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by henry123
Fri Jan 11, 2019 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 42826

Re: Switching back to Pembro

Hi, I have been NED since June 2018 . I am Lynch positive. Two thoughts regarding future course of action are going on by my oncologists . 1. Stop infusions at two year mark in June 19. Logic: further infusions don't have much effect other than increased chances of toxicity. 2. Continue maintenance ...
by henry123
Sat Dec 22, 2018 8:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Article On CRC MSS and Tumor Mutation Burden and response to Immunotherapy
Replies: 5
Views: 1663

Re: Article On CRC MSS and Tumor Mutation Burden and response to Immunotherapy

That's good news if a new biomarker is found that indicates potentially immunotherapy could work for some CRC patients.
by henry123
Wed Dec 12, 2018 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 42826

Re: Switching back to Pembro

Plastikos, Regarding removal of stent. I assume it involves surgery to remove it. If so , as per my understanding surgery of any type should be avoided if you are undergoing immunotherapy. This is because surgery can cause autoimmune reaction by the immune system. I was forbidden explicitly even the...
by henry123
Tue Dec 11, 2018 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: nivolumab + ipilimumab + radiation in mss and MSI high
Replies: 6
Views: 2059

Re: nivolumab + ipilimumab + radiation in mss and MSI high

Thanks Herry123. I am apparently starting on the 31st, barring any unexpected occurrences. Would love to hear from folks who have been involved with this particula combination of immunotherapy drugs, with or without radiation—or who know more about this trial or other similar trials. Seems promisin...
by henry123
Sun Dec 09, 2018 10:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 16
Views: 3047

Re: Foods to avoid during chemotherapy

Hi All, What were the foods you have been told to avoid during chemotherapy, specifically during FOLFOX? We all know about the negative effects of chemo on the body, how it can not only kill the cancer cells but also the healthy cells in the body thus impairing one's immune system and disabling it ...
by henry123
Thu Dec 06, 2018 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sunnybrook vs Princess Margaret Hospital in Toronto
Replies: 5
Views: 1057

Sunnybrook vs Princess Margaret Hospital in Toronto

Hello
Can anyone advise which would be a better option between PMH and Sunnybrook Hospitals in Toronto with regards to CRC.
Any recommendations for medical oncologist who specialises in immunotherapy at these centres.
Thanks.
by henry123
Thu Dec 06, 2018 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 16
Views: 3047

Re: Foods to avoid during chemotherapy

The only restrictions I can recall are raw fruits and veggies & milk due to compromised immune system during chemos.
Bananas were ok though.
I found light foods like curd-rice easy to handle.
by henry123
Thu Dec 06, 2018 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In canada MSK not option
Replies: 8
Views: 1631

Re: In canada MSK not option

Hello,
Does anyone have experience with immunotherapy at Sunnybrook or any other Ontario hospital.
Could you kindly share the same or recommend Dr.
Thanks.
by henry123
Thu Dec 06, 2018 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 36
Views: 6783

Re: Stage 4 - liver mets disappeared

You probably fall in the category of medical miracles.
I can only recommend that you should do all you can to help your body.
Exercise, go on non animal - low fat diet ( follow Dr. Mcdougall ) , drink tons of fresh juices ( Chris beat cancer) , meditate and stay positive and happy.
by henry123
Thu Dec 06, 2018 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX failed
Replies: 14
Views: 2328

Re: FOLFOX failed

Hello
Sorry to see you here.

Capox and various other chemos failed in my case. Finally immunotherapy worked for me.

I am not from US so can't advise cancer centres to go to but definitely try to get opinion at a major centre.
Best of luck.
by henry123
Mon Nov 12, 2018 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 years old with stage 4 colon cancer
Replies: 12
Views: 3542

Re: 23 years old with stage 4 colon cancer

Stay strong.
If positive then something will work out.
Young ppl are able to recover from and withstand harsher treatments.
As suggested by many, do get urself tested for msi status as well as Lynch syndrome on top priority.
Totally different course of treatment based on results.
by henry123
Wed Oct 31, 2018 10:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 29
Views: 11213

Re: MSI or MSS

Stu
You are doing great work there.
Does anyone know of any advocacy group for approval of Keytruda / Nivolumab for CRC in Canada.
Health Canada seems to be sleeping in this regards.

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