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by henry123
Sun Feb 18, 2018 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mr Ziggy has passed away
Replies: 17
Views: 4840

Re: Mr Ziggy has passed away

Mrs Ziggy
Deepest Condolences.
May God give you and your family strength to accept what is God's will.
by henry123
Tue Feb 13, 2018 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got real, y'all
Replies: 29
Views: 6137

Re: Just got real, y'all

Best advise drink upto 4 or 5 liters of water.
Stay away from raw foods and dairy products as easy to get upset stomach.
If you have any irregular heart beat, take it seriously and report to your doctor immediately. 5FU can cause heart related issues.
Best of luck.
by henry123
Fri Feb 09, 2018 12:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GREAT news to share!
Replies: 11
Views: 1810

Re: GREAT news to share!

Best wishes to your husband.
He will be alright soon.
by henry123
Fri Feb 09, 2018 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feel I need to give up before starting
Replies: 7
Views: 1190

Re: Feel I need to give up before starting

A few years ago in my late 20s , I was feeling unwell a lot . There were lot of strange symptoms like craving for cold foods, flatulence and rotten meat taste in my mouth. No one including family would really listen or understand. One family physician even put a remark about being depressed and delu...
by henry123
Wed Feb 07, 2018 5:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 17139

Re: Keytruda? What else is new?

Another article on duration of immunotherapy after good response http://cancergrace.org/cancer-101/2016/09/14/io-duration/ Hi Henry. First of all congrats on your results on Opdivo. I have been on Keytruda for a year and I am doing well save for the toll it is taking financially. Where I live the d...
by henry123
Wed Feb 07, 2018 5:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years from diagnosis, 1 year on Keytruda
Replies: 13
Views: 1770

Re: 3 years from diagnosis, 1 year on Keytruda

Congratulations on achieving NED.
Are you continuing with Keytruda for now?
Any discussion with your medical oncologist on that front.
by henry123
Tue Feb 06, 2018 5:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Polyps at (relatively) young age...wonderibg how to advocate
Replies: 11
Views: 3266

Re: Polyps at (relatively) young age...wonderibg how to advocate

I did the MyRisk test - diagnosed me with Lynch syndrome and tumor pathology confirmed the mutation. With Lynch, the standard of care is annual colonoscopies- if I would have done this early on, I likely would have never gotten rectal cancer since the polyp would have been caught. For example, I ju...
by henry123
Sat Feb 03, 2018 12:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 17139

Re: Keytruda? What else is new?

Another article on duration of immunotherapy after good response


http://cancergrace.org/cancer-101/2016/ ... -duration/
by henry123
Fri Feb 02, 2018 6:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 17139

Re: Keytruda? What else is new?

Hi Cea numbers are 2.3. Fingers crossed. Also I was reading posts by a user of opdivo on cancercompass site . It seems that after 2.5 years and NED status, duration of infusion was increased to 4 weeks and later 6 and 8 weeks. It was stopped after 1 year. Lung cancer patient. https://www.cancercompa...
by henry123
Thu Feb 01, 2018 12:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Well, hell.
Replies: 25
Views: 3915

Re: Well, hell.

I so totally agree. I am almost fine now physically but have a hard time mentally getting back to my work routine. After two years of roller coaster medical ride, I am still to be my original hardworking self. It is difficult explaining situation to myself let alone others including kids and family....
by henry123
Thu Feb 01, 2018 12:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesions
Replies: 15
Views: 4332

Re: Adhesions

I had lot of adhesions and obstruction once.
Could not be operated on as I was on Avastin at that time.
It was conservatively managed as that was only choice . Thankfully , it worked out .

Don't know status of adhesions now. Will ask after next CT.
by henry123
Sat Jan 27, 2018 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Healthy 42 year old diagnosed with stage 4 colon cancer
Replies: 17
Views: 4665

Re: Healthy 42 year old diagnosed with stage 4 colon cancer

They would have probably already done it but if not then get your msi and Lynch status checked.
It changed the whole course of things for me.
by henry123
Tue Jan 23, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news...and I'm at my lowest
Replies: 18
Views: 2697

Re: Good news...and I'm at my lowest

Bit of a rant incoming... A couple of weeks ago i recieved the news that I had a complete pathological response to treatment confirmed via surgery. My girlfriend cried tears of joy, my family and friends drank for me...and I am at my lowest point of misery as of yet. They seem so confused why I'm o...
by henry123
Tue Jan 23, 2018 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update: It's just a matter of time
Replies: 15
Views: 2947

Re: Update: It's just a matter of time

So sorry for your family.

If you feel like it , please play the following video a few times every day for her.

https://m.youtube.com/watch?t=30s&v=nHvoI56jEus

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