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by henry123
Mon Apr 02, 2018 2:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally figured out why I got Colon Cancer
Replies: 5
Views: 1374

Re: Finally figured out why I got Colon Cancer

The China Study by Dr. T Campbell clearly established linkage between consumption of animal protein and cancer. Yes , some vegans do get cancer but I feel heavy consumption of animal proteins including meats, milk , cheeses clearly increases odds of getting red mark. I myself was heavy consumer of m...
by henry123
Wed Mar 28, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gas/Constipation
Replies: 5
Views: 923

Re: Gas/Constipation

Do get yourself tested for h pylori infection.
by henry123
Tue Mar 27, 2018 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can someone who is stage 4 really end stage still benifit from Keytruda?
Replies: 6
Views: 1040

Re: Can someone who is stage 4 really end stage still benifit from Keytruda?

Last January, I was given 3 to 6 months.
I am still here thanks to immunotherapy with Nivolumab Opdivo. You can see more details in my signature.
Please start with either of them immediately.
Also on a side note, it seems a low dose aspirin works quite well with Nivolumab.
Best of luck.
by henry123
Fri Mar 23, 2018 11:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin Study starting
Replies: 23
Views: 5420

Re: Aspirin Study starting

I have Lynch syndrome and I'm on the CAPP3 (Cancer Prevention Program) Aspirin has been proven to help protect against cancer. The problem being what is the lowest effective dose hence the trial. It's a blind dose of either (mg) 600,300 or 100 once a day for two years then 100 for the next 3 years....
by henry123
Fri Mar 16, 2018 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin Study starting
Replies: 23
Views: 5420

Re: Aspirin Study starting

My oncologist has suggested 150mg daily dose of Aspirin to start with.
He said higher levels of dosage can have some side effects.
I am Lynch + ve.
by henry123
Fri Mar 16, 2018 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 325
Views: 85822

Re: Calling ALL Colorectal CANUCKS !

I have a question. Does total colectomy qualify you for disability and handicap parking etc in Canada. I have had total colectomy. Generally, my BM are predictable and can be planned for. But every once in a while they act funny and I need to rush nearest washroom. You know the story. Does anyone ha...
by henry123
Tue Mar 13, 2018 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: no more cat scans
Replies: 4
Views: 1059

Re: no more cat scans

Congratulations,
It is inspiring. .
by henry123
Tue Mar 13, 2018 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alcohol use since diagnosis
Replies: 28
Views: 5566

Re: Alcohol use since diagnosis

Was a social drinker , drinking beer a couple of times every month.

Have stopped completely since diagnosis.
Earlier couldn't, now voluntarily don't.
by henry123
Tue Feb 27, 2018 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 67
Views: 15067

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

. . . I have seen quite a lot of people's signatures said they are Stage IV and currently NED. I would love to hear from you 1. Anybody who has had a recurrence (or more) but didn't need chemo? Just surgical removal of the mets? I had chemo for liver mets after the colon resect / before the liver j...
by henry123
Sun Feb 25, 2018 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2018
Replies: 54
Views: 38155

Re: ***News Stories Thread*** ONGOING 2018

100 doctors set up Immuno-Oncological Society to frame treament norms

https://m.timesofindia.com/city/mumbai/ ... 062315.cms
by henry123
Sun Feb 25, 2018 11:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing rapidly
Replies: 4
Views: 870

Re: CEA increasing rapidly

Emzee My cea went crazy from around 2 to almost 30, 000 within 7- 8 months. It was collaborated by pet/ ct scans showing rapid growth of mets in lung , peritoneal region and livers. Oncologist had never seen such aggressive growth of cea. No chemo was working . Then it was revealed that I am Lynch w...
by henry123
Thu Feb 22, 2018 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 5440

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

sharijohn wrote:Hello! I am interested in a nivolumab trial for my mom. What is your MSI status? Are you non



Hi
I am msi-high as well as Lynch positive.
Best of luck with finding a trial for your mom.
by henry123
Thu Feb 22, 2018 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 67
Views: 15067

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

I don't where I am but like to believe I am there in NEDville. A few of things I am doing 1. About an hour of yoga everyday. 2. Herbal teas 3. About a litre of veggie juice mainly carrots, beetroots, pomegranate, greens , ginger and fresh turmeric sprinkled with black pepper. 4. 20 30 apricot kernel...

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