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by heiders33
Mon Jun 04, 2018 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 8852

Re: Scan scheduled

I showed up for my MRI this morning, but I couldn’t have it done because my insurance hasn’t approved it yet. :roll: Now I have to wait for the imaging place to call to reschedule. I’m trying to schedule summer travel, etc., and I’m just going to go ahead and do it because I am fed up.
by heiders33
Mon Jun 04, 2018 6:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 52
Views: 12114

Re: Reversal

Good luck with the reversal! Be sure to have some diapers and calmoseptine ointment on hand just in case.
by heiders33
Sat Jun 02, 2018 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 35
Views: 6933

Re: The Miseries - But 'Hey I have it pretty good...'

I’m part of a church as well, and they were a large part of my caretaking team along with my family. I found myself just saying “thank you” a lot because I didn’t know what else to say. Also I sometimes inserted a sense of humor to help put people at ease. But you are right, your relationship with p...
by heiders33
Fri Jun 01, 2018 6:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 8852

Re: Scan scheduled

Thanks OSM. I am not prone to anxiety so I am hopeful that I can stay still. I have never had an MRI though. At the place I go to for scans they put me in a gown. But I'll definitely try to be as prepared as possible.
by heiders33
Thu May 31, 2018 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 8852

Re: Scan scheduled

I keep getting this feeling in my midsection as if my intestine is twisting or pulling. Has anyone else experienced this? It’s not pain, just a weird sensation. I’ve assumed that it’s just residual from my ileostomy reversal surgery, but of course now that I have this MRI coming up I’m paranoid that...
by heiders33
Wed May 30, 2018 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer screening at 45 - New guidelines
Replies: 15
Views: 3645

Re: Colon cancer screening at 45 - New guidelines

I had the same experience. Spent almost a year experiencing bleeding while I was treated for internal hemorrhoids and told I didn't need a colonoscopy by one GI doc. Finally his partner in the practice agreed to do it. So glad for this new recommendation.
by heiders33
Tue May 29, 2018 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 35
Views: 6933

Re: The Miseries - But 'Hey I have it pretty good...'

Yes, it’s absolutely normal. For me, sometimes it’s when I hit a milestone, such as my one year anniversary from diagnosis. I got hit with it when I was in the hospital recovering from surgery. It’s like your body is doing all it can to endure a trauma, and when you reach a certain point your body r...
by heiders33
Tue May 29, 2018 7:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 27
Views: 4025

Re: CEA dropped!

Congrats and may it keep dropping!
by heiders33
Fri May 25, 2018 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 8721

Re: Feeling really sad and in need of support

VeggieLvr, I am in NYC as well. If you ever want to get together for a cup of coffee and chat when you’re here just send me a DM. I am not stage 4 but happy to talk if you want. Just let me know.
by heiders33
Fri May 25, 2018 6:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about chemo side effects
Replies: 5
Views: 317

Re: Question about chemo side effects

Mine also got worse and more prolonged -- however, I also learned how to manage them better and could predict what each day would bring. I remember the 5th cycle I felt like I got hit by a truck and was basically in bed for two days. The 6th and last cycle I had the Oxi reduced by 50% due to neuropa...
by heiders33
Thu May 24, 2018 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 8852

Re: Scan scheduled

When I was first diagnosed, I had a CT scan to determine if there was any spread, and then I had an endoscopic ultrasound to determine staging according to the TNM rubric. I also had a PET scan. I would think your husband would need a scan, but hopefully someone more knowledgeable about sigmoidoscop...
by heiders33
Thu May 24, 2018 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 8852

Re: Scan scheduled

Thank you! I finally got a call from the medical imaging place and scheduled the MRI for June 4. My oncologist is quick so I should know results on June 5. I’m nervous as heck but I know all I can do is wait.
by heiders33
Wed May 23, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rebuilding neutrophils and platelets
Replies: 7
Views: 477

Re: Rebuilding neutrophils and platelets

I ate a lot of beans and chicken when my platelets were down during chemo. I managed to get my platelets up for my next treatment, so I assume it worked.
by heiders33
Sun May 20, 2018 1:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 24518

Re: New Member here on the forum

I remember getting that rock feeling in my chest - I described it as a piece of lead or a bowling ball in my insides. I had never felt anything like that before, wasn’t even sure if it was nausea or some other appetite suppression. But it wasn’t fun. I got my Oxi reduced in round six to 50% due to n...
by heiders33
Sun May 20, 2018 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 6827

Re: Start tomorrow. So scared.

Actually, here is a post I did when I was in the middle of treatment with some tips: viewtopic.php?f=1&t=59205&p=468403#p468403

Again, it’s Xelox not Folfox, but most of my side effects were from the Ox.

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