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by henry123
Sat Dec 09, 2017 5:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 4440

Re: Tom marsilje

RIP Tom Marsilje.
Your posts gave me positivity to handle immunotherapy when I had all but given up.
by henry123
Fri Dec 08, 2017 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keto diet?
Replies: 8
Views: 1296

Re: Keto diet?

Read The China Study by Dr. T Campbell. Listen to Dr. Mcdougall lectures on YouTube.
Keto diet is probably a very bad idea for cancer.
As others have suggested, vegan diets may be best for us.
by henry123
Fri Dec 08, 2017 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 8414

Re: Keytruda? What else is new?

Robino1 wrote:I don't have an answer for you but I did want to congratulate you on the impressive drop in your CEA numbers!! Sounds like Opdivo is working REALLY well for you! :)



Thanks, Robino. Pray that things work out for everyone.
by henry123
Fri Dec 08, 2017 5:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RE-POST - VITALLY IMPORTANT INFO: MSI-TESTING
Replies: 18
Views: 4541

Re: RE-POST - VITALLY IMPORTANT INFO: MSI-TESTING

Hello Tom
You are an inspiration. Your post had given me so much hope at the time when I had just started immunotherapy.
Thanks
by henry123
Fri Dec 08, 2017 3:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: very discouraged with this cancer business
Replies: 21
Views: 3324

Re: very discouraged with this cancer business

Hello Since you are msi-H , please explore immunotherapy options . And if you can afford go in for Nivolumab or Keytruda off plan while awaiting for approval in Canada. If not able to get local approval, consider overseas options. Best wishes. Hi Henry, Thanks for the advice. I know it has been a m...
by henry123
Thu Dec 07, 2017 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 8414

Re: Keytruda? What else is new?

Does any one have experience or knowledge with regards to immunotherapy (keytruda/opdiva) , what is protocol (if any) if there is complete regression of tumors.

For how long is it continued once ct /cea are normal.

Is there any maintenance dose ?

thanks .
by henry123
Thu Dec 07, 2017 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 15961

Re: GOOD NEWS ON BEANSMAMA

Well I am home! Took some juggling but I am in my house with my own things and so much more comfortable. I do have home health coming to run my fluids etc. Drains and dressing will be changed at the surgeons office as they were before. Still have a ton of edema and am patiently waiting for the flui...
by henry123
Mon Dec 04, 2017 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 8414

Re: Keytruda? What else is new?

I am happy to hear that it worked out so well for you.
I just got back my CT scans after 6 months of Opdivo. They are mostly clear and only a lesion is there in lung. Earlier I had met spots in liver , lung and peritoneal region.

Cea levels are coming down too.
by henry123
Mon Nov 13, 2017 6:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 8414

Re: Keytruda? What else is new?

Hi Angie, I just had my 3rd treatment of Keytruda. I was not given any end date for it. Because it is a newer thing there isn’t much data on treatment lengths. I have a dose every three weeks. The standard dose is 200mg. I think the treatment length probably varies with each infusion centre. The dr...
by henry123
Wed Nov 08, 2017 1:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here...At a Crossroad
Replies: 24
Views: 2669

Re: New here...At a Crossroad

Hello everyone. I have been reading this forum for about a year now. I have found the articles on this forum to be very informative and the most kindest and caring people I have come across. I find my heart and my mind in a tug of war over my situation. I was diagnosed Nov 2015 with stage 3 cc. Dec...
by henry123
Sun Oct 29, 2017 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 90
Views: 9716

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

For stage 4 my view is to throw everything you have at it, at least to try it. If it was me I would do the oxi until after the first scan to see if it was working. The thing with stats is they are based off a large group of people. Over a group there was a 7% improvement. But if you get down to jus...
by henry123
Thu Oct 12, 2017 2:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 321
Views: 69931

Re: Calling ALL Colorectal CANUCKS !

Henry, here is the link about Keytruda, not sure if it answers your question: https://lungdiseasenews.com/2017/09/26/metastatic-non-small-cell-lung-cancer-nsclc-therapy-keytruda-approved-canada/ Steph20021, last summer I went to Tobermory, what a beutyfull place, pristine water, one could see those...
by henry123
Wed Oct 11, 2017 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MEDI4736 CLINICAL TRIAL (KEYTRUDA)
Replies: 41
Views: 9111

Re: MEDI4736 CLINICAL TRIAL (KEYTRUDA)

Had to stop Keytruda due to mouth sores and throat and mouth infection. Tumor grew and CEA up to 68. They are gonna change my therapy and let's see from there. Gotta gain bodyweight. Hope you get well soon. Shouldn't they be resuming Keytruda once infections are controlled. I use paste of an Indian...
by henry123
Wed Oct 11, 2017 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to Board
Replies: 23
Views: 3123

Re: New to Board

Really nicely written. .. HI BeansMama, I hear you. Boy do I hear you! My sweetie got the Stage IV Dx September 2014. There' so much more I could say, but I'll focus on this. The day we got the diagnosis, the thought flashed through my head: "There's a guy somewhere who was the last guy diagnos...
by henry123
Wed Oct 11, 2017 4:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MEDI4736 CLINICAL TRIAL (KEYTRUDA)
Replies: 41
Views: 9111

Re: MEDI4736 CLINICAL TRIAL (KEYTRUDA)

BIG ROB 69 wrote:Wow, J&K, you've had some journey.

Hello Big Rob g
Any updates on cea levels.
Henry

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