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by DonutHead
Fri Oct 13, 2017 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

So I went back to the dr to check out this bronchitis- she said lungs are clear and doesn't want me to get an X-ray because I have been ctscanned and xrayed too death. After telling her about the resection surgery and the lymph nodes, she told me that I got a raw deal and she was sorry. "Wow. ...
by DonutHead
Thu Oct 12, 2017 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

today is a good day because we are all alive, caught it before it killed us, and are fighting the good fight to stay alive and live long. everyone on this earth has their own problems or will have them somewhere in their future. none of us are unlucky any more than the rest, nor are we not as specia...
by DonutHead
Wed Oct 11, 2017 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

benben, thanks for the readout. we are close to the same diagnosis..i was called at T3 N1 (scant invasion) M0 with 25 nodes and 8 inches of sigmoid colon removed. the tumor did not break out of the colon, was G2 and moderately differentiated the colonoscopy doctor said i was the, "luckiest son ...
by DonutHead
Wed Oct 11, 2017 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

i think they tell you that keying in on the standard chemo protocol. they are not going to tell you that you are going shorter in an effort to keep you focused on the standard. they have to. that's what my infusion nurse told me today. in her 25 years, she said she has not seen many make it through ...
by DonutHead
Wed Oct 11, 2017 6:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

...and my treatment was clearly explained to me today by the infusion nurse, she was amazing! With a clean PET going in to round one, that is the best news. However, regarless...in doing chemo i get 6 months of steady treatment and 12 rounds is the standard. Now, i may not make it all 12 rounds beca...
by DonutHead
Wed Oct 11, 2017 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

...side effects of oxipalitain first round so far... when my wife and i got in about 20 mins after the infusion was done, i grabbed a gatorade out if the fridge in the garage. it was cold, but refreshing before oxi. when i drank it, it felt like i was drinking water from the antartic with freezing i...
by DonutHead
Wed Oct 11, 2017 6:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

Thanks for the well wishes! Today is the day. In just under and hour I will take my first 1000mg of Xeloda then get myself ready for my first Oxaliplatai infusion at 1000...chair number 5. Not quite my lucky number 3, but i will take it. i think of it as Goldschlager, the digusting alcohol we probab...
by DonutHead
Tue Oct 10, 2017 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

The results of my PET scan are in....I am clean! NO metabolic activity, no metastesis, no hot spots, no active anything! Not sure what that means exactly with chemo to start tomorrow, was too busy jumping up and down! Regardless, I have the port and I still want some chemo just to be sure...though I...
by DonutHead
Tue Oct 10, 2017 1:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

Received the port this morning. Right side and they have me set up for ready access tomorrow for round 1. I have my Xeloda and oral Ativan and Zofran as well. The port install was uneventful. It was much like the prep for my colonoscopy with the IV and review of what was to be done. Then it was a sh...
by DonutHead
Mon Oct 09, 2017 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

Stop reading negative stuff...if you want it, the internet will not disappoint. You have to think about you as you are different than everyone else. If they did not find anything on your scans in terms of metastasis it’s likely there is nothing there. i am with you on getting the treatment right awa...
by DonutHead
Sat Oct 07, 2017 5:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

i worry about my body lacking the ability to fight off cold and infections with a depressed immune system. in addition to all of the other things i worry about as well. there is a cold going around, both if my boys have it and are just about done. however, everytime i hear their little coughs, i get...
by DonutHead
Fri Oct 06, 2017 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

Fantastic news! You will do well, no doubt....you must! With your insight and that from others, I think I will get the port afterall. I see the benefits and want to avoid any pains or complications of IV applications. That's why i came on here, to learn from the experts....so thankyou! Let's do this...
by DonutHead
Fri Oct 06, 2017 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

As i mentioned, i will undoubtedly make mistakes as this is all new to me. here is an update to my treatment. i will undergo a PET scan on monday since the oncologist suggested it was necessary to establish a baseline. i am afraid now the PET scan may reveal more than the original CT scan and that m...
by DonutHead
Wed Oct 04, 2017 9:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

Sorry, everyone...I am new to this so will surely make mistakes. Earlier I wrote the oncologist suggested FOLFOX for intravenous infusion. I was wrong. It’s actually an infusion of Oxaliplatin alone over the course of 12 cycles (6 months) and not the other two drugs that make up FOLFOX. The XELODA r...
by DonutHead
Wed Oct 04, 2017 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 597
Views: 160350

Re: NEW-Need some positivity here.

I would love to respond to your individual messages, but appears i have not been on the site long enough for that luxury so please be patient with me. once i have the access and am granted the response privelage, I will respond as this is now my favorite social networking site!

DH

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