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by rachel2017
Sun Dec 31, 2017 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425363

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Did you look at Tumor Infiltrating Lymphocytes Therapy at NCI? yep, we did. Since the tumor shrink a little after she had the avastin. We are not qualify for the screening yet. The cancer behaves weird, I always wonder is there a way she can get the diagnostic from NCI? I wish some doctors can figu...
by rachel2017
Sun Dec 31, 2017 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425363

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've also read that chemo can spread cancer in a recent article - it doesn't spread it itself but the mechanism may make it more likely to spread. hey, Mike, could you please give me the link of the article you read that says chemo can spread the cancer. My mom is very unlucky and her cancer had be...
by rachel2017
Sun Dec 31, 2017 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425363

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've also read that chemo can spread cancer in a recent article - it doesn't spread it itself but the mechanism may make it more likely to spread. hey, Mike, could you please give me the link of the article you read that says chemo can spread the cancer. My mom is very unlucky and her cancer had be...
by rachel2017
Sat Dec 30, 2017 11:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425363

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

[quote="NHMike"] I've also read that chemo can spread cancer in a recent article - it doesn't spread it itself but the mechanism may make it more likely to spread. hey, Mike, could you please give me the link of the article you read that says chemo can spread the cancer. My mom is very unl...
by rachel2017
Fri Dec 29, 2017 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA elevation with thyroid problems
Replies: 2
Views: 859

Re: CEA elevation with thyroid problems

Happy birthday and happy new year! Wish everything go well with you!
by rachel2017
Mon Dec 25, 2017 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC - MY BFF W/Appendix Cancer
Replies: 19
Views: 9173

Re: HIPEC - MY BFF W/Appendix Cancer

Hello Everybody, There are a few people on here following the story of my BFF, 64, F dx'd w/appendix cancer low grade mucinous neoplasm, 2cm, 0 LN + mucinous carcinoma peritonei or something close to that (spread to peritoneum). There are so many different dx to appendix cancer. Anyway, I intended ...
by rachel2017
Fri Dec 22, 2017 11:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 62129

Re: any peeps with BRAF mutation on here?

You also need professional support for the alternatives, where opinions and capabilities will vary greatly. In the best circumstances, several opinions will add up to better answers.

Thx, Where can we get the professional support?
by rachel2017
Fri Dec 22, 2017 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 62129

Re: any peeps with BRAF mutation on here?

Again, we used lots of other things for stage IV.[/quote] rp, thanks for the information. My mom never got the CA199 checked. Should we get the CA199 done before use the cimetidine? If her CA199 is lower than 2, and she doesn't need to try the cimetidine at all. Is it right? What kind of other thing...
by rachel2017
Fri Dec 22, 2017 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: chemo - no side effects yet
Replies: 9
Views: 1704

Re: chemo - no side effects yet

I almost WANT the side effects to know it is working and to start to get this under control! Twisted, I know. Thanks for all the feedback! Doesn't have side effects doesn't mean the chemo doesn't work. You may have general healthy body, so you can be lucky to have very minimal side effects. Wish yo...
by rachel2017
Tue Dec 19, 2017 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adding a baby to stage iv cancer life: Looking for real-life experiences
Replies: 13
Views: 3473

Re: Adding a baby to stage iv cancer life: Looking for real-life experiences

Hello, When I was first diagnosed, my husband and I were allowed the opportunity to freeze embryos before I started treatment. We don't have children but both want a family. Four months ago a friend offered to be our surrogate. This is an incredible offer from a great friend and her husband. We did...
by rachel2017
Tue Dec 19, 2017 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 219195

Re: TIL Immunotherapy at NCI

I hope this helps. Sneaky Tumor is a blog post I wrote that might make things more clear about how HLA works.

Celine[/quote]

Thank you so much! Celine! Wish you stay NED forever!
by rachel2017
Tue Dec 19, 2017 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 62129

Re: any peeps with BRAF mutation on here?

MSM may have other useful properties. It is inexpensive and commonly available in supplement stores, Walmart, etc.[/quote] Hello, rp, for stage IV, how many mg cimetidine do you recommend to start? 800mg or 1600mg? The one we can get form Wal-Mart is either equate or Tagamet with 200mg cimetidine. D...
by rachel2017
Mon Dec 18, 2017 11:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: At Slight Crossroads and NCT01174121
Replies: 15
Views: 3110

Re: At Slight Crossroads and NCT01174121

sdino wrote:My Wife has been accepted into the trial. Surgery to resect lung mets slated for Jan 10th.


That is a wonderful Christmas gift and wish everything will work on your wife!
by rachel2017
Mon Dec 18, 2017 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 219195

Re: TIL Immunotherapy at NCI

INCLUSION CRITERIA: ... b) Confirmation of G12V mutated KRAS, NRAS or HRAS by the Laboratory of Pathology of the NCI. c) Patients must be HLA-A 1101 positive. [/i] https://clinicalstudies.info.nih.gov/cgi/detail.cgi?A_2017-C-0113.html Thanks so much! My mom is KRAS G12D. The standard chemo (FOLFOX) ...
by rachel2017
Mon Dec 18, 2017 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 219195

Re: TIL Immunotherapy at NCI

Which trial information did you get? Do you have the trial number?[/quote]

The trial # is 17-C-0113. That is for the G12V mutation.

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