving radiation for rectal cancer

Happy Mother’s Day. Glad we are on this side of it, hope we stay clear.
Susan
by Caat55
Sat May 11, 2019 9:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 1971

Re: Chemo break

I went ten weeks between 2 and 3. It was great, got to enjoy time with kids. This was post chemo/radiation and surgery. I have had two clean scans.
S
by Caat55
Sat May 11, 2019 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CBD and/or Cannabis oil
Replies: 6
Views: 767

Re: CBD and/or Cannabis oil

I found CBD gummies helped with chemo side effects, cramps and nausea. I used CBD cream for hand and foot pain. I wouldn't risk my health on it as a cure but worked better than any prescription nausea meds.
S
by Caat55
Sat May 11, 2019 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 220
Views: 74602

Re: Mop up chemo experiences

I am sorry for you and your day. Hope you find some comfort in knowing You were heard.
by Caat55
Thu May 09, 2019 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 220
Views: 74602

Re: Mop up chemo experiences

Experiencing some pain as food moves past the site of the anastomosis. Trying to remember to chew, chew, chew. Is this a problem anyone else has experienced? I can literally feel the food move down through lower colon to rectum, gives me a since of when I have to plan a trip to toilet. I have contro...
by Caat55
Thu May 09, 2019 4:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clustering advice
Replies: 9
Views: 1397

Re: Clustering advice

This was explained to be a the body's response the treatment. It is a trauma and no one talks about it, ie not the doctors. The razor blade pain was explained to be a fissure. I stuck to a low residual diet, added both a bidet seat and now post reversal a squatty potty stool. The PA said elevating y...
by Caat55
Sun May 05, 2019 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 359781

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

One of my friends who had a reversal said she felt the single worst problem for her was stress. She noticed that it made everything worse and then things keep building on it. I definitely notice pain inside where staples are I assume but the bidet helps with the clean up and actually seems to stimul...
by Caat55
Fri May 03, 2019 11:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 359781

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

No, a pediatric occupational therapist I see kids full time during the school year, part time in summer. Birth to 21, so it can be physical, unpredictable work. After chemo I had a lot of pain, struggled to get on and off floor, struggled with squatting but found that turmeric tablets helped. I know...
by Caat55
Fri May 03, 2019 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 359781

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

At my appointment yesterday, telemedicine, a squatty stool and psyllium . Start small. I am just so grateful to sleep all night but that’s also when stuff sneaks out. She suggested changing what I eat and when as well. Sticking to low residual diet and adding a few things every day. I planned this f...
by Caat55
Fri May 03, 2019 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 74084

Re: Surviving radiation for rectal cancer

Reversal two weeks ago. No hernia... being abundantly cautious with lifting and carrying things. Doctor said yesterday, adamant, nothing for 6 weeks so 4 to go. I love to walk and have a great hilly hike right out my door, so many wildflowers, good for me and my dog is loving it. Adele is ahead of m...
by Caat55
Fri May 03, 2019 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 359781

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike,
What kind of problems are you still having? I am two weeks out. Not going too far or too long away from house but so far so good.
Susan
by Caat55
Fri May 03, 2019 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 74084

Re: Surviving radiation for rectal cancer

I am happy to hear you found something that works. I went out to dinner last night, chicken Marsala. I ate some vegetables. No explosions. Today has been okay too. Not enough coming out which is scary, a little afraid to go to far . My husband took a long hike and I stayed back, didn’t want to go in...
by Caat55
Wed May 01, 2019 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 74084

Re: Surviving radiation for rectal cancer

Hi Anne I'm n a heap agian today Jesus Christ it's tough/rough/exausting!!! So unpredictable :mrgreen: :mrgreen: :mrgreen: An ass like a baboon ATM,,, I've to work the next 3 days I don't know how I'll cope,!!!! How r u?? Have u decided on W&W I'm no encouragement for surgery lol, but I'm livin...
by Caat55
Mon Apr 29, 2019 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 220
Views: 74602

Re: Mop up chemo experiences

So far so good. I made some poor food choices yesterday and had the runs, today sticking to what I know. I walked 8.5 K steps and played Bocce before the too rich food so that was a good day. It is so nice to just wear what I want and not have to work around the bag.
S
by Caat55
Sat Apr 27, 2019 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Care
Replies: 5
Views: 660

Re: Ileostomy Care

You mention losing your appetite but what about fluids? With an ileostomy it is really important that you drink more. Try setting up the fluids for a day and see how much you actually get through. Walking is good for body and mind. Keep moving and take care.
S

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